Post # 1
I’m calling a GI specialist in the morning to make an appointment because I think I have Celiac or maybe a gluten tolerance.
I’ve been feeling pretty sick and “off” for the past few months, but it’s really gotten bad in the last month.
I have constant stomach pain after eating, cramping and nausea. I will sometimes have to curl up in a ball because the pain is so bad. I get headaches every day, am extremely exhausted and have sores in my mouth. I’m also bloated all the time.
Finally after talking to a friend who was recently diagnosed, I came to the conclusion that how I feel is NOT normal, and that it’s time for me to see a doctor! I think deep down, I’ve known this is something I have, and I’ve known for awhile but I just haven’t been ready to face it because I know how much my lifestyle is going to change and I’m worried because I’ll have to give up all my favorite foods :/
If you’ve been diagnosed, what kinds of symptoms did you have? Did you have a hard time adjusting to a new diet?
Post # 3
@mrs_g.mck: I’m not celiac but my SO is and, while it takes some adjusting to at first, it’s not as bad as it sounds…honest.
You may have to really push to get tested, and they can’t tell you definitively until you have a biopsy done. If that’s an issue, just try to follow a GF diet and see if that helps. Be aware that just because it’s not an item that would appear to have wheat in it, many prepared sauces and conditments have whey in them which can be bad. Make sure if you eat out to check with your server if they have a GF menu, or ask EXACTLY what is in your choice….better to be safe than sorry.
Be diligent, eat as well as you can, and hopefully you’ll start to feel better soon.
Post # 4
@mrs_g.mck: Oh, and make sure to have them run a blood panel…often the worst part of being celiac is that your body is unable to absorb nutirents and vitamins so you may be anemic as well. Nothing that an iron supplement and good multi vitamin won’t fix.
Post # 5
@mrs_g.mck: did you get tested for celiacs? i’m in the same boat and wonder how it turned out for you…
Post # 6
I thought there was no test for celiacs? I thought it was a matter of removing gluten and going from there to determine if you have it?
Maybe I’m wrong though.
OP: I hope you can get an answer 🙁 It sounds awful for you to be going through this!! Luckily, if you are gluten-intolerant, there are lots of products now to accomdate your needs!
Post # 7
- Wedding: August 2015 - Backyard Forest
I never went through the test. I am into different energy healing modalities and was told that I needed to cut gluten… so I did.
I immediately felt SO. MUCH. BETTER. I rarely get stomach aches, I am much more focused, little headaches, I am a different person. The other night I went to a restaurant and I’m pretty sure I accidentally ate gluten because I was in SO MUCH pain and so bloated. I don’t miss it at all. Once you get past the 2 week mark, you stop having cravings. There are so many great alternatives out there now – I only miss a few things.
I went to my doctor to see if that’s the source of it… and she told me the testing is really not fun, so if I feel better to stop eating it, because most people shouldn’t eat it.
I recommend reading the book Wheat Belly, I didn’t read the whole thing, but in the beginning it talks a lot about why this has been happening so much – and it’s because the structure of wheat has changed SO MUCH that many people can’t process it anymore.
I’d definitely be concerned about the mouth sores though – you definitely should see a doctor or nutritionist!