Post # 1
I’d love to connect (here or via PM) with other brides with chronic illnesses. How my illness will play into the wedding day has been on my mind constantly – in fact, even before we got engaged. I don’t want to stress too much (and actually make it worse) but I can’t help but think “what if…”
For background, I have both endometriosis and adenomyosis. I’m used to pain, that’s not a big deal. Because some of my endo sits around my stomach and top of my bowel, it can cause nausea, bowel cramping, overactive bowel, etc. There really isn’t anything I can take ahead of time to ward it off (besides some immodium, which I honestly probably will do) – eating properly and drinking lots of water is really my best bet.
Is anyone else out there dealing with any type of chronic illness? Are you worried about how it will effect your wedding day? Or your honeymoon?
Post # 3
I have endo as well and it causes the same reactions as you stated above. I also have hashimoto’s which causes additional anxieties.
With that said, I was lucky to not get AF around the time of my wedding but I took all precautions when it came to the big day. I took an immodium in the morning and one later that afternoon just to be safe. I don’t think I needed it because I was so focused on everything else going on – but I was very worried about it beforehand and thought about it way too much. People are really right when they say that the day-of, all worries go away.
Post # 4
I have lupus. Depending on how I am doing come wedding time, I might try to do a round of prednisone the week of the wedding in order to keep pain/joint swelling down.
Post # 5
@katebydesign I’m glad that you managed just fine! I take continuous birth control, so I’ll be scheduling my period pretty carefully, to avoid the wedding and the honeymoon. I’m more worried about the bowel stuff and the major bloats. I guess spanx should cover the bloating, or at least I hope?
@ErinC6 – we’re wedding weekend twins! (mine is the 5th) I hope you have good luck 🙂 Are you worried, or just thinking ahead to be smart?
Post # 6
I had two minor strokes last year, and I’m still recovering. My main fear is that I’ll be really tired during the wedding week, but I’m hopeful that with rest I’ll be fine. Positive thinking always helps!
Post # 7
not sure if you count IBS, but I have it and I took a metric shit ton of anti-diarrhea pills. i didn’t poop for four days, and it was perfect.
Post # 8
@chercee: I have chronic kidney stones as well as IBS and endometriosis. I was scared to death i was going to wake up on the day of my wedding not being able too pee, throwing up and being in pain that I’d have to be rushed to the ER. Luckily, ALL of these waited to rear their ugly heads until after the honeymoon. The second day we were home I had to spend a night in the hospital due to sever kidney stones, kidney infection as well as being on my period.
However, I was in the middle of getting my hair done and although I guzzled pepto bismol and took some aciphex, I just had the nervous craps up until about an hour before I was to walk down the aisle. But then I couldnt poop for about a week and it was painful.
Post # 9
I have Crohn’s, fibro, interstitial cystitis, chronic migraines and panic/anxiety disorder.
I was so nervous that I’d have issues on my wedding day. But luckily, everything went off without a hitch. I made sure to take good care of myself in the months leading up to the wedding to keep my Crohns under control. I always have prednisone on hand in case I start to flare.
I have prescription painkillers for bad fibro days. I made sure to have them with me in case I woke up the morning of feeling achy. Same with my anxiety and migraine rescue medications. Just knowing it was there was enough to keep my symptoms at bay.
For the honeymoon, I traveled with all of my meds, even the as needed ones. I’ve been chronically ill for 10 years, so I’ve learned how to cope even when I’m under stress.
Post # 10
I have Hashimoto’s and Celiacs – the Celiacs is usually not an issue – I plan to be 100 x’s more diligent about my food, especially the month of. My hashi’s I AM worried about – its been a turbulent year and I’ve had a lot of lows.. I plan on meeting with my endocrinologist the month of so we can do blood work, and maybe get an anti-anxiety prescription to help keep my anxiety and chronic inflammation down..
Ugh.. Chronic diseases suck space monkey ballz, AmIRight!?
Post # 11
Solidarity, fellow sicklets! 🙂
I have Multiple Sclerosis, with Hashimoto’s secondary to the MS (apparently very common)
I don’t have much of a game plan…just trying not to get too stressed out over the plans and hoping for the best. Sending love and support to you all.
Sometimes it’s nice to have someone understand without pity.
Post # 12
@lilcafe: Hello Month Twin!
Those damned Autoimmune disease DO like piggyback – My BFF has MS and watching her go through the time where she has “flare ups” scares the heck out of me. I am glad for you that you have your condition properly managed.
