Anyone on here had a loved one with MULTIPLE MYELOMA???????

posted 3 years ago in Emotional
Post # 2
Member
180 posts
Blushing bee
  • Wedding: September 2015 - Beach

Hi sunelake27.

 

I work in hematological cancers (mostly leukemia), but I have coworkers who work in MM and have leared a bit from them. From what I know, your loved one is in for a long journey and there will be times where they are very sick. There is no “magic bullet” cure, though, fortunately, there have been many breakthroughs in MM in recent years, and individuals with the illness can live a very long time with it.

It is very important that the person protects themself from illness and when they have low blood counts, they should wear a mask and stay away from sick people. Having low blood cell counts increases a person’s chances of getting an infection, and without a proper immune system, they cannot fight it off like you and I.

This site might be helpful if you are looking for a community of people who share similar experiences. Also, your local hospital will likely have social workers available for emotional support, which some patients find helpful. 

http://myeloma.org/Main.action 

 

Good luck and best wishes in your journey!

Post # 3
Member
207 posts
Helper bee
  • Wedding: June 2014

I don’t have a love one diagnosed, but I will say treatment depends on the stage as well as other health factors. The Luekemia and Lymphoma Society also offers support for mm patients, http://www.lls.org . People that I have spoken to with this type of cancer generally have chemo maintenance regularly. Sometimes once a month. Cancer.org also has info, and you can type multiple myeloma in the search to find related topics. Hope this helps.

Post # 4
Member
760 posts
Busy bee
  • Wedding: June 2014 - Gold Hill Gardens

Yes, my dad was diagnosed with multiple myeloma and amyloidosis during our 6 month engagement. It’s been a roller coaster (my mom had a single lung transplant in January 2013), and my fiancé and I had been talking about getting engaged before that. Currently, my dad is on a steroid and on a two weeks on, one week off treatment with chemo. He seems to be responding well, and will be here for our wedding in 10 days. It’s a scary diagnosis, OP, I hope your loved one responds well to the treatment!

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