Post # 1
So a little background on DH and myself… We have been trying for three years and I have had bloodwork and ultrasounds done which at first thought diagnosed me with PCOS. But after further bloodwork this was later dismissed and we were classed as unexplained fertility. DH had an SA done and all was fine.
So up to the latest… I had an HSG done Wednesday, (btw can you say PAINFUL!?) and it had to be stopped halfway through as I just couldnt deal with the agony. But the dye went through my right tube and the x ray showed I had hydrosalpinx, which is a blockage at the end of my tube. The radiologist suggested that the other tube was probably the same as it more commonly affects both tubes. So the nice lady wrote the name of the condition down for me and told me that I could research it until my doctor could discuss the results officially with me. The little that she could tell me is that I would require surgery to “open it up”.She seemd relatively upbeat and positive, and I got the feeling that it would be something easily dealt with.
After I went home I did the good old home research (thanks google) and found out the exact opposite.
This is where I get a bit weepy, but basicaly after reading various studies it seems that the only “treatment” is to have both tubes removed or tied to prevent the fluid from the blockage essentially causing any damage, and continuing straight to IVF.
I feel like Ive been hit by a bulldozer bees. I mean, having both tubes removed?!Thats a huge deal for me to try and get my head around.
And IVF success rates arent anywhere near high enough to offer me any peace of mind,plus being from the UK the NHS only offer 2 rounds (I think) and then your on your own. We couldnt afford private IVF treatments.
So now Im trying to tackle the thought that we arent going to be possible anymore. I mean there is hope, but its small and kinda feeble right now.
I always thought that we no matter what difficulties we would face it would always just happen,and now Im faced with the very real possibility that it wont.
Im so gutted and feel like the rug has been pulled out from underneath me, and I guess Im just holding on to the hope that my doctor may tell me something different,but its not likely…
Post # 3
I don’t really know what to say besides I am SO sorry you are going through this. Also, don’t believe everything you see online… wait until you talk to your doctor before drawing any conclusions. I know that’s easier said than done, but my thoughts and prayers are with ya’ll that at the end of this you will have a healthy and happy baby.
Post # 4
I’m sorry you’re going through this. But, I would recommend trying not to get too upset until talking to the doctor. As a human doctor I can’t even tell you the number of times patients have come to me after consulting “Dr. Google” very worked up yet dead wrong about things. So, have a talk with your doc and see what he/she says.
Depending on your age, IVF success rates aren’t horrible. If your tubes are really your only issue that makes your likelihood of success even higher than the averages because the whole issue of the tubes is completely bypassed with IVF, and it seems like your ovaries, uterus, and DH’s sperm are all in great working order.
All of that said, dealing with infertility isn’t easy so I definitely feel for you. Are you on the 1+ boards…I’m not remembering…but it’s a great group of supportive ladies over there.
Post # 5
@family_girl: I know that’s a hard pill to swallow. My SIL is in the same boat! I think, though, that you should understand that NHS is giving you a light at the end of the tunnel. Almost no insurance companies here cover IVF at all, and the rounds cost $20,000 each. My SIL will have to do it 100% out of pocket, and they aren’t sure they can do it without selling their home and emptying retirement savings – which is obviously a horrible idea.
I would say stop Googling things and call your doctor and ask a lot more questions. It may make you feel better!
Post # 6
@crayfish: Thank you. I do appreciate that we are extremely lucky with the NHS offering us some hope, but this is all due to funding, which can be withdrawn at any time,plus success rates arent great. Unfortunately I have to wait until the specialist makes an appointment to see me, and as they arent “my” docotr I cant ring up and ask questions. Although I am sticking to properly done research results and not looking at the “gossipy” hearsay results!
Best of look to your SIL. I truly feel for her!
Post # 7
Hi from a fellow UK bee. Am so sorry you’ve got this news! And after three years! To be honest, I’m shocked they didn’t do the HSG earlier!
I’m only five months into the ttc journey, and already have pushed for an ultrasound (doctor agreed because of abnormal bleeding symptoms, but refuses to refer me for any other tests, or even hormonal bloodwork)!
