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One of my best friends had it. She was also allergic to dairy and soy which made hers worse though. I still remember having to watch her get a shot every day in high school but now her doctor says her allergies have all but went away. Her doctor told her she's lucky that the shots that she had for years seemed to all but eliminate her allergy. I don't know if she ever had hives or itching but I do know that she had extreme stomach issues and came close to death before they diagnosed it. I don't know if any of this information is helpful but I thought I would share.
My friend has it and felt 100% better once it was diagnosed. It's tough to learn everything you can and can't eat with it, but it's definitely do-able. She never had hives or itching as symptoms, either.
@mandb122: Yikes for your friend! It's crazy how allergies can appear and disappear. So strange. Thankfully whatever is going on with me doesn't appear to be near as serious, mostly just uncomfortable.
@abbie017: My doctor said that skin issues are one of the many side effects. Sigh.
I do! I have celiac... I had all of the above symptoms. I didnt go through with all of the testing my doctor said cut out all gluten etc... and well see what happends within a month I was feeling so much better and its been a year coming up and I feel 100% better. If you have any questions feel free to message me!
I haven't been officially tested for it but I suspect that I have a gluten intolerance. I've adopted a completely free gluten free diet and I already feel SO much better! There have been a few threads around recently with recipes, etc. that are GF...I know the information helped me a lot! It may be worth searching :)
My husband is a big carb lover and it's been a little bit of an adjustment but I've been doing a lot of experimenting with recipes and there are lots of things that both of us can eat and enjoy!
@FutureMrsChaney: Thank you! I am obviously not happy that you know how I feel, but it's nice to have someone relate to what I am going through. The rest of the week I am keeping a "food diary" of what I eat, and they having the testing and trying the elimination diet. Do you mind me asking how it has affected your dining? What you eat now vs. what you ate before? How long did it take your symptoms to go away? Did you get hives as well? If you aren't comfortable answering in the thread, feel free to PM me. Thank you again!
@Running Elley: Thank you! I browsed through a few, but can't find any with food tips. I am still searching! Thank you for sharing! Off to search! :-) Do you have any website/blog recommendations, if you read them?
I will add too that while my friend's mom adjusted recipes (her mom and sister also had it and I believe still do, or at least her mom does), they also were able to get things online. They used to have the most amazing coffee cake made from a mix they found online that they could all eat and I enjoyed it too. I think it was actually very rare that I got my own food when I'd be over there instead of just eating what they were. I don't know how much the stuff online is but that's worth checking out too.
The worst for her (possibly because of her additional allergies too) was eating out. She'd have to order steaks without any marinade or seasoning, some things she couldn't eat because they were made in pans used for things she couldn't eat, and at some restaurants all she could eat was more or less a salad (sometimes without dressing).
This isn't going to answer questions about symptoms but it's just a little more information on how things were for her.
@Lindsay12.31.2010: I've just kind of been adapting things myself but I found quite a few really good gluten free cookie recipes (so that there's something sweet for me during the holidays :)) on Pinterest actually. I just searched gluten free recipes and there are tons of really great ones! One of my favorite cookie ones is this one for peanut butter cookies because it doesn't call for any weird GF flour substitutes...http://www.loveveggiesandyoga.com/2011/07/flourless-peanut-butter-cookies.html.
I also found just at the normal store a gluten free flour substitute by King Arthur flour I believe and I've just been using it in place of regular flour and so far everything has turned out really well!
As for regular food rice has definitely become a carb staple. Just make sure that you always read labels because most rice mixes like the rice-a-roni ones contain gluten. When we go out to eat I usually google the restaurant and their gluten free options beforehand and most places have really done a good job at accomodating the GF community.
I saw an improvement of my symptoms within a week and making the change was 100% worth it!
@mandb122: Thank you again! How terrible for her - no gluten, soy, or dairy. That would be such a horrible adjustment.
@Running Elley: I will agree I've noticed restaurants have made improvements. The time I'm referring to was like seven years ago when it wasn't as commonly recognized so there were pretty much no options for her besides adjusting something on the menu or eating very minimally.
@mandb122: Oh yeah the changes have definitely been recent...within the past few years. I had a friend in high school with the same limitations that your friend had and she had the same issues...it was horrible for her! I'm SO thankful that things have changed.
@Lindsay12.31.2010: Anytime :) I'm also open to any questions over PM or anything as they come up. I've done a lot of research and I love doing almost all of our cooking myself at home so I have a lot of information and tons of recipes!
@Lindsay12.31.2010: For the most part its pretty simple to eat out as long as you ask to speak the manager and ask for the gluten free menu and even look up the restaurant your going to ahead of time. I used to be a huge carbaholic! But there are substitutes to everything. I personally prefer the corn pasta to the regular now! Rice is also one of my carb staples! The best place to eat out at is PF changs if you have one in your area. The bread arent that great but when your in the mood for a sandwich Udi's is the best for their regular bread and bagels. It took about a month for everything to get better. I had really bad irritation in my ears of all places lol but it has since calmed down. If you have any other questions feel free to ask!
@FutureMrsChaney: Thank you so much for your tips! I have another appointment Thursday, so I may PM you after that, if that's okay.
@Lindsay12.31.2010: Hey Lindsay! Sorry to hear that you haven't been feeling well lately. I'm hopeful that you don't have Celiac's, as it requires such a restrictive diet. However, if you do let me know. I have a great friend/co-worker who has had it for a few years and she can give you some great recommendations as to where to shop and dine, etc. in the area. Crossing fingers for you!
