Post # 1
So I am beyond scared and I’m getting married in less than 3 months. Two years ago I went through some medical issues (I was 29). For about a year and a half I had weird symptoms. My lip and other body parts would swell up. Then I started having this “out of it” feeling that kept me from driving long distances. Then I started having muscle twitching, arms and legs felt like they were asleep. Thumb hurt, etc… I evenutally saw a neurologist who ran an MRI of my brian and spine and did evoked potentials. Despite my aunt having MS and my grandma having another neurological issue, he said everything checked out out. The syptoms went away and I went on with my life.
Enter in two years later (last week). I’m having the same “out of it feeling”, muscle twitching, pins and needles feeling, feeling like my legs aren’t attatched to my body, etc. I’m FREAKING out that its MS. I know its a very difficult disease to diagnose. This is such horrible timing, I have my 330 person wedding in 3 months. All that keeps going through my mind is “how could this be anythign else” and what happens when I can’t walk and i Have to quit my job, how will we afford medication. I do have alot of stress in my life (work, grad school, wedding planning) so maybe thats whats causing this weird symptoms or maybe thats what set them off.
I’m scared, really scared. See neurologist on Tuesday and now i’m suppose to be finishing my invites this weekend and i’m not even excited about the wedding.
Post # 3
@fishwoman: I am not a doctor but I will say, I have an autoimmune disorder as well as complex migraines (mimic stroke symptoms). Stress WILL cause effects. Yoga, get a massage, do something to get your mind and body off of it.
In my experience, bad things may happen but there are ALWAYS ways of coping. Whether it be God or serendipitous events or fate or… chance. Whatever your cup of tea, there is always a solution or a way to manage it. So don’t waste your time worrying about the extremes of being wheel-chair bound, collapsing, etc.
Some of that stress could trigger a panic attack – which will make you feel worse.
Good luck. 🙂 Keep your faith up, and breathe.
Post # 4
I have a friend who has MS. I’m sure she would be willing to talk to you via email or facebook. She was diagnosed in her early 20s.
I’m sorry you are going through this but I promise you there are ways to cope.
Lots of prayers for you.
Post # 5
I am sorry you are feeling this way. It is only natural to be stressed when you have symptoms and a potentially scary diagnosis.
The one piece of advice I have is to try to avoid seeking medical advice from complete strangers on the internet. There are many credible sources for medical information online but there are also many wackadoodles who can post anything they want.
I would suggest you stay off the computer, or at least focus on non- medical issues, and wait until you see your neurologist on Tuesday.
My thoughts will be with you.
Post # 6
I work in the physical therapy field and I have seen a lot of patient’s with MS. It is very hard to diagnos, but the only key symptom of MS you listed was the numbness and tingling. I know it’s scary to not know what’s wrong, but I can tell you that stress will flair up just about anything, so just try to stay calm and please dont self-diagnos! It really may not be what you think, so don’t start worrying about 20 years down the road when you’re not sure what you have. Rely on your doctors and I always recommend second opionions.
Post # 7
@Mrs. Lighthouse: I definately have more twitching than the tingling or numbness. I wish I knew what the heck else it could be. Thank you for the words of encouragement.
Post # 8
Stress, caffeine, exercise, lack of sleep, diet deficiency, overreactive thyroid, and medication side effects are just some causes of twitching that are non-neurological related!
Post # 9
I’m nearly a Dr. Bee, and will just tell you this. There are many things than can cause the myriad of symptoms you are experiencing. And it may take a while to figure it out. In the meantime take good care of yourself and think positively!
My thoughts will be with you for your appointment tomorrow.
Post # 10
One of my very best friends has MS. I have been with him from the very first episode that lead to his diagnosis. Numbness/tingling is a common symptom, but the other things you listed don’t say MS to me. I’d be more inclined to say that it’s stress induced, but I am a stranger on the internet. If you are really concerned the only way to get real answers is to go to a doctor.
MS is difficult to diagnose, but a neurologist should be able to give you some answers.
Take a deep breath. You’ll be in my thoughts tomorrow. Good luck!
Post # 11
I just wanted to chime in to tell you I know what you’re going through! I had the full neurological work-up and everything came back fine. Turns out all my absolutely FREAKY symptoms (I’m talking about waking up in the middle of the night with my tongue and jaw swollen up and numb) were stress/anxiety related. It’s gone now.
If you have relatives with MS you have more experience than I do, but I know that nowadays most people with MS do NOT wind up in wheelchairs or bed bound/unable to walk! There are so many amazing medicines and treatments developed just in the last couple decades that have made this a more livable condition. It’s pretty exciting all the research going on and how close we’re getting to real progress. So even if it is the worst case scenario, there is tons of hope!!
Post # 12
THANK YOU ALL. Really. I went to the neurologist today. I have kept a very detailed list of my symptoms for the last few years. He is going to run an MRI again and evoked potentials, but also is looking into epilepsy, so I am going to have a few tests to rule that out too. I would LOVE for this to all turn out to be just stress. I can deal with that through therapy and meds, diet, exercise, etc. Maybe this is my body telling myself to sloooooowwwww down.
Please keep me in your prayers. I should know more by March 10th. I just want to fully enjoy the last 3 months of my 18 month engagement.
Post # 14
I have two auto immune diseases and can tell you stress is a huge factor as to whether they flare up or not.
I wish you the best and will pray for you and look for your updated posts. Try and relax (I know, right?!!) but you’ll have some answers soon.
Post # 15
I’ve experienced the same numbness and weakness on my left side for years. Many scans, tests, etc. still show nothing. One doctor made the assumption that it was MS too….not the case. Trust me weddings will bring on stress even when you think you have it all together.
I also suffer from migraines. I agree to be calm and maybe take some time to get a massage, de-stress and don’t try to diagnose yourself. Be proactive but CALM.
Ask your physician questions and take care of yourself.
My FI says I overreact to any illness.
Post # 16
I have a Dr.’s appt on the 18th of March for some of the same things you’re listing here. Tingling, numbness, vibrations….but I also have ANXIETY and stress and so many life changes. I think stress does crazy crazy things to us and the best thing to do is relax if you can. Good luck!