Last year I had some brain imaging done because I went through a period where my migraines were super intense and more frequent than normal. My left arm would go numb and one of them was so bad an disorienting that I literally blacked out… When I came to 4 hours later I thought I had suffered a stroke.. It was super scary because I knew something was terribly wrong when it was happening and I tried to call FI before I passed out – I remember him not answering his phone and being unable to leave a voicemail or to try calling again. Thank GOD I hadn’t suffered a stroke and I was so relieved when the results came back – not only did I not suffer a stroke but my neurologist didn’t encounter any Lesions on my brain (which I was secretly afraid he would find but never admitted to until writing this down right now.)
MS is so scary and I Thank God frequently that I haven’t developed it… Another one of these conditions that like to mix in with the party is RA – that’s another one that I am afraid of since very frequently I have started to experience RA type symptoms..
When I am not down and out I work out and am very active and have a ton of activities and hobbies that I like to do. I have a successful career and am an accomplished athlete.. But these days both my job and social life suffer as I get really worn down easily and my mental capacity as well as my capacity for managing stress has greatly been reduced. I used to run in races and now I can’t even train for them, much less compete. I still work out, but I work out way differently than I used to, simply because my endurance is no longer there and if I overdo it I pay the price for days on days. I swear I am not a hypochondriac – but writing this down and actually reading this makes me second guess who this girl is… certainly I AM NOT THE ONE who has all these health issues, right? It’s a scary day indeed when I sometimes look in the mirror and don’t recognize the sickly weak and pale person who more and more frequently is staring back at me..
Post # 13
Yeah I have epilepsy and was actually diagnosed 3 weeks before the wedding. That was difficult. I knew I had seizures so it wasn’t a big shock really and the fear of having one on our wedding day petrified me. The thought of walking down the aisle than just dropping and going into a huge tonic clonic seizure scared the heck out of me and was seriously worrying me any time I thought about walking down the aisle. I even told my uncle who walked me down to hold on to me tight just in case.
I also have celiacs and lactose intollerance but with the wedding week I didn’t watch what I ate at all, I didn’t have time to so my stomach was all over the place the days leading up to the wedding. I made sure to use the bathroom before changing into my dress and at the reception I ate very little to be sure I didn’t have to make a trip to the bathroom in my very large dress. Heck I didn’t even pee at the wedding and reception! Although while waiting to walk down the aisle as my MOH was walking out the urge to pee hit me hard. I told our planner and she was about to stop the music so I could run and pee but I sucked it up and everything went well.
There may be some hiccups but the day will be beautiful and wonderful. None of the fears of what could happen made it any better. Worrying about it isn’t going to stop it from happening, just do what you can in the morning before getting the dress on and going to the ceremony. Just be prepared and let the day take over. You’ll see once everything gets going your fears will be gone.
Post # 14
I have interstital cystitis and migraines. I’ve also got some sort of problem with my hormones that’s causing me to have hypothyroid symptoms and extremely irregular periods, but the doctors haven’t quite gotten it nailed down yet.
Migraines don’t worry me for the wedding, I can always tell they’re coming because I get aura, and I have good meds to take to knock them out. IC does concern me because I have a lot of urgency with it. I’m planning my whole wedding ensemble (dress, underwear, stockings) in order to be able to pee at a moment’s notice if necessary. So no poofy dress, my spanx will be the kind with the flap, and I’ll wear thigh high stockings or skip them all together.
Peeing on my wedding dress because it too too long to get everything undone would be the WORST thing I could imagine. D:
@MrsPaulsBabyBallerina: Hello fellow IC sufferer! Haha 🙂
Post # 15
@carrotstick: Hi! So few people know about IC. How are you keeping yours under control? I tried the diet and it didn’t make any difference. I take aloe Vera capsules twice a day and that keeps it under control. The sides effects from Elmeron were too much for me.
Post # 16
As much as I’m sad for each of my fellow sicklets (love that term, totally stealing it), I’m glad to not be alone.
@JemmyGee Nervous craps scare me! My gut can get out of whack like that from anxiety, so I’m basically planning to carb up, take immodium well in advance, and skip the dates/prunes/hemp hearts that I usually adore. I do NOT want to deal with any bowel stuff!! Ugh!
I’m worried about pain, too, but hopefully if I’m diligent about maintaining my endo diet and my exericse, it should be pretty good. I also hope there’s no issue on the honeymoon, but I will say my FH is an absolute dream about my illness, and if I need to have some downtime, he won’t be upset.
I know, deep down, that some things just can’t be controlled…Mostly I’m good about just going with whatever happens, but with the endo and related nonsense, I really just want these couple of weeks (wedding + honeymoon) to actually go my way, for once. After 15 years of kowtowing to my body, I want it to just do what I want!!