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celiac testing sucks!

posted 2 years ago in Wellness
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    1.
    Member
    1,864 posts
    Buzzing bee
    egb    January 2010  

    So I have to go for tests to determine if I am celiac or if it's just an intolerence to gluten. Meanwhile, I have to EAT gluten twice a day for three weeks in order to ensure that the tests are accurate. So now, no matter how many Advil I take, I have bad headaches and stomach aches ALL.DAY.LONG!  uuughhh!

     
    2.
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    1,006 posts
    Bumble bee
    MyraG    August 14, 2010  

    I"m sorry egb. I have a friend with Celiac's so I can understand your frustration. I hope they diagnose it quickly so you don't have to suffer through it anymore :-(

     
    3.
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    Helper bee
    froggy518    06/04/11  

    Yikes! My mom and brother are gluten intolerant (no Celiac's, thought), but I'm fairly certain they didn't have to consume gluten for their tests.

     
    4.
    Member
    1,864 posts
    Buzzing bee
    egb    January 2010  

    Well because gluten destroys your intestine if you're celiac and a gluten-free diet restores it, as new, I need to have gluten in order to see if there's damage and I've been gluten free for years now... the doc still wants to test for celiac because of the other effects it could have if I'm not careful enough. with celiac even traces can be harmful, and even though I'm gluten free, well... let's say gluten almost-free.. I'd have to be more careful... Anyway that sucks!

    On the good side, I get to eat food (and enjoy while I'm tasting) I haven't had in years!! Help me make a list of goodies! :)

    So far, I've had:

    -bagel
    -hamburger
    -shawarma
    -mini-wheats
    -granola bar

    What else am I missing on, I have 34 more meals to go!!

     
    5.
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    189 posts
    Blushing bee
    charmedlife    May 22, 2010   South Texas

    I feel your pain. I was diagnosed last summer & it seemed like it took forever to fianlly get the biopsy done so I could stop eating gluten. It stinks to need to eat something that you know is making you sick. I think I've cheated twice since then & had a few accidental sick days.

    If I was eating bread it would be a Fudruckers hamburger bun or a kolache. or a stack of flour tortillas.

     
    6.
    Member
    1,997 posts
    Buzzing bee
    bloodgo1    May 14, 2010   Royal Oak

    aw i am so sorry :( my best friend was diagnosed with celiac when we were living together - so i saw first hand all of the ups and downs and the pain and crazy mood swings she had to go through. she got tested, was diagnosed, and was able to know how to take care of herself afterward. it was really hard for her to start eating gluten free, but after awhile everything worked out for her. it sucks now, but it will be so worth it in the end when you can know exactly how to be healthy! *hugs*

     
    7.
    Member
    1,864 posts
    Buzzing bee
    egb    January 2010  

    One week down, two more to go...
    I have not been feeling good all week; therefore not working out as I usually am and as I should be, preparing for my 10k race.

    So depressed, I put on 4 pounds in this one week.... because yeah, gluten does that to me as well as the headaches and stomach pain..

    uuggh!

     
    8.
    Member
    652 posts
    Busy bee
    emilymuchnikoff      

    Are you feeling better? What were your results?

    FI doesn't have Celiac's but has a gluten intolerance. Since we have removed almost all gluten (he can handle small amounts occasionally) from our diet all of his IBS symptoms have gone & both of us feel better. We follow a primal diet; its not a "lose weight" diet, but a way to be healthier. I love www.marksdailyapple.com for nutrition tips, recipes and lots of ideas. The forums there are really supportive too (just like the hive)!

    BONUS: limiting carbs helps with weight loss so we are looking a bit better too! 

     
    9.
    Member
    1,864 posts
    Buzzing bee
    egb    January 2010  

    Well, after three weeks, I had put on about 7 pounds. I had been pretty much gluten free for the past three years so I did not feel good while eating it. Also, the foods I thought I missed much: not that good anyway! ;)

    I am back to my normal diet, but not quite back to my normal weight yet. Still working on it. I didn't get my results back yet, but I'm pretty confident that I have an intolerence, not celiacs.

    During the three weeks, my head and my stomach hurt a lot. I also had difficulty eating more than twice a day, I was feeling too full from the meals I had to have (I would have cereal or western sandwich for breakfast, a sandwich for lunch and then couldn't eat until the day after).

    Thanks for enquiring emilymuchnikoff! And thanks for the link also, I'll definitely look into it!

     

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