Post # 1
How bad is it for you? When do you get the pain? For how long ?
i generally get the pain within about 24 hours of getting my period & it lasts for a couple of hours, I take some strong painkillers which generally knock me out. This is the time my bowels go a little crazy ( sorry, tmi).
my doc prescribed some magic pills that I was so hopeful for but they didn’t work. In fact, it was worse because I held off taking painkillers in hope that the prescribed meds would work. doc told me to wait 3 months before we review .
I’m worried that endo will affect me on my wedding day ( if course that is when I’m due) but I had a thought … What if I had surgery to clear it all up in early dec- that would hopefully eliminate the pain for the wedding & I’ll be ‘clean’ so thatwe could ttc in feb during our honeymoon increasing our chances . Is this crazy? Worth it?
Post # 3
@Nic01: I have stage IV endo. Ive found the best thing for pain is acupuncture/herbs. I would usually go 2 times a month but leading up to my wedding I went weekly so I would feel at my very best. Have you had surgery before? I would do it sooner than december. I wouldn’t want to be recovering a couple weeks before the wedding because you will be so busy. I always feel my very best after I healed from surgery. Does you doctor think you need surgery?
One other thing that helps if endo only bugs you at your period is trying evening primrose oil. Thats a great supplement for PMS and helped my cramps too.
One other thing is trying a gluten free dairy free diet. This is extremely hard for me to do but I am back at trying it again. It has HUGE benefits for endo girls and almost eliminates pain for people. Also if you are going ot be trying to conceive it is best for that too.
Post # 4
@mrs.stormylove: thanks for your reply. How do you know what stage you have? Was that through surgery? How often do you have pain? Does the acupuncture releive the pain or is it more of a ‘precaution’?
I am gluten intolerent. So already doing that. Thanks for the tip on primrose oil. What exactly do you do with it though?
I’ve only had 1 appointment with Doc & she was hopeful that the magic pills would have helped. But they didn’t. I only get the pain when I get my period but it is INTENSE. I don’t want to sound crazy by suggesting surgery becuase of my wedding. But it’s really important to me that I am NOT in that pain on that day. Up until a couple of months ago, ithought that what i went through is normal, now i feel like i have some sort of control.
We also really want to ttc early next year & i figure that by ‘cleaning me out’ late this year it may help our chances next year. But maybe I’ve going to extremes here…
Post # 5
@Nic01: the only way you can be diagnosed with endo and what stage is through an laparoscopy. That’s how I diagnosed. What is the name of the “magic pills?” I would 100% try acupuncture it relieves pain very well but it’s not cheap unless your insurance covers it which a lot don’t. The evening primrose oil comes in gel pill form. You just take a couple a day. If you decide to try acupuncture make sure you find one who specializes in women’s health issues and fertility. also, google how to make castor oil packs. I heard that helps with pain during your period .