Post # 1
So basically let’s start at the beginning. I have an autoimmune disease that I was diagnosed with in August. It is myasthenia gravis which causes my muscles to fatigue and also the muscles of my eyes, causing droopy eyelids and double vision. I had surgery for it etc.
Well last week i started to have double vision very badly to the point of getting dizzy and not being able to work. This is the first time I personally have ever had this symtom. I went to my neurologist on thursday and to treat it they want to do a five day outpatient treatment in the hospital which they said would start this week. Their exact words were we will call you tonight (thursday) or friday to confirm the time. We heard nothing. So then we called the hospital to see if I had been scheduled and they said they hadn’t recieved anything about it. So monday I called the office again (which you can NEVER SPEAK TO A PERSON. there is only an answering service and you have to wait for them to call you back). Five hours and three phone calls later, they called back and said that it wasn’t approved by my insurance yet and that is what they are waitng on.
So that was yesterday. Today I was like well let’s call insurance to see what the hold up is. Guess what? They have NO information about this at all – which means the office never submitted it to insurance at all! So i’ve been waiting for NOTHING meanwhile my vision is getting worse, I’m wearing an eye patch, can’t drive and have had to call of work all week long… first because I was supposed to be in the hospital for treatment all week.
I am so mad and just needed to vent. Their biggest problem is they don’t answer their phones and you can never get ahold of anyone until at their convenience they call you back hours after you leave like three messages for them. It may not be a big deal to them that I can’t really see.. but it is huge to me and I don’t want it to keep getting worse.
Anyone have similar experiences of phone tag – with importan issues at hand?
Post # 3
@pinkkathryn: I am firmly against taking cell phones to the bathroom, because it’s unsanitary and a great way to end up with an iPhone in the toilet, but — BUT — I will always take my phone with me if I’m expecting a doctors’ office to call back. And I will answer it whilst urine streams from my body. Because that’s how much I treasure a call back from them!!!
Post # 4
@pinkkathryn: Ugh. I’m sorry you’re dealing with that. My dad has very advanced Chron’s disease which requires a crap ton of appointments, home supply deliveries, and home nurse checks. The thing is, my dad is constantly having to be borderline rude because no one ever has their act together. The actual transplant (he’s on a list for a re-transplant so this is our second time around) team is amazing, but the day in and day out stuff is absurd.
Keep on them. It doesn’t matter if you think you’re annoying them because THIS IS THEIR JOB AND YOU CANT SEE. That’s all their is to it. And if you really feel like you’re not getting good care or something ever doesn’t sit right, request an advocate and also go for a second opinion. Your health is your right and while we’re all taught that doctors are never wrong, that’s just not true. Some are amazeballs who deserve trillions of dollars and a medal, some of them seriously shouldn’t keep their credentials. You and your DH are your biggest supporters.
Good luck. Keep us posted!
Post # 5
@pinkkathryn: Not the same issue, luckily insurance here is different, but I’be been delayed ina seeing a specialist for a serious health issue because of mistakes in communcation.
Post # 6
Thanks for all the comments
I finally got down to business. Insurance said they had no paperwork. My drs office finally admitted they have a paper that my docotr needs to fill out and return to insurance to get approval but he wont be back in office until “friday” so i was like… I have to wait forever? I think they figured it out so I can hopefully get approved before next week and start treatment. The whole thing is so frustrating! they weren’t going to tell me that the hold up was realy on their end.. they were just going to make me wait til it went through insurance like over a week later! sooo frustrrating. I went in in person and didn’t leave til they gave me answers. oyye!
Post # 7
@pinkkathryn: Okay, first of all, props to you for being so chill about this to them. If it were me, I’d have flown off the handle. Your sight is not something to be taken lightly. I recently had an allergic reaction to something in my eye, and within minutes I was home from work and at the doctors getting it checked out. All is good now, but your eyesight is not a joke. Hopefully everything goes to plan from hereon out. 🙂
Post # 8
@tiffanyscanlan: yeah it is definitely important..
I am a little more chill because I know the cause of the problem is muscle weakness in my eyes from an autoimmune disease and it wont cause long term damage or anything. If I didn’t know more I would be freaking out