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I haven't, but I'm sending good thoughts your way. I can't imagine how hard that must be.
My father had a bone marrow transplant from one of his brothers a few years ago. He had multiple myeloma which is a blood and bone cancer so that was the best treatment for him. It is a very difficult thing, and I definitely feel for what you are going through. Like any other treatment/surgery it will take time for her body to heel. Stay positive and us bees are here for you.
Thanks Miss Cheeky, if you don't mind it would be helpful to hear more about your experience...maybe I could PM you? My mom has MDS (bone marrow disease) caused by treatment for her Non hodgkins lymphoma.
How is your dad doing today?
No problem. My father was diagnosed with Multiple Myeloma about 6 years ago, which is a cancer of bone marrow. My dad went through some chemo, which kind of killed a lot of white blood cells. The bone marrow transplant was the way to get his levels back to normal so he could get better. First they took some of his healthy blood cells and filtered them I guess, then transplanted them back. Eventually he got a bone marrow transplant from my uncle. I'm not going to lie it was a long road, and it took a lot of time for him to get his immune system back to normal. My dad went into complete remission and has been healthy since. He still has to have certain maintenance to make sure it doesn't come back, but for right now he is doing great! I really believe that if you have a positive attitude mind can overcome the physical. I don't really know much about your mom's disease, but it sounds similar. Just keep your head up and always focus on the positive. Since my dad has his transplant, technology has come a long way and it's even better than it was before.
I am an Onclolgy nurse and work at a pretty big cancer center. I see patient's everyday that have gone through transplants. It is a very difficult thing to go through. If you ever need someone to talk to or have questions feel free to ask:)
Miss Cheeky, my mother had (has) multiple myeloma too. She is in remission following 2 stem cell transplants. I can't say going through it was easy, but I can say it was worth it. My mother had one incredibly rough year, but now she is very active, travels all over the world, sees her grandkids. I agree that a positive attitude is a huge help in going through something like this.
@mrskessler - thank you! I will def. take you up on that.
@Mrscakegal - were they both allo? your mom is a real trooper to go through that twice.
@MrsCheeky - sounds like our parents have similar paths with different cancers. an auto and than an allo. so happy to hear your dad is in complete remission - that is great!! any hints on how you helped him get through it? watching my mom go through the auto was the most painful thing ever, did you find the auto and allo were similar in terms of difficulty?
I did a bone marrow transplant with my sister back in October. She was diagnosed with AML last April. My mother and I were her only matches, and they ended up picking me. Here is my journey that I went through with it. The last week of September I did what seemed like a million blood tests to make sure I did not have any infections, was not preggers, and god knows what else. I had to do a cheset x-ray, and donate unit of blood. They keep that blood so incase after surgery I would be losing a lot they would give me back my own instead of going into the blood bank. Fast foward two weeks into October and it was transplant day. I had one last once over by the doctor the day before and had to fast after 11 that night. The transplant itself took 3 hours. I couldn't do steps or lay on my back for roughly 2 weeks. I know I had hard lumps in my back a few weeks after surgery still. So with all that said I know what you are going through. The BMT is defintely a process on the body, but as with everything time heals. I'm not sure what hospital that she is going to, but I had my procedure done at John Hopkins in Baltimore and they were a great team of doctors.
I really don't have many hints or anything, it was definitely hard on me because I was at the end of high school at the time. I think the hardest thing I had to learn at that point was understanding of what he was going through. His hormones were all out of wack from the different treatments, and I didn't really understand too much why. It was really hard because at times when he was really sick it almost seemed like he was a different person. I would say just to be understanding of all the changes that are happening as a result of her treatment, and try and stay positive throughout. I tried to stay with him and see him as much as I could and I think having family around him helped keep his spirits up too. I wish you and your mom the best of luck and I pray for a speedy recovery!
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My mom is going to have an allo BMT following an auto BMT 3 years ago....I was just wondering if anyone on this board has ever had a loved one go through this? I haven't found a support group for friends and families yet, so figured I would try WB .....