(Closed) Anyone have a breast cancer gene mutation? (BRCA – 2)

posted 7 years ago in Wellness
Post # 3
Member
2496 posts
Buzzing bee
  • Wedding: January 1991

Oh wow thanks for the info!  I should look into that.  Is there an recommended age to get tested?

Post # 5
Member
642 posts
Busy bee
  • Wedding: April 2012

@JaneyD:  I admire your courage to get tested! I had breast cancer, but tested negative for the genes, I only tested once I was diagnosed, my family history had so few cases that there was only a 17% chance of it being genetic. I was diagnosed at 33, stage three and ended up with a double mastectomy with a lat flap reconstruction on my radiation side, but you probably won’t need to do that if you choose to reconstruct. I didn’t need any additional tissue on my right side, since there was no radiation and reconstruction was immediate. I also currently take tamoxifen. In the end I loved the mastectomy, and when I was first diagnosed that was my biggest fear. I thought I would never be the same. I don’t love the tamoxifen, but I guess it is worth it. If there is anything I can specifically answer for you, let me know. Again, I think you are very brave for getting the test and I think your course of action is smart.

Post # 6
Member
2496 posts
Buzzing bee
  • Wedding: January 1991

@JaneyD: Thank you for that information!  My great-grandfather died of breast cancer, actually.  To my knowledge no one else in our family has had it, but it’s certainly still possible. 

I am really glad your uncle went and got tested too.  While the pink ribbon campaign is awesome, I do think men with breast cancer tend to get overlooked or not advocated for as much as they should be.

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