Post # 1
Just wondering if anybody has any experience in coping with interstitial cystitis? this has betear chronic issue for me but only now has it been severe enough to start treatments other than diet modification. This has been the worst four months as far as pain goes. I also have Crohn’s disease and fibromyalgia so I have a history of autoimmune issues and chronic pain.
any one out there had any experience with bladder irrigations, supplements, or medications for IC?
Post # 3
I have what is suspected to be ic, but I refuse to get the test done for it. I was regularly seeing an urologist until a couple of months ago when I could not afford to go on a regular basis. I have pain every once and awhile. I have decreased the number of flare ups I have from once every couple of months to one or two every year. When I have a bad flare up I can feel it start and know that I need a prescription for anti-inflammatories and usually a stronger non-narcotic pain med. I’m only 24 and have been having these issues since I was 19. Once we realized what it was, and how to treat it, it was much easier to deal with.
Feel free to PM me if you want!