I thought the NHS offered three rounds of IVF if you’re under 40 and have been trying for at least two years / or if it’s the only treatment that is likely to help you get pregnant? You shouldn’t have to wait any longer to start this. I’d push your GP to refer you straight away!
Post # 8
Hi family girl,
I am so sorry that you are going through this time of uncertainty.
I would absolutely suggest that you write down all your questions/queries/worries prior to your consultant appointment and take that written/printed list in with you.
It can be very difficult to remember these when dealing with a highly emotive situation and because you cannot readily access your consultant until the next appointment (which might be months away) it’s best to maximise your time with him/her at this forthcoming one.
Sit your DH and ask him what questions he would like to ask – add those to your list. DON’T be worried about ooh this is a lot of questions – NO you pay into the NHS that doctor is paid to spend time with you – you are entitled to ask all and any questions about your treatment. If you don’t get a clear answer – ask again until you get it.
If you can, take a dictaphone and ask if you can record the meeting for future reference because listening to answers can also be difficult in these situations. The recording gives you a chance to go back later when the emotions are running less high and listen to the advice/consultation again with a clearer, calmer mind.
Just a word of advice on published research – although these are helpful and there are a number of quality control measures that they have to go through before they get published, they are just single studies on select populations and most published ones should have a section where they list their ‘limitations’ of their experimental design. Don’t be fully relying on these to assess your own situation – your consultant will have results personal to YOU and YOUR body. People selected for research are usually recruited according to a bunch of criteria to suit the research aims – you may be in a category that falls outside this specific population.
I really wish you all the best with this and I hope that you get a nice consultant that will be able to help you and give you a plan for moving forward. Please don’t give up hope – it is really important to remain positive as much as you can.
ETA: I’m also from the UK
Post # 9
Oh my! my heart is breaking for you (((HUGS))) I am so sorry this is happening to you, but I have to agree with some of the posters here. Speak to your doctor first, Dr. G doesnt always have the right answers. I will be praying and crossing everything for you, dear. I really hope your doctor has different and more promising answers 🙂
Post # 10
@pink_sherbert: Thank you, it may well be three I have a feeling its been changed around recently,so this could be a possibility. I may try to pull my doctors leg and ask for more IVF rounds seeing as we saved money on not having to do other treatments first haha!In regards to the timeline, we only really brought up our concerns seriously 15 months ago,plus funding wasnt available for our area until April last year.
@hislittlepenguin: Thank you for your advoce regarding when I see my consultant and the studies too. I already have a list of questions for the doc, and am taking pen and paper with me to write down what he says, (I have a feeling a dictaphone may not work as he has an extremely heavy accent,which I may struggle to follow on a recording!) Also, DH is really good at remembering everything that was said, whereas I tend to forget everything as soon as my foot is out of the door!
@MrsR4ever: Thank you for your kind words and thoughts!Its truly appreciated.
I guess my train of thought is that if I expect the worst(tubes removed) then if they do end up telling me this is the case then I may not have a fit in the doctors office or have a breakdown. And I may just be able to hold it together enough to truly take in what they say and means I can ask any questions I may have,
I dont feel guilt per say, or that its “all my fault” becase it is what it is, but I feel so terrible for DH because he didnt sign up for this. I mean he wasnt to know all of this would happen, and I feel really bad that hes getting dragged into this all.
Oh I dont know bees,my thoughts are all over the place, I do apologise if Im not making any sense!
Post # 11
@family_girl: I have no words to express, I am so sorry you are going through this terrible thing. It’s not your fault, no ones fault. There is hope! Stay strong ((HUGS)). May I ask, how old are you?
Post # 12
@candy11: Thank you, Im 24, DH is 29, so I know that we at least have age on our side!
Post # 13
I’m sorry that they found anything wrong at all. 🙁 but don’t get too distraught yet! Maybe there is something that your Doctor can do to remove the blockage. You have no idea how large yours is, how serious, how small, or even if age is a factor! When is your next appointment? Please keep us updated!!