Post # 1
For the past year or so, I have been in constant pain. My wrists and hands ache, my back is a complete wreck, my ribs click in and out of place, my ankles swell/ache, and my feet/legs have dull aches. Some days the pain is so bad I can hardly walk up stairs. The worst is my back.
I started a new part time job in retail recently (I am a full-time student) and it has been taking its toll. The body pain has gotten way worse. Previously I worked in an office which wasn’t great, but it wasn’t as physically challenging.
I have talked to my doctor but he’s baffled and can only say it might be fibromialgia. In the mean time, I’m in so much pain most days I can barely function. I enjoy my job, but I hate feeling this way.
I eat healthy, exercise 3-4 times a week, and don’t have any other major health problems.
Any thoughts/advise? I really want to keep my job but right now I’m struggling. My fiance wants to have me quit, but we can’t afford it unless I were to go on disability (which is unlikely being I have no diagnosis).
Post # 2
TiffLee: If you need a referral to see a specialist, ask your doctor for a referral to a rheumatologist. If you live in the US and can make your own appointments with specialists, call one yourself.
They should be able to make the diagnosis if it is fibromyalgia, then you can start a proper care plan.
Post # 3
- Wedding: September 2014 - Cadillac mountain
I would highly suggest doing a food elimination diet. I was in a similar situation (although I do have auto immunes in addition) but was on constant pain meds and couldn’t pick up a bag of groceries. It turns out I’m very allergic to corn & without corn all of those symptoms went away. The only way to diagnose food allergies is food trials (allergy tests are unreliable)
Post # 4
julies1949: I second this 100%. A variety of things could be causing you pain like that, and a rheumatologist will be better at sorting it out.
Post # 5
Get a second opinion. A doctor being “baffled” isn’t particularly comforting or helpful. I agree with PP a rheumatologist may help.
Get your vitamin D levels checked (low vitamin D symptom is chronic pain).
Is it more joint pain or muscle pain?
Post # 6
I would go see another doctor. I wouldn’t take advice from people on a forum that don’t even know what you have and will just make guesses.
Post # 7
I agree about the rheumatologist. Even if it turns out to be something you need to see another specialist for, I think most GPs wouldn’t be able to guess what that specialist should be. Hopefully a rheumatologist would either be able to diagnosis and treat you, or send you to a specific specialist who can do it.
Post # 8
Have your doctor test you for lupus.
Post # 9
TiffLee: I feel like I could have written this post. I am so glad to hear that I am not alone!!! I have been in near tears and major anxiety for the past 6 months, because doctors tell me the same….they have no idea why I have constant pain. I have been tested for RA and lupus, and don’t have those. My feet, ankles, and knees are in constant pain…similar to you, it is a challenge to get up every morning. Keep us posted, I would be really curious if you find any solutions!!
Post # 10
- Wedding: September 2014 - Jacksonville Inn
TiffLee: You need to see a rheumotologist. Many of your symptoms are similar to my partner’s and she has Rheumatoid arthritis. I hope they can figure out what is going on and help you feel better soon! I also wanted to add that many people who have RA do not have positive blood work, that is where a good rheumatologist comes in. My partner’s blood work for RA is still negative but she has all the other symptoms and is being treated for RA.
Post # 11
Thanks everyone for the advice, I really appreciate it. I saw a rheumatologist and was diagnosed with fibromyalgia. Hoping to start feeling better soon!