Calling all endometriosis sufferers

posted 2 years ago in TTC
Post # 2
Member
67 posts
Worker bee
  • Wedding: September 2011

Sorry, I’m not much help.  However, I did want to comment so I can follow the thread.  I have been having the same problem ever since I stopped my birth control around the time of ovulation and it lasts about a week or so.  Terrible pain, my doctor has been out of town so I was trying to be patient and hold off.  Of course, the pain goes away by the time he gets back… I’m curious to hear what the doctor recommends for you.  I feel your pain!  Not to mention, kind of hard to pregnant when I’m in too much pain to have sex!

Post # 4
Member
191 posts
Blushing bee
  • Wedding: March 2015

mrsalexander:  I had endometriosis and had to get a D&C to correct it, which worked and I conceived! 

I had many of your symptoms but never suffered from the nausea or vomiting.

Sex was quite painful though 

Post # 5
Member
600 posts
Busy bee
  • Wedding: March 2014 - Narrawallee reserve/beach & Mollymook golf club

I had:

– Severe period cramps all through my abdominal cavity

-Painful sex

-intense lower back pain

-heavy periods

That’s it. But I can say this as a comparison – Having already had one son and labouring drug-free, my pain from endometriosis towards the end was much harder to get through than labour. I ended up getting a laproscopy to laser the growths off and it seems to have cured me. However, I ended up with PCOS as well.

Post # 6
Member
93 posts
Worker bee
  • Wedding: June 2017

I have endo. The pain for me is constant, everyday, made worse by long periods of standing, after lots of sex and during ovulation. The symptoms aren’t the same for everyone tho. My pain starts around my abdomen and as it gets worse it moves around my back and down my legs. I don’t have a lot of advice in afraid because I’m still in early stages of diagnosis and trying to manage my own pain. I’m not TTC so i take two contraceptive pills a day which apparently shrinks the endo. It has helped the pain but not stopped it. I also take cocodamol at night, but it just knocks me out. The only advice I can give is to push for tests. I have been undiagnosed for seven years and apparently that’s normal. They might say you have Pelvic inflammatory disease or IBS (i had all of those suggested). Get an ultra sound, although it doesn’t always show endo mine showed fluid which is a good sign, you can also have an MRI but the final conclusive way is a laparoscopy. But make sure its and endo specialist because mine was missed by a general surgeon. Also search endo diet… I’m still sceptical about this tho. Hope i have been of some help and you get sorted soon, not a nice place to be in sorry x

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