Post # 1
Any bees here with Celiac Disease?
I’ve been having a horrible time lately after eating and last night took the cake. I had a salad and 2 slices of FI’s peperoni and cheese bread. About 15-20 minutes after eating my stomach swelled up and felt really tight. Explaining my plight to one of my friends, they responded “are you pregnant?” No…but took a test just to be sure…negative. Well, my stomach troubles continued all through the evening and into this morning. When I got to work, I had a small slice of banana bread and here I am again.
Although I’m sure I could diagnose myself with just about anything on WebMD, there were a few Celiac symptoms that stood out….tooth discoloration. Ever since I was little I have had brown stains on my two front teeth…annoying, my parents always said they thought it was from fluorosis. Another symptom was migraines. When I was in 4th grade I was diagnosed with migraines. As I got older, the migraines developed into migraines with aura, and although I went about a year without migraines, this year they have come back with a vengance. My migraines are quite debilitating with vision loss and vomiting, not to mention the headache that follows.
Those two symptoms, coupled with my stomach troubles has me wondering…could this be celiacs? *Edit: I’ve also had a recent bout with canker sores in my mouth, another thing that showed up online.
Any input would be wonderful!
Post # 3
I don’t have Celiac, but I DO have a gluten intolerance (a less severe form of the disease). From what you are describing, you very well could have Celic or some form of gluten intolerance. Your options to find out are:
1. Schedule a celiac/gluten sensitivity test with your doctor today. You need to have gluten in your system for the antibodies to show in your bloodstream (i.e. if you stop eating gluten now and take the test in a few days, you could get a false negative).
2. Stop eating any and all kinds of gluten (bread, pasta, pizza, crackers, beer, and ANYTHING with wheat, flour, barley, or rye in it). Take a few days on this diet and see if you feel any better.
I don’t have Celiac and my symptoms for the intolerance are very different than most, so it took a long time before I was diagnosed correctly. I get ulcers (in my mouth and throat), suffer from headaches, extreme fatigue, and irritability when I eat gluten. Words cannot describe how amazing I felt once I realized what was making me feel crappy and I started eating right.
Post # 4
I would consult a doctor. FMIL has celiac’s and I’m quite certain that FI does as well. I would avoid gluten for now until you have your answers. Best of luck and keep us updated.
Post # 5
I have an update of sorts! FI and I went out for lunch and I was telling him about my stomach troubles some more. He listened but seemed skeptical when I told him that when I ate, my stomach seriously grows and looks like I’m pregnant. So, lo and behold, a few minutes in to lunch, my stomach started its new normal thing and I had to stop eating. I stood up to show him the difference and all he could muster was a “holy s***.” So, we called FFIL, who is a doctor and he described everything to him, even adding in “Dad, I’ve never seen anything like this, it’s gross!”
That made me laugh. Luckily, we’re going out to dinner tonight with FMIL and FFIL and they will get a chance to see the anomoly that has become my stomach at meal times in person. FFIL said from what FI told him on the phone, it sounds like I might have IBS, although Celiac is a contender as well. So, we’re going to discuss this tonight and he gave me a few suggestions in the mean time. It’s been about 2 hours since I ate and my stomach is just about back to its normal size. This is crazy, but at least we are on the track to coming up with a solution!
Thank both of you ladies for your advice! @Mrs.Fireworks, how was the change to the G-free diet? and @MissPumpkinPie, are you having your FI tested?
Post # 6
Could it also be a sensitivity to Dairy? I have an unofficial diagnosis (my doctor refused to test me and I refuse to go back on gluten for the full test) along with a bunch of other food issues. Do you have more than normal Bowel movements (I use to go 5 times a day) I know TMI but its quite important of a symptom. Good luck with everything if its just gluten its not to horrible to re adjust now a days.
Post # 7
I would try to get to a doctor who specializes in this. Its so hard, because even if a doctor says okay yes what you are eating is causing these symptoms, it takes more time to figure out exactly what it is. The items you mentioned all have gluten, dairy, eggs in them which are all common allergy triggers and could cause those symptoms. It definitly sounds like some sort of food caused issue, but you may end up needing a nutritoinist or elimination diet to really nail down what it is exactly that causes you problems.
Post # 8
ETA: sorry it’s so big..i wanted you to be able to read it.
Hi I have celiac and thought you might like to see this diagram for symtoms. If you do have celiac or a gluten intollerance you do have to maintain your current diet so they can get the right diagnosis with a blood test and upper endoscopy.
Post # 9
i would suggest going to the doctor right away to get tested. my mother and brother were both diagnosed with celiac many years ago when it was not as commonly known.
if you do find out that you are celiac or have a low gluten tolerance, don’t be too worried about “what do i eat?”. i have had many parties, special holiday dinners, etc where my family can eat 95% of everything served. in fact, my entire wedding dinner was gluten-free and it was fantastic.
Post # 10
Celiac and an upset tummy aren’t necessarily related. The only way you’ll know for sure is to get tested. DON’T stop eating gluten though – the doctor won’t be able to diagnose you properly unless you continue eating gluten because he won’t be able to see how your body reacts to it. If you stop eating gluten, any reaction which could be diagnosed might disappear.
Post # 11
If you do find you are gluten intolerant or have celiac’s, check out glutenfreefix.com. She’s got some amazing recipes on there! Her carrot cake is amazing and better then the best gluten filled carrot cake I’ve had before. 🙂