Post # 1
This might be long…
back at the beginning of march, I was having really bad side pains on my right side. I went to the doctor and he sent me off for a ct scan. Turns out I had 2 kidney stones. One on each side. My left side wasn’t bothering me at the time. I went to the urologist and found out that both stones were stuck in the tubes. The right stone was 7mm and the left was 8mm. The urologist told me that my left kidney was completely blocked and not working at all. I had to have emergency surgery that night and they went and put stints in on both sides and left the stones there for now. He said that if the stone on the right flipped, I’d go into kidney failure. WHAT. I almost passed out right there in his office. So the stints were put in to make sure the right kept working and the left one could try to work. A week later, they went in and blasted the right stone out and put a stint back in. I went 2 weeks ago to get a nuclear scan to test my kidney function. My left was only at 23%. They really wanted to see it at 30-35%. My urologist is thinking that my left kidney is going to have to get removed. It’s just not healthy. It was inflamed and filled with blood before the stints were put in and the lining on the outside is really thin. He’s going to get second opinions from his colleagues and then I’ll know more next week when I go back.
right now, I’m terrified. I know having one kidney is pretty common. BUT! My wedding is in September of this year…I’ll have to take off a work for a major surgery and I’m really bummed that we might have to push back our honeymoon.
What pisses me off the most is that ive gone to the doctor countless times for side pains on both sides. I’ve always been diagnosed with UTIs or kidney infections and never once was sent for a scan. Kidney stones run wild on my dads side of the family. I was having side pains in December and went to the gyno for an abnormal pap and while i was in there, I told them about it and did a urine sample. I never heard back for the results for that so i assumed everything was fine. I had really a bad side pains in January but it only lasted for a couple hours and then I was completely fine.
is there anyone out there that has had a kidney removed? Or was born with one kidney I just want to know what it’s like…how long did it take to recover from surgery? Are there any problems you have? Things like that. I just need reassurance I guess. I’m scared and bummed.
Post # 4
I have a friend who had a kidney transplant as a child. I don’t know though whether she has one kidney or two. She was recently hospitalized with a kidney infection from drinking too many energy drinks, but as long as she doesn’t do that she is fine. She drinks copious amounts of alcohol and this doesn’t affect her at all really.
This is all I have!
Post # 5
My Mom had one of her kidneys removed 3 years ago (cancer) and is back to 100% kidney function with just one kidney! Since she’s much older than you, I can only imagine that you will do just fine 🙂
Post # 6
@KJA00: Sorry to hear this. I have had one kidney that is blocked almost completely, diagnosed at around 8 years old, but it was never fixed or removed… I’m not sure why. Anyway, any surgery can be scary, and being that it is right in your torso I am sure the recovery will be pretty uncomfortable, but you will pull through. People go through this sort of thing every day. Did they recommend any dietary changes to help minimize the chance of issues with the other side?
Post # 7
I have a good friend of mine who had her kidney removed when she was a teen (probably 16). She needed it removed because it stopped working and she was prone to kidney infections and UTI. Years after her surgery she started having complications but nothing to the point where her other kidney needs to be removed. She still does get UTI and infections from time to time but that is about it. However, I must say this…. she consumed many things she shouldn’t consume which doesn’t help.
The one thing I can suggest to you is to stay away from things which can harm your kidney. I had a terrible kidney infection which landed me in the hospital when I was 20 and I was instructed to lay off soda and drink lots and lots of water and cranberry juice. Also, I was told having large amounts of caffeine can produce kidney stones as well calcium phosphate which can be attributed to dehydration and excess protein in the diet.
You will be fine 🙂
Post # 8
My aunt was born with one kidney. It’s never caused any health problems for her.
My FI went through kidney surgery. His kidney was twisted and impacted causing stones. He underwent major surgery and he goes in for the occational check up.
While it sucks now, you will feel so much better when it’s done. Good luck!
Post # 9
@BluePeaches: wow! Blocked from kidney stones? They just said to stay away from salt/sodium and tea. I drank tea like it was going out of style. But since kidney stones run on my dads side of the family, I’m not sure what else I can do. I’ve been trying to eat better now.
Post # 10
@KJA00: I have a friend that has only 1 kidney, not sure how long it’s been, but he is a normal healthy, active 27 year old.
My concern more for you is your unhappiness with your Dr. While he is off getting second opinions from his colleagues I think it might be a good idea for you to find another urologist and get your own second opinion. Even if that Dr agrees you may feel more comfortable with them and their practice. Best of luck to you!
Post # 11
My dad has PKD, a genetic disease that destroyed his kidneys with cysts and had to remove them in 2001 and had a transplant in 2003, he was 100% until the transplanted kidney failed. That had to do with the transplant though, not the one kidney. You just need to be more aware about what you eat/drink if you just have one kidney but generally you can leave a totally normal life. The only other thing would be to make sure other docs know you only have one because they would need to be more careful with some nephrotoxic drugs and give you a renal (usually reduced) dose.
Post # 12
@KJA00: My mom has only one kidney and *knock on wood* she’s in perfectly good health, always has been.
She gets the occasional UTI as I think many of us do. No biggie.
Just make sure any problems like that are dealt w. quick!
Post # 13
No.. well its the ureter that is kinked, preventing the kidney from being able to empty to the bladder. They found this out when they were doing some dye tests to try to figure out why I was having incontinence issues (which, they said, was being caused by my bladder not signaling to my brain– whether that is a real thing or something they pulled out of their butts who knows… I was restricted from caffeine and instructed to empty my bladder every two hours regardless of lack of urge, which to me is more like trying to prevent symptoms than actually looking for a cause). I used to get very very sharp pains on that side in my back but luckily that has not happened in years.