Chronic bees… anyone feel resentment towards work for making you worse?

posted 3 years ago in Wellness
Post # 3
Hostess
24457 posts
Honey Beekeeper
  • Wedding: June 2009

I’m so sorry and know how you feel.  I have a few chronic conditions as well (endometriosis, chronic pain in multiple parts of my body including headaches) and I know how hard it can be to have to still go to work when you feel horrible.  All last week I felt like I wasn’t physically in my body because my head was so bad but I can’t just take off because I don’t have people that do all the things that I can do.

Post # 5
Member
2076 posts
Buzzing bee
  • Wedding: July 2012

Oofff…isn’t fibro just the worst?  I so understand what you’re talking about. I have no advice but I just wanted to let you know I can commiserate with you.  I’ve got Crohn’s and interstitial cystitis, in addition to the fibro. I resent the hell out of my body for failing me and my job for making it harder for my body to recover from flares!

I’m starting back to work part time (3 days a week, maybe 4) after being out of disability for 6 months because of my various issues. I’m worried I’m going to flare again but trying to manage those fears without sending myself into a spiral of panic attacks and flares. Being a sickie sucks some seriously big, hairy balls!

Post # 6
Member
2675 posts
Sugar bee
  • Wedding: May 2014 - Madison, WI

I go through this too. I found myself lately wishing I could take like a month of work to just recover physically from the exhaustion I feel so often. I haven’t been formally diagnosed with fibro yet, but my doctors tell me it’s only a matter of time especially if I don’t cake care of myself. My Dad has it and struggles the same way, in fact everyone on his side of the family has it which is why they think I will develop it eventually. When they test those “pressure points” on me I’m only short one or two from them wanting to further evaluate me for fribro.

It sucks to feel tired, in pain, and being easily exhausted. People don’t always understand. I try my best to work out, eat well, and rest when I can…this weekend I just had no energy. Aso frustrating when you finally get time to yourself and all you can do is sleep. I came down with a cold for two weeks and I’m now finally feeling better today. 

I’m the only one in my position at work. If I’m not there people are scrambling to cover for me which is not easy. I also do lab work so I can’t work from home, ever. I’m the only molecular-microbiologist on staff. I’ve trained some other staff (chemists) to do my essential work when I’m gone but they also get swamped that sometimes I go in even when I know I should call in sick. 

Post # 8
Member
4698 posts
Honey bee
  • Wedding: August 2013

@goingtotherooftopoflove:  Constantly (feeling resentment.) Especially after a break when I’ve managed to get myself in a really good place and I get back to work and have three times the usual workload and crash.

Post # 9
Hostess
24457 posts
Honey Beekeeper
  • Wedding: June 2009

@goingtotherooftopoflove:  I know it’s so tough.  My husband tries to understand but I go from one thing to another and it interferes with me doing a lot.

@MrsPaulsBabyBallerina:  IC is the worst.  It makes so much suck but at least the Elmiron helps me a lot as long as I follow my schedule.

It sucks how I get home at the end of the day or the whole weekend and just can’t make myself do anything because I feel so bad.

Post # 11
Member
1355 posts
Bumble bee
  • Wedding: October 2013 - Vine Street Church

I can’t look at it from a physical pain standpoint, but it does make me upset that my workplace doesn’t have more respect for mental illness. I have bipolar disorder and every now and then have a really horrible time and need to take a breather, but unless you’re a mother with a sick kid, you get no respect at all in my workplace. It doesn’t matter if I’m on the verge of sobbing, hearing voices, having uncontrollable physical tics and needing to get home where it’s quiet and safe — I am nothing and I need to continue doing my work regardless.

Post # 13
Member
2076 posts
Buzzing bee
  • Wedding: July 2012

@MrsSaltWaterTaffy:  that’s great the Elmiron helps you. I had weekly bladder irrigation treatments for 10 weeks.  I tried the freeze dried aloe vera supplements first since I heard Elmiron can cause seruoious GI upset.  I wanted to avoid poking the GI bear if at all possible and *knock wood* the aloe vera is working so far. But I do have the Elmiron as a backup.  

Post # 15
Member
1574 posts
Bumble bee
  • Wedding: May 2013

I had to switch jobs b/c of my health. Some days I get a little sad that I will never be able to work and go to school (well, unless I want to be in teh hospital at least twice a semester). I had to switch to a job that was less stress, more flexible in my schedule, and less hours. I also make less money, which is a huge downfall, but worth it to me. At my last job, i was full time (and I still had a part time writing job, freelance work, and my volunteer job) and was hospitalized twice this Spring. They were also really mean about it. I told my boss about 10 hours before i was due in at work that I was in the ER and they were likely going to keep me and I was read the riot act. I get that if I’m sick it’s inconvenient for *everyone* but I don’t do it on purpose, and there were always people who wanted more hours.

I have more say in my schedule now, so I have to plan extra recovery time into my schedule which is lousy. There have been more weekends than I’d like to count where I just had to stay home and recover.

Post # 16
Member
4215 posts
Honey bee
  • Wedding: August 2013

Yes. My work totally flares me up and is starting new things. I am just not picking up right now. :  Rest, de stress and some excercise helps sometimes. But I hear you, it’s frustrating. 

Leave a comment


Sent weekly. You may unsubscribe at any time.

Find Amazing Vendors