(Closed) Diagnosed with PCOS today :(

posted 7 years ago in Wellness
Post # 3
Member
5263 posts
Bee Keeper
  • Wedding: June 2012

I don’t have it, so can’t be of much help, but just wanted to say that I hope now that you know what it is, you can start managing it and things look up for you. Nothing productive to add, this is more of a support post. Good luck and I’m sorry you have to go through this!

Post # 4
Member
1562 posts
Bumble bee
  • Wedding: June 2010

i don’t have pcos but i do have insulin resistance and am on metformin for it. my suggestions – research low-carb diets (seriously the BEST way to eat when you have pcos)…lowcarbfriends.com is  a great site! also – for fertility – even if NOT ttc yet – seriously get the book “Taking Charge of your fertility”. it’ll teach you things they’d NEVER teach in school! and it’s not just for people ttc – but it teaches you about your body and learning to listen/pay attention to your body in general. ๐Ÿ™‚

Post # 5
Member
438 posts
Helper bee
  • Wedding: September 2012

I’ve had pcos since I was 12 (12 years ago).  Right now I’m taking metformin, spironolactone (sp?) and lyvoxal (sp?) I hate to say this because I have a feeling an argument could pop up, but, don’t take BC for PCOS because its pretty much putting a band aid on the problem. Also, you may have to change the way you eat, lots of low carb stuff and be sure to exercise regularly if you don’t already.

I’ve been dealing with it for such a long time and when I was 12/13 I was a “test monkey” for the combination of medications I’m on now.  If you have questions or anything PM me. ๐Ÿ™‚

PCOS really isn’t all that bad if you treat it correctly.

Post # 6
Member
2392 posts
Buzzing bee
  • Wedding: September 2011

PCOS is a pretty wide diagnosis, which means 1) yeah you can definitely have it without having some of the symptoms and 2) sometimes they tell you that when they don’t know what else is wrong.

I didn’t get my period for a year after going off the pill.  In fact, I think I only got it once or twice in the couple of years before I went back on the pill.  I was told it was due to PCOS based on a blood test and the fact that I occasionally get hairs on my chin (isolated, easy to pluck ones).  Yet I am lucky enough to have no trouble maintaing a healthy weight on a relatively high-carb diet (my body actually feels and runs WAY better on carbs than protein which if being carb-sensitive is a marker means I may have been misdiagnosed… I don’t really know and never explored it).

Basically, all they told me to do was go back on the pill and tweeze.  Which, um, thanks… basically in my case it was a pretty useless diagnosis.

What is it you’re trying to manage?  Basically all the advice I’ve seen for managing PCOS has been dealing with the insulin resistance/abdominal fat, with irregular periods, or with trying to conceive.  I think that’s really where you want to hone in your follow up questions to the doctor – what is there you’re trying to manage and how can you best go about it.

Post # 8
Member
505 posts
Busy bee
  • Wedding: January 2012

I have pcos too.  I was diagnosed a few years ago.  Check out http://www.soulcysters.com/ it has a lot of great information and you can read other peoples stories and questions.  My doctor recommended it to me. 

Because you are not ovulating every month your lining will build up. You mentioned that you would like NOT to go back on birth control pill so you can always have everything scraped out (depends on insurance too), if not then you can spot for days/weeks/months at a time until it’s all shed. This is def. something that you want to talk to your doctor too.  When I was first diagnosed with it my doctor gave me an option of doing this (she said it was kind of painful but you get it over and done with) or take some pills that will cause everything to shed on it’s own. I chose the pills but eventually regretted it and wished I had done the scraping.

But don’t be afraid to ask your doctor anything!  PCOS is more common than people think.  

Post # 10
Member
9057 posts
Buzzing Beekeeper
  • Wedding: June 2010

I’m on BC for now for mine.  I wasn’t getting my period at all for almost a year, and my doctor was concerned about uterine lining building up.  The way it was explained to me is that we need to have it every once in a while or the lining can become “disorganized” which can be a uterine cancer precursor.  If you’re having your period it may not be an issue there.

I’m a bit overweight (sudden weight gain was one of the first things that tipped me off, you know… besides the moustache) but haven’t gained anything since being diagnosed.  I just know that I have to eat better and work out more than other people just to maintain.

