Post # 1
Hi bees, life’s been a little crazy lately and I haven’t been able to be(e) here as much as I want…
I’m hoping some of you have a friend or family member or even yourself with MS. A new in law of mine is facing a 98% likely diagnosis after being admitting for what they originally thought was Lyme Disease….
While I’ve been a multiyear volunteer for Bike MS and know some basics about it, I’m looking more for people she could be in contact with for advice, and advice for ME as to what we can be doing to help.
Any advice or suggestions is appreciated!
Post # 3
I have an aunt with MS. She has it managed to the point that it hasn’t really effected her much. I think she confirmed MS in her early 40s. She has daily injections, I believe. Since she has so many injections she’s constantly having to find new places to inject herself. 🙁
Post # 4
My mom has it, diagnosed in 2008. She actually got the Liberation treatment done last summer and it helped her out tremendously. She is still on daily injections though, just in case.
Post # 5
My son’s stepmom and her brother both have MS and it effects them differently. My son’s stepmom has a lot of trouble walking and it has gotten much worse over the past few years. I know she is on a lot of medication and tried home remedies and watching her diet, etc..
My son and his dad are very involved in fundraising for MS as well as the MS bike rides. If you want more information you can PM me your contact info and I will pass it on to her to provide you with much information
Post # 6
My sister has MS. She’s doing great but of course has some days/weeks that aren’t as fun as others. She was diagnosed maybe 8 years ago or so. It affects everyone different. She is an active mother of two and in great physical condition. Biggest issue with her is that she requires lots of sleep – but some people are just that way anyway.
You just never know with MS. It doesn’t ever seem to affect 2 people the same way. Continue living life. 🙂
Post # 7
My FIL has MS and has had it for about 20 years now (diagnosed in his late 20s I think). I don’t really know much of anything about his actual medicines except I know he takes a lot of pills. But, I can tell you that at 20 years past diagnosis and now well into middle age, you would not know to look at him that he has MS. He does have trouble doing extreme physical activity (like he couldn’t help us move probably) and he walks with a very slight limp, but he can walk around a mall, go up and down stairs, build furniture, remodel a kitchen… all just fine. He takes his medicines and goes to swim at the Y a few times per week and sees his doctors… but he is really leading an extremely normal life. So I guess my advice for you is just to not panic. And try not to let your family member panic. Don’t treat her like this is a death sentence. It is a big deal, it is life altering, but it is not life ending. She can still lead a normal life and do everything she wants to do.