FMIL has celiac's and I am pretty sure FI does as well. I'm here if you have any questions or need suggestions as well. I always cook gluten free.
@MissPumpkinPie: Thank you! I will probably take you up on that! I have my allergy test tomorrow, followed by an elimination diet, so I will probably PM you (if that's okay!)
We have a great organic grocery store here in town that is new, so I will probably go ask them some questions too. They have a dietician on staff, so maybe she can answer some other questions for me, if needed.
I have a gluten intolerance, so I've been GF for over a year now! While it was a pain at first, I actually find that I eat healthier (no temptation from bagels, cupcakes in the office, cookies, pies, pizza, etc.). I eat a lot of fruits and veggies, chicken, and gluten-free pasta. It was hard to adjust to the gluten free grains at first, but once you find the right brands and learn how to prepare it, you'll be fine. I have to have my GF bread toasted otherwise there's a gritty texture I don't like. GF pasta is good, but I do notice a taste difference if I just eat pasta with butter or olive oil. I always add marinara and then can't tell the difference.
It's actually getting easier to eat out now too, as many restaurants have a GF menu, or will have GF substitutions available upon request.
Check out Schar's brand of GF products. They sell it at our local grocery store here in Chicago, but I think it's becoming much more popular since it came to the US from Europe. Their website lists their products and even has some recipes: http://www.schar.com/us/
Another great brand is Udi's: http://udisglutenfree.com/
Good luck! Feel free to PM me if you have any questions or need tips!
@Lindsay12.31.2010: Please PM me at any time you need to.
You ladies are all so awesome. I will let you know what I find out tomorrow, and probably PM most of you with questions :-)
I have gluten intolerance that comes and goes. I was gluten-free for about 2 years and finally was able to secure an appointment for a colonoscopy...which wasn't fun, but at least I was able to find out that I don't have celiac, which was a relief. Remember that having a food intolerance isn't the same has having an actual allergy.
After not having too many issues for the past couple of years, I have noticed that if I eat too much gluten, my symptoms (pretty much the same as you...but instead of hives, I get excema on my hands) return...so, I'm doing days off gluten and days where I have a bit. I may, after Christmas, decide to go completely gluten-free.
Food can be tricky, but after a while, checking labels and not eating certain things definitely becomes easier. I found that the most difficult thing for me was not being able to have a lot of salad dressings and giving up beer. There are gluten-free products for almost anything (including beer!), but they are expensive, so be prepared for that.
I have a Gluten-free cookbook, so if you need recipes, just PM me. My family continues to make the gluten free nanaimo bars at Christmas because they are SO much better then the ones made with gluten. :) There are definitely success stories.
Are you giving up other things during the elimination diet? The first one I did asked you to give up gluten, sugar, fruit and something else (sorry!). Apparently, an intolerance to fruit sugars can have the same symptoms as celiac and gluten intolerance. Sugar was a pain in the ass to give up for 2 weeks (I don't eat that much of it regularly, but I was a raging BITCH on the elimination diet).
I think that it's great that your doctor is taking this seriously because there is still a lot of misinformation about food issues.
I hope you feel better soon! Feel free to PM if you need help/support/recipes.
Here here!
I don't have celiac, but I do have an intolerance to gluten, so I guess I'm lucky that way.
I notice that you say you have an allergy test done, and then elimination diet.... I would say that before eliminating anything from your diet, make sure you also get blood tests. Celiac is not diagnosed as an allergy, it is either through blood tests or colonoscopy. If you cut gluten out of your diet before getting those tests, then the tests would be invalid because you need gluten in your system to get good results.
The reason I say this is because with my previous doctor, I had to insist for him to test me, he didn't believe I had a problem. He only sent me for allergy tests; which came out negative.
I cut out gluten, because I felt a lot better without it. Then I switched doctors when I moved, and the new one wanted me tested as soon as she heard about my symptoms (itchy patches, mostly on my head; migraines, extreme weight gain). She sent me for the real tests, but before I could go, I had to eat two portions of gluten everyday for three weeks. It was awful.
It was still important that I go, because if you have celiac, even traces of gluten (e.g., kissing your so after he drank beer - which has gluten) will destroy follicles in your intestine, causing digestive problems that you already know. But even if you were not to have these symptoms with such small amounts, my doctor explained that cross-contamination leads to higher risks of depression, infertility, certain types of cancer, etc, so it really needs to be tested thouroughly.
This is why I say I'm lucky - my real test came back negative, so I don't have to watch out for cross contamination in the same way, but gluten is still out of my diet for good and has been for years now.
You will find it very hard at first; but you get used to it after a while, and it is true that GF food is easier to find now than it was a few years back, plus it tastes much better as well.
@mommytobee: My GP referred me to an allergist, who (well, his secretary, in the brief phone conversation I had with her) mentioned that tomorrow could include a physical exam, scratch test, and a blood test. Or any combination of the above. So I am not sure what that will include, but we will see!
@Lindsay12.31.2010: What time is your appointment?
Hope all goes well for you.
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Just wondering if any bees suffer from either one. After not feeling well for the past few weeks (stomach issues, fatigue, and the most unfortunate - hives and constant itching) my doctor has ordered me a round of food allergy tests. His suspicion is celiac/gluten intolerance.
I don't want to do too much research until after the tests, but I was curious as to whether any bees, etc. suffer from something similiar?