All Blood tests are Normal, why am I still disappointed?

posted 1 year ago in Wellness
Member
1255 posts
Bumble bee

@FreckledFox:  i had that a few years ago. Turns out when drs say they tested you for all vitamins it might not be all. I was very low in vitamin d, iodine, iron, zinc, magnesium & testosterone which i didnt even realise women had lol. Dont give up, its not in your head. 

Member
172 posts
Blushing bee
  • sfp
  • 1 year ago

Oh I know how you feel!

 

I probably have fibromyalgia, which is very difficult to diagnose and most doctors don’t even take it seriously. There’s no treatment either.

I’ve been to many doctors and nobody seemed to take me seriously and told me it was pschological, so I finally put my foot down after ten (!) years, and I’ve finally seen a specialist. Though he didn’t think anything was wrong with me either… He did take my blood, urine samples and I had xrays of my lungs taken. So I guess we’ll see.. I’m getting results back next week but I’m already worried for the results. 

What if nothing is shown on the results and they can’t find anything?!

 

I’d really rather have a diagnosis than living in the dark as I have been doing for the past ten years. Surely, I don’t want to be ill, but clearly something is wrong with my body so I’d rather know what it is.

 

I can’t tell you what’s wrong with you, because I’m no doctor, but I can tell you that you might want to try a different route. Try a different doctor, ask for addtional tests.. And most of all tell you that I understand your frustration! 

 

Member
6874 posts
Busy Beekeeper

It could still be hypothyroidism, even if the Dr. says you are okay. Ask him for the actual numbers on it.

Quote from, http://thyroid.about.com/od/gettestedanddiagnosed/a/diagnosis.htm

“To diagnose or rule out hypothyroidism, doctors will typically start with the blood test that measures thyroid-stimulating hormone (TSH). As of Spring 2003, most American laboratories had a normal range from around 0.5 to 5.5. However, the American Association of Clinical Endocrinologists has recently recommended that the normal range be revised to 0.3 to 3.0. With 5.5 as the top end of the normal range, a TSH above that level is considered hypothyroid. Under the newer guidelines, however, a TSH above 3.0 could be diagnosed as hypothyroid.”

Basically, your numbers could be .3 and he would consider that “normal”, where as a highly functional thyroid is 5.5. A normal one is 3.

Seriously, get your actual results from it and then go from there!

Member
6874 posts
Busy Beekeeper

@sfp:  There is no treatment for it, but there is a drug that lessens the pain. I’m not sure about the side effects though, I know I’ve seen it advertised a zillion times on TV.

Member
11349 posts
Sugar Beekeeper

@jenilynevette:  Lyrica? 

@sfp:  Actually, light marijuana use works. I know someone who has fibro and started smoking (like, 2 puffs every couple of weeks, I think she said?) and she’s a completely different person now. Obviously I can’t tell if her pain is gone, but her personality is completely different, and she said it’s because the pain is managed/gone. 

@FreckledFox:  Do you take any vitamins regularly? If not, give that a shot. Multivitamin, vitamin D, a B-complex, and omega-3s. You can also take something for your hair/skin/nails (I have one from Vitamin Shoppe that’s just called hair/skin/nails, but I know it’s got biotin in it). Drink lots of water, too. 

Member
172 posts
Blushing bee
  • sfp
  • 1 year ago

@jenilynevette:  You mean for fibromyalgia? I don’t live in the US, but in Europe so I don’t know whether I’d be able to get that drug. American doctors and scientists are much further with fibromyalgia research and treatments, and often recognize it as a disorder, wheras in Europe it’s still often not recognized and there’s no treatment or drugs available :(

Member
172 posts
Blushing bee
  • sfp
  • 1 year ago

@vorpalette:  Haha since I live in the Netherlands, marijuana is legal, so should be easy to obtain. But I’m strongly against drug use, so that’s no option for me, even it if is legal to get and would work. But thanks for the tip :P

@futurefoxwife, I would maybe try Vitamin B12 supplements. It helps me too.

 

Member
1972 posts
Buzzing bee

Ditto PP about requesting the actual numbers.  I had my B12 tested and while I wasn’t out of range, and doc said it was normal, I was at the bottom of the scale and was experiencing symptoms.  

Also, for the upset stomach, keep a food diary for a week.  Log every meal and every snack and make sure you note how your stomach feels.  It’s likely that your food is to blame for that one.  If you don’t mind sharing, what kind of stomach upset are you dealing with?  For example, I had chronic constipation/IBS my entire life until I cut out dairy for other reasons; low and behold, the constipation/bloating is gone.  Food for thought…

Member
7934 posts
Bumble Beekeeper

You can be happy and clinically depressed at the same time. I’d lomini to the possibility the you have depressing before considering something as severe as fibromyalgia.

Member
8 posts
Newbee

I don’t know it this will be of any help, but I have been desparate with feeling generally unwell and it was suggested that I see a Chinese herbalist. Do you know what? It changed my life! And that was after 2 months of treatment – which after all the time I spent feeling ill was nothing. Hope this is helpful x

Member
55 posts
Worker bee

@FreckledFox:  Definitely ask for the numbers!!! There’s a lot of controversy over what a “normal” TSH level is.  When I originally got tested, my doctor told me that my score (4.8 or so) was in the “normal” range because it was between .5 and 5.  I was still feeling really sick, so I went to another doctor.  This doctor took another look at the same test and told me that she generally finds that people feel best when their TSH levels are under 2.  She started me on Armour Thyroid, and, 9 months later, I feel WAY better.

Good luck, and hope this helps!

Member
3957 posts
Honey bee

Did they test your antibodies level?

Call and ask for your results.  Check all your levels yourself.  If they haven’t checked your antibodies level, ask for them to re-test.  I’m not sure why, but a lot of Dr.’s skip over that test which is CRAZY since it tests for Hashimoto’s.  Which can give you all of the above symptoms and more. 

Member
1032 posts
Bumble bee

I was ill for 5 years and every time it was something else.

Headaches, high blood pressure (so bad I almost had a stroke), cysts, back pain, weak joints, tendonitis, stomach pain, thrombosis – you name it, I had it.

Every time I went to the doctor they rolled their eyes like “oh look, it’s her again” and it drove me insane. I wasn’t making it up.

I had so many tests done and finally one doctor tested me for lupus – it came back negative and I cried.

Why would I cry because it wasn’t lupus?? Because I just wanted to know what it was – even if it was awful – because knowing what it was would be better than not knowing.

Finally after 5 years it was diagnosed – Coeliac’s disease. An intolerence to gluten that had gotten worse over the past 5 years since I was living away from home and eating pasta and pizza’s all the time.

All my symptoms were because of malnutrition, not the Coeliac’s itself, which was why it was so hard to diagnose.

Believe me – the answer is out there somewhere. You just need a Doctor as clever as mine to piece together all the bits of the puzzle.

Also though – what I learned in my journey was that no one wanted to question food. They all wanted to find an answer to the problem inside my body when my problem was because of what I was doing to my body.

May I ask what your diet is like? And be honest – because a lack of fruit and vegetables (forget 5 a day – 8 a day is where the benefits lie) really does have a huge effect. When I was diagnosed I cut out gluten, meat AND dairy and ate vegan for 2 whole months – the results were ASTONISHING. Better skin, hair and nails, more energy, no bloated tummy, no pain, everything just got better.

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