Anyone have celiac disease or experience with it?

posted 3 years ago in Wellness
Post # 3
Member
1355 posts
Bumble bee
  • Wedding: October 2013 - Vine Street Church

I have celiac disease. If you want to be able to have a medical diagnosis to use for tax and insurance issues, get tested via blood test and/or biopsy to get a formal diagnosis while you’re still eating gluten, as your intestines will begin to fix themselves if you don’t eat gluten. If you don’t care about that, then just go gluten free and see what happens. I haven’t eaten gluten in seven years and my intestines couldn’t be happier, lol.

Post # 4
Member
437 posts
Helper bee
  • Wedding: June 2014

I would get an upper endoscopy with small bowel biopsy & a blood panel specifically for Celiac. This has to be done as pp said, while you are still eating gluten. I was diagnosed through the blood test. I wouldn’t go gluten free until you know what is going on for sure, because then your body will adjust and you will never know! 

Post # 6
Member
437 posts
Helper bee
  • Wedding: June 2014

Definitely better to be safe than sorry as you said. And if you are having stomach issues, wouldn’t you rather rule things out than not know and always deal with it? No reason to be embarrased 🙂 Going gluten free has been the best thing for my digestive system! 

Post # 7
Member
1662 posts
Bumble bee
  • Wedding: October 2013

Yes, get tested for it! Celiac disease is more than an allergy- it’s actually an autoimmune disorder. You definitely want to know if you have that, or maybe it’s some kind of intolerance.

If it’s not that, I would research fatty livers to see what else you might be able to do. Tell your doctor what the gastroenterologist said too, the more information they have, the better to help you. If the tests come back negative, you could also try cutting out common intolerances like lactose. Cutting out lactose worked for me when I was having gastrointestinal type distress, but lactose intolerance runs in my family so that was a safe bet.

(I don’t have celiac disease. I’m a chef, so I have to about food related disorders and allergies etc. interesting stuff.)

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