Post # 1
I have these things pretty frequently and I am petrified that I am going to get one at the wedding.
For those of you who dont know what they are: They are migraines without the actual headache (or for some days I get the headache after) it is little flecks of light that efect my vision. I can barely read or see when I have an attack….
If you are a frequent flier in the migraine or silent migraine department how did you be sure you didnt get one on the day of the wedding?
Post # 2
Hey I get these, but I wake up with them and can’t see for a while. I don’t think I’ve had it happen in the middle of the day. My only suggestion would be to take some panadol on the day and not drink any coffee, get plenty of sleep. Treat them like a ‘normal’ headache I guess? Sorry I can’t be more help.
Post # 3
Do you know what triggers your migraines? If so just do your best to avoid them as much as possible.
For example I know mine are triggered from things like if I’m not eating enough or drinking enough water. Also if I keep changing between bright rooms and dark rooms, or chemically smells like hairspray. So if I have something on and really can’t afford to get one I will make sure I’m eating and drinking water like crazy. Go outside to spray my hairspray and stay in well lit areas that aren’t too bright.
I’ve also been known to take some precautionary ibuprofen or acetaminophen.
Post # 4
I thought I got silent ones, now I wonder if it was something else causing them. Either way, the symptoms were most often triggered by hormone fluctuations so not having one of my infrequent withdrawal bleeds around my wedding worked.
Post # 5
Go see a neurologist. He will be able to tell you if you need medication or not.
I don’t want to minimize- I am sorry you are going through this as anything like this absolutly sucks!! But you are so lucky you don’t have the actual headache. I have been suffering from chronic migraines (sometimes with sometimes without the aura) for 5 years now. I have been on Topamax (an anti-seizure) medication, plus multiple types of medications for the onset of a migraine. My triggers are sunlight/heat, beer or wine, over-sleeping, caffeine, certain types of additives in foods, or just general stress.
The best advice I can give is start a headache tracker. As soon as you have an aura, write down everything you have done the past few hours leading up to it. Everything from food, drink, sleep levels, temperature, or smells can be a trigger. Then go to a neurologist with your tracker and they can help find the causes and find the right treatment for you.
I forgot to mention my doc. wants me off topamax asap because it can cause birth defects in babies. (not that we are trying, but if something happens, that’s not a risk I want to take.) I don’t want that to scare you, there are a few other options out there. You might not even be having a true migraine! But he is not messing with my treatment until after the wedding to minimize the chance I will have one on my wedding day. I went from around 4 or 5/week to 1 or 2/week. The risk is still there, but you never know how you are going to react so I would get help as far out as possible.
Post # 6
I get these ALL THE TIME! They started in high school and I get them often without warning. sometimes it’s lighting and others it’s the way I’ve been slouching on the couch… I’ve ben to a neurologist with no luck! Just stuck with the forever I guess! oh, if you are n birth control pills, then get off them asap!! theyre bad news for people with silent migraines!