Celiac disease…..ugh…feeling like my life is upside down

posted 3 years ago in Wellness
Post # 2
1843 posts
Buzzing bee

alysee:  Hi! It’s never easy at the beginning. But it in my case it was something that now that I look back, forced me to eat in a more healthy way, which Is a big positive coming out of something negative.

My biggest friend is Pamela’s pancake and baking mix. I bake the most awesome cakes that taste so good and texture is so great people have no idea they are gluten free :). 

Most pastas are pretty decent and only a few breads are good :-/. PM me with questions if you need anytime . You’ll get used to it and in time, you won’t miss gluten containing stuff for the most part! 


Post # 3
11379 posts
Sugar Beekeeper
  • Wedding: April 2012

alysee:  hang in there.  it’s going to take some time to get used to your new menu.  i am not celiac but both my mother and brother are.  i have prepared many gluten-free meals and they are just as good and fulfilling as any other.   my mother came to visit me for 12 days last year and so we had gf meals every night.  it was fine.  i just focused on the basics: meat, potato and vegetable. 

in fact, my entire wedding dinner was gf to accommodate this allergy.  use cornstarch instead of flour for making gravies and sauces.  use fresh herbs for flavouring.  once you start cooking this way, you will realize how much is really available for you.

also, they are making more and more gf items now and are readily available for you at the grocery store.

Post # 4
2364 posts
Buzzing bee
  • Wedding: November 2014


alysee:  I thought I had celiac’s but 2 tests came back negative.  Still, I have an intolerance and treat it as full blown celiac’s.  I found the best thing is to focus on how much stuff you CAN have rather than what you CAN’T.  If you think about it, a protein + anything potato, rice or corn based can be an easy meal plan to stick to once you get the hang of it.

Also, I’m cheating on my FI with my crockpot.  I make a gluten free soup, chili or meal on the weekend and have it to eat all week.  It makes life SO MUCH EASIER.

The one hurdle I’ve yet to overcome is eating out, which will be even harder for you.  Like I said, I’m intolerant and my reactions vary.  The good thing is, GF is becoming a lifestyle and the disease is getting a lot of attention.  Many restaurants cater to it now. 

Oh, and if you’re a beer drinker like I was, HARD CIDER IS AMAZING!!  I’ve really taken to the stuff 🙂

Best of luck…

Post # 5
173 posts
Blushing bee
  • Wedding: March 2014

I was just diagnosed in January and had a hard time at first too. Then I went to the grocery store and found all these awesome substitutes (actually gained a few pounds, haha)! We bought some cup4cup flour and have made our own pasta and cookies and they really aren’t too different. I also tried some GF sourdough, but it truely cannot substitute, unfortunately. I find myself with a ton of different rices in the pantry so that helps a lot! 

Post # 6
10748 posts
Sugar Beekeeper
  • Wedding: February 2014

I never bothered to get the full round of testing, but I am definitely intolerant. I was sick for a good long time before my doctor suggested I cut out gluten. It was a total shock because I’d never even heard of gluten until then, but man what a change. It was hard to eat gluten-free at first when I was getting used to it, but I was so relieved to feel normal again. It’s been 4 years now and there have been so many improvents to gluten free food since. Pasta is easy, because you can’t even tell it’s not normal pasta. Udi’s is my favorite bread/buns brand. VH makes gluten free soy sauce and marinades. Many restaurants are starting to have decent menus for us as well. Good luck! I usually just eat rice/potatoes, meats and vegetables for dinner and that’s normal food anyway that didn’t require any substitutions. That makes it easier. 

Post # 7
3756 posts
Honey bee
  • Wedding: April 2014

Blogs are what got me through it!! There are SO MANY awesome gluten free blogs out there. It is hard at first but it gets so much easier as time goes on and you’ll feel so much better. I use Better Batter in place of all purpose flour and it’s great. Udi’s is my go to bread but there are many others out there. A lot of restaurants now offer gluten free menus, many with gf pasta/pizza crust/buns/bread. You can recreate just about anything that you normally eat, just google “gluten free insert favorite food here” and you’ll get plenty of options.

Post # 8
225 posts
Helper bee
  • Wedding: April 2014

There is a lot more information on celiac disease than there was 5 years ago!  I have crohn’s and I was lost for a few years when I found out.  I have a few friends with celiac and they are able to function just fine.  <br /><br />You’ll be able to manage this easily with just a little bit of time, practice, and patience!

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