(Closed) Alopecia / Hair loss

posted 5 years ago in Emotional
Post # 3
Member
286 posts
Helper bee
  • Wedding: November 2012

@michiru4ever:  I am SO SORRY you are going through this. I can imagine how difficult it is. My best friend had alopecia due to medication as well and it was really hard for her. You are doing the right thing by trying to talk to your doctor and trying to reduce stress. It’s so difficult when worrying about the alopecia makes it worse!

Try not to think too much about the wedding and what it will look like because there’s no way to know and no way to control it. Just remember that your overall health and whatever the medication is for is more important than hair, tough as that is to remember.

As for your doctor- not cool! Can you look into switching doctors? If the ignoring continues you might want to go to the office to talk to the receptionist in person, or try to find someone else to see.

Either way your future hubby loves you no matter what and your wedding will be beautiful and so will you.

Long walks, yoga/stretching, deep breaths all helped for my friend. I hope it all works out for you.

HUGS!!

Post # 4
Member
2305 posts
Buzzing bee

Ugh this sucks.

A really really good friend of mine from high school has mild alopecia. She went to a doctor and was prescribed something topical to rub onto her bald patches to make the hair grow back, and it worked really well. (Though of course while the hair patches were growing in, it was a lot shorter than the rest of her hair.) Hers was auto-immune/genetics-related, though, so I’m not sure if the treatment is the same.

I don’t remember what it was called, but I could probably see if she remembers for you?

Post # 5
Member
1240 posts
Bumble bee
  • Wedding: March 2013

can you go to a new doctor to discuss? are there any other migraine medicines which dont have this side effect?

Post # 6
Member
1015 posts
Bumble bee
  • Wedding: October 2012

I have to admit you cracked me UP with the Chinese Crested comment, but I am so sorry to hear what you’re going through. I would do just what traveller suggested and find a new doctor ASAP. If it is indeed the medication, you need to know. 

Post # 7
Member
1240 posts
Bumble bee
  • Wedding: March 2013

double post

Post # 8
Member
81 posts
Worker bee
  • Wedding: August 2012

I can totally relate to the stress you’re going through with working and going school.  I was almost done with nursing school when I started to plan my wedding.  I would seek advice from your primary doctor.  If your neuro MD does return your call soon, I would possibly change neuro docs, how unprofessional.  Take care!

Post # 9
Member
1414 posts
Bumble bee
  • Wedding: June 2012

OP, I don’t have Alopecia but due to aggressive medical treatments I have lost all my hair twice.

I know what an emotional toll it takes on you….

My advice would be to really talk to your doctor.

Let him know how much this is bothering you.

If he doesn’t listen; look for a different doc.

Post # 10
Member
272 posts
Helper bee
  • Wedding: August 2015

Just an FYI as there seems to be a little misinformation – Alopecia is not an auto immune disease (at least the standard Female pattern baldness – Androgenic Alopecia which accounts for the overwhelming majority of women who suffer from hairloss) – What you have sounds like Alopecia Areata which IS an auto immune condition. I would suggest talking to a knowledgeable dermatologist – this is hard to find, many of them are clueless when it comes to hairloss in women. Anyhow, because you cannot truly predict when your hair will fall out/come back, it can be really distressing for you. I would highly recommend a cosmetic solution since the hairloss is on the side/crown area you would be a really good candidate for a topper (hair addition) which can be clipped or bonded to your scalp. You can check out http://www.heralopecia.com for more info – and you can google HPI nashville, TN – there are places like this all over the country, but it is the one that I used so that you can see some of the before/afters of women who ordered hairpieces. As someone who has been wearing them for a decade, I find that my stress level is back to normal, because I’m not always worried about how thin my hair looks and if my scalp is showing. You can PM me if you have questions – I’ve been dealing with AGA for like 17 years ;D

Post # 12
Member
2699 posts
Sugar bee
  • Wedding: June 2012

You still have many months till your wedding, that’s time for your hair to grow back. Come off this medication as soon as possible….if it’s having this kind of effect on your body you’re better off without it. Good luck xx

 

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