Anybody with IBS have success on the FODMAPs diet?

posted 3 years ago in Wellness
Post # 3
Member
1168 posts
Bumble bee
  • Wedding: June 2014

@alysee:  Just a tidbit: I was diagnosed with IBS. Had stomach issues on and off since childhood. Tested negative many times… then finally tested positived for Celiacs. Have you tried going gluten free for 3 months? I know it is not easy or for everyone, but it can be a life saver for you, if you find out your stomach issues are from gluten.  

Since on FODMAP you are supposed to not eat wheat, it should be easy to eliminate rye and barely as well. 

Definitely talk to a nutritionist either way. Being on any type of restrictive diet for stomach health is very tricky and hard. A nutritionist can help you learn how to read labels properly. You also have to determine your sensitivity level. It is trial and error with all diets. Good luck with what ever you pick. I hope you feel better soon. 

Post # 5
Member
3756 posts
Honey bee
  • Wedding: April 2014

Just because you test negative for celiac doesn’t mean you’re not gluten intolerant. I have Crohn’s and a gluten and dairy free diet is the only thing that helps me. FODMAP is a good place to start though.

Post # 7
Member
1168 posts
Bumble bee
  • Wedding: June 2014

@alysee:

you can test negative for MANY years. if you read any celiac forum you will easily see that people had horrible symptoms way before they tested positive for it. Celiacs is often misunderstood and under diagnosed. You may have a gluten sensitivity, which is having no immune response but still having issues digesting gluten. 

I was diagnosed with IBS at 9 after a visit to the emergency room revealed, very swollen intestines. I was put on a variety of drugs. One of the drugs built up in my system and caused kidney stones. I was still experiencing symptoms. Then they told me I was just too sensitive. Then I was diagnosed with GERD and a heital hernia (I followed a strict diet for that too, with no relief).

Fast forward 15 years of misery, embarrassing stomach issues and no resolution… and I finally tested positive for Celiacs. This is after my thyroid and joints had suffered damage from ingesting gluten. You can save yourself a lot of trouble down the road, if you just rule it out now by going GF. The testing can be misleading.

IBS is an umbrella term for chronic stomach issues. As a diagnosis it has no etiology or cure. Many people refer to it as a symptom rather than a true diagnosis. Some even call it a bogus diagnosis. Most celiacs, people with crohns or people with food allergies- were almost always first diagnosed with IBS. 

Just writing all of this so you are aware. I am not trying to influence your medical choices, but I do think you should do more research about IBS. It usually is a diagnosis indicative of other underlying issues. I hope that you dont live in pain or on a restrictive diet without benefit. 

Post # 8
Member
4223 posts
Honey bee
  • Wedding: August 2013

I’m IBS. I eliminated gluten, dairy and yeast and it really helped. Also, try a “squatty potty” and probiotics, enteric coated peppermint oil capsules and digestive enzymes. 

Post # 9
Member
10495 posts
Sugar Beekeeper
  • Wedding: January 2011

@alysee:  I wouldn’t bother seeing a nutritionist.  Go to someone who has the proper training and see a dietician.

Post # 10
Member
295 posts
Helper bee

Commenting to follow since I have been having so many stomach issues and thought that this thread could be useful

Post # 11
Member
327 posts
Helper bee

I whole-heartedly believe in the FODMAPs diet and have done a lot of the research.  I didnt follow it strictly but had a lot of success with avoiding Fructans.  PM me if you like 🙂

 

*Also Goodbelly probiotics have been super helpful to me.  Also I saw comments about seeing a “professional”.  From what i’ve seen, a lot of them arent on the fodmap train, just hit the US recently it seems.

Post # 12
Member
327 posts
Helper bee

** on the whole gluten thing.. i agree with folks however I will say, I wonder if some “gluten” intolerances are actually not intolerances to the protein “gluten” but actually to the carbohydrate portion “fructan” in wheat.  It would be hard to tell.  Regardless, I think avoiding wheat products is a good idea 🙂  

Post # 13
Member
327 posts
Helper bee

@alysee:  1. its restrictive, if you cant go full fledge just try to avoid most of them (esp fructans in my experience).  2. Following a Paleo diet helped me a lot (or at least looking to paleo for recipe ideas even tho fodmap isnt necessarily same as Paleo). 3. get your thyroid checked too.

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