Post # 11
Member
1562 posts
Bumble bee
  • Wedding: June 2010

@JoesWifey:

absolutely check out http://www.lowcarbriends.com – you’ll find TONS of support – and also learn that you CAN eat sweets on a low-carb diet! just learn to bake with erythritol or xylitol (sugar substitutes) and also – pasta IS possible. i LOVE “dreamfields” pasta.

I also use almond flour for EVERYTHING from breads to pancakes!

dreamfields is a really good option – but warning – once you are on a low-carb diet, you probably should eat it sparingly as it affects everyone differently (as far as blood sugar apikes) and it’s nice to HAVE that option out there!

http://www26.netrition.com/dreamfields_pasta_page.html

http://www26.netrition.com/bobs_red_mill_almond_flour_page.html

and here’s a GREAT site to show you just how much sweet stuff IS possible on a low-carb diet!

http://healthyindulgences.blogspot.com/

http://blog.yourlighterside.com/

http://lowcarbdiets.about.com

 

 

Post # 13
Member
1562 posts
Bumble bee
  • Wedding: June 2010

@JoesWifey: some do – some don’t…you really just have to try for yourself to see which ones you like/can tolerate. there’s also stevia as well (my fave) but a VERY little goes a LONG way (like i’m talking 1/8 of a tsp!)

Post # 14
Member
202 posts
Helper bee
  • Wedding: November 2010

I have PCOS too among other things. A low carb diet and P90X (or substitute your own exercise program) helped me lose 20 pounds and bring my ovulation date from who knows when (never regular) to cycle day 16. So I think ultimately diet and exercise is the winning formula, though I realize everyone’s labs and symptoms are different. I don’t have a lot of facial hair but I am blonde and have very fine hair anyway, so I don’t know if that is why. I also never had acne or anything like some PCOS’ers. I have rosacea and seborrheic dermatitis, so I have very dry skin. I have a lot of other autoimmune issues including Hashimoto’s thyroiditis, and I have had multiple miscarriages to find all this out. PCOS’ers seem to have lots of autoimmune issues and there is some debate over whether this is coincidence or related somehow. I second the soulcysters website. Lots of great info over there. Now I obviously ovulate, so I have that going for me. I can get pregnant, but can’t seem to stay that way. My sister has PCOS and she never ovulates. She is always on the pill or taking Provera to start her period. SHe had to do multiple IUI’s to get pregnant. Fortunately, that worked for her and she has a 3 year old son and just had twins 3 weeks ago. So there is hope for the infertility aspect of it. She suffered from the acne and excess hair with hers. My younger sister also has it, but she is very thin. She has acne, facial hair, endometriosis and had a pituitary tumor and many other issues. I don’t know why/how all of us have this and have been so affected by it. It is something that I research a lot, but there aren’t really any real, definitive answers but lots of theories.  It sucks, but I think it can be controlled. Finding the right doctor seems to make a world of difference. So many regular OB/GYN’s don’t know much about it or how to treat it which is a shame since this has become more and more prevalent. Do your research, watch your diet and definitely exercise, and find yourself an RE that understands your dx and will explain all your labs to you and what they mean.  Good luck! Sorry this was so long!

Post # 15
Member
5978 posts
Bee Keeper

@JoesWifey: I also don’t have PCOS, but wanted to lend my support. At least now when you’re going to start TTC, you know the drill and you are going to be prepared for everything. Definitely ask your doctors as many questions as you can, and when you’re going to start TTC, keep an open mind!

Sorry I can’t be much more help than that. Just wanted to let you know there are bees here to talk to :o)

Post # 16
Member
202 posts
Helper bee
  • Wedding: November 2010

@JoesWifey: I am a Splenda junkie! I know you are sensitive to it and it was definitely an acquired taste for me. I tried Stevia packets, and I can’t take it. I tried Agave nectar and can take that in some things. I avoid aspartame like the plague and while Splenda has had some negative press regarding the chemical process I find that it is the only thing I like that doesn’t affect my blood sugar at all. The Splenda Diet Cokes are my best friend! Buy all pasta, bread, and cereal in whole grain only and learn to love it and limit it and you will be fine! Avoiding sugar is unfortunately a necessary evil so limit sweets for sure. I do eat some in moderation now that I have lost weight and it doesn’t seem to affect me too much but once I get on low carb, if I eat bad carbs, the cravings are very overwhelming. So I find it best not to even cheat anymore.

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