Any ladies with diagnosed PCOS want to answer some questions?

posted 3 years ago in TTC
Post # 4
85 posts
Worker bee
  • Wedding: September 2012

I was officially diagnosed about a month ago. I’ve probably had it for years, but my testosterone was finally high enough when they did blood work to diagnose me. Symptoms that I had were weight gain (and unable to lose even with lots of exercise) and abnormal cycles even when on the pill. I also have a family history of PCOS, so it was likely that’s what I had.

They did bloodwork and then a transvaginal ultrasound just to make sure there weren’t any other problems. I just started Metformin this week. And if I don’t get a BFP this month then my doctor is going to start me on a combination of that and Clomid. Just as a FYI- DH and I have been trying for 6 months. 

I’m still learning a lot too about PCOS and treatments. Hopefully your doctor will be aggressive with your treatment if that’s what you want. Don’t be afraid to ask questions. Especially about side effects of medication.  

Post # 5
284 posts
Helper bee

I’m not TTC, but I chart my cycles b/c I’m crunchy like that, lol.

OP, I assume you’re charting/temping? I also have PCOS. I was diagnosed…about 2 years ago? I had really sharp pains near my ovaries that really concerned me, so I went to the doctor. I also have the classic PCOS hair growth (boo), those few extra pounds that are really hard to shake, etc. I don’t have irregular cycles (25-27 days, a couple of outliers, but nothing majorly irregular), but from charting it seems that I only ovulate during just over 50% of my cycles. Anyway. The doc examined me, then did an ultrasound and was able to visually diagnose. She confirmed with blood tests (hormones and glucose). I’m insulin-resistant and was on Metformin for a while. I’m bad about taking medication, and also would rather control my condition with diet and excercise, so I haven’t taken Metformin in several months.

And I want to add… I also have odd CM patterns. If anyone happens to be an expert in PCOS CM patterns and crazy temps, that might be extremely helpful for OP (and me!) to read about. Can’t find a whole lot online.

Post # 6
137 posts
Blushing bee
  • Wedding: August 2009

I was diagnosed with PCOS about a year and a half ago.  I didn’t have any obvious symptoms, but after ttc for over a year went to a fertility dr. and they found I had high testosterone.  

My first dr put me on metformin and had me do an IUI cycle on clomid that was unsuccesful.  

I then changed drs (I moved…but my first dr was horrid anyhow) and my new dr took me off the metformin (saying he doesn’t find it useful to just put everyone with PCOS on it…it depends on the person and their other factors).  He had me do 1 IUI cycle with a combo of clomid and injectibles, which wasn’t successful, and then had one cycle focusing more on the injectibles…still on clomid, but with the injectibles playing  greater roll…this cycle got cancelled because of too many follicles.  

Turns out I have ZERO response to clomid, and awesome response to injectibles…which isn’t so great for doing IUI.  So we had the choice of continuing with IUI with a high risk of having cancelled cycles, or going on to IVF and we chose to go IVF.  I had my egg retrieval in Sept. and produced so many that they froze them all rather than transfer anything right away and risk issues due to my hormones being totally freaked out.  Had my first FET in Dec, which didn’t take.  Had the 2nd in Jan and just got confirmation today that it worked!

My understanding is that typically PCOS is pretty easy to deal with…often without any fertility treatments at all (just diet/exercise/etc) or with just the basic clomid (with IUI for good measure).  I was just lucky and had no response to the “easy” methods. 🙂  

Good Luck!

Post # 7
6067 posts
Bee Keeper
  • Wedding: January 2012

@krstino1012:  Hello! I was diagnosed with PCOS 3 years ago and I was devastated. I had severe pain in my lower abdomen which turned out to be cysts.

Unfortunately I believed all the horror stories. The truth is, it’s simply different for everyone. And I know so many people who, either naturally or with treatment, were able to conceive.

I ttc for 4 months and then I was prescribed Clomid since I wasn’t ovulating. On my first round of Clomid, I concieved! I also lost 25 lbs before beginning the medication.

Woohoo. I’m 11w pregnant now.

FX for you!! 🙂


Post # 8
486 posts
Helper bee
  • Wedding: September 2012

I was diagnosed 12 years ago. I had maybe two periods a year if I was lucky. We also have some other issues but we did IUI with femera and I take metformin to get pregnant last July which I sadly lost at 26 weeks. I am back on metformin and will most likely follow the same iui with femera when we can start trying for our rainbow baby.

Post # 9
195 posts
Blushing bee
  • Wedding: June 2014

I got pregnant with PCOS after 3 rounds of clomid, a hysteroscopy and 2 miscarriages (one from each of the first two clomid rounds). Finally I had my great boy who’s now 5. 

Post # 10
41 posts
  • Wedding: May 2014

@krstino1012:  I was diagnosed 3 years ago now. I’ve always had acne and excess hair, but I think that may have been due to years of undiagnosed PCOS. My only real symptom was not having any periods for 9 months. After taking a lengthy history, gyno did a transvaginal ultrasound to confirm (in addition to bloodwork). Currently on Levothyroxine and Metformin.

I know a lot of women have success getting pregnant/resolving symptoms with weight loss. I, however am 5’3 and 120lbs, so that won’t really be an option for me, so I too will look for some more answers when it comes time to TTC . I suppose everyone is different!

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