Anyone else has a SO/loved one with a DVT?

posted 3 years ago in Wellness
Post # 3
Member
112 posts
Blushing bee

Sorry, I’m not much help…SO’s father had DVT and is on blood thinner. He has trouble walking long distances so doesn’t travel very often.

I would suggest you bring up your concerns with the doctor. Your worries are understandable, especially if you will be the only one around if something were to happen while you two are traveling. It seems strange he wouldn’t tell you about the clot from your first cruise…definitely sounds like something you should know.

 

Post # 5
Member
6 posts
Newbee
  • Wedding: July 2017

Hi There –

I developed a DVT a few years ago so I know how this whole situation goes.

 

Is your FI on blood thinners for life now? I was told that if I developed a second (the first was brought on by a combination of birth control and Factor V Leiden), I would be on Coumadin for life. 

 

As it relates to travel, I still follow a pretty strict regimen because I know I’m more prone to clots. I wear fitted compression stockings on every flight, ensure I stay hydrated and on international flights give myself a shot of Lovenox. I also ensure I’m exercising multiple times a week and not sitting for long periods during the day at the office. 

 

From what I learned from my doctor and othe resources, the DVT should not stop you guys from traveling, given the proper planning. Having said that, if the clot has not fully healed, it may be a travel risk. I certainly recommend you speak with your doctor beforehand. As I’m sure you’re aware the risk of DVTs relates to it traveling to your lungs as a Pulmonary Embolism (PE).

 

And now on an even stranger note, I grew up very close to Glenview. I saw a world-renowned hemotologist/vascular surgeon named Dr. Joesph Caprini. I would highly, highly recommend you and your fiance get an appointment with him. He’s out of the Nortshore office at Old Orchard Rd and the highway. 

 

Sending all my best!

Post # 6
Member
6 posts
Newbee
  • Wedding: July 2017

Additionally, I would ask your fiance to keep you in the loop about how he’s feeling while traveling and within a few days after. Is he developing any pain behind his knee on the back of his leg? Is he short of breath at all? (the big one!!) As you’ve already mentioned, leg swelling is also an indicator. I happened to have some pain putting weight on my leg, which some, but not all people experience. 

You guys are a team and you can serve as a great advocate. 

Post # 7
Member
953 posts
Busy bee
  • Wedding: November 2012

@Kindle20:  I too developed a DVT while on BC (Yaz) and was found to have factor V Leiden deficiency. off topic and I’m sorry for thread jacking but did you pursue any compensation from BC manufacturer?

Post # 8
Member
6 posts
Newbee
  • Wedding: July 2017

Mstellah – No, decided not to. I was on Yasmin. I figured that my pre-existing conidition (Factor V) would probably disqualify me from a lawsuit, or at least make it significantly different. Also preferred not to get caught up in legal suits. 

Post # 9
Member
2421 posts
Buzzing bee
  • Wedding: February 2015

@Cluelessbride10:  I also wonder if he’s on thinners for life.  My family has a history of blood clots.  My uncle is on blood thinners for life.  I am going through testing as this summer going through some tests they found that my clotting factor was very high.  (I had some inflammation issues at the time, so we have to wait until the inflammation is back under control before we can run the numbers again to see if it needs further investigation/treatment.)  

My best friend’s husband had thousands of tiny clots in his lungs last year.  His wife looked at the scan and said to the doctor, wow, there’s like a hundred in there.  The doctor looked at her and said ‘No, there are thousands.  He’s lucky none of them are bigger.”  He has a genetic clotting disorder.  He’s had 2 DVTs in his legs.  He’s on injectible thinners again for the next 45 days then back to his regular blood thinners.  He can still fly.  The second DVT showed up after he went off his thinners for genetic testing.  So now he’ll never be allowed to come off them. 

My uncle flies a lot.  Long hauls to China, over to the Czech Republic, for work (like once a month.)  It’s very likely he’ll still be able to travel. 

Post # 12
Member
953 posts
Busy bee
  • Wedding: November 2012

@Kindle20:  gotcha. I am a part of the class action suit (my doctor encouraged me) and my leiden deficiency was not an issue. I have also reached a settlement. If it’s not too late I suggest you look into it. The average settlement is $250,000…..just sayin’

 

Post # 13
Member
6 posts
Newbee
  • Wedding: July 2017

@mstellah Whoa. You’re settling for around $250k? Can you PM me the attorney you used? And additional details on the process…

 

I suppose it’s probably wise for me to re-think that at such a denomination. 

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