Endometriosis? YAZ / Yasmin users or post users?

posted 3 years ago in Wellness
Post # 2
Member
663 posts
Busy bee
  • Wedding: September 2014 - Jacksonville Inn

robynrox47:  I also had horrible endometriosis, I had 3 surgeries to remove it. I also tried a few differant birth control pills. The only one I took that helped at all was Mircette, although it didn’t help enough in all honesty. The only thing that helped me long term was Lupron injections. It was a hard decision for me to make at the time, I was only 29. I did 6 months of monthly injections. The side effects waxed and waned for me. Some days they were brutal and some days I felt nothing. My period returned 19 weeks after my last injection. I did not have any issues with my endometriosis again until June of last year, when I was 37. I had many pain free years. I have read and heard all the Lupron horror stories but I had a very positive experiance.

Post # 3
Member
94 posts
Worker bee
  • Wedding: May 2014

I too suffer from endo so I totally symphathize with you. 

I take Loestrogen Fe for Birth Control to keep it “Under control” .. so I am not sure about Yaz. I’ve undergone two surgeries to remove some of the excess tissue… Fortuanatley for me, I have one child and my husband and I have agreed that if we dont have another in about 5 years then I will just get a Hystorectomy. 

My husband is actually in his last year of med school and wants to do OB/GYN to facilitate further research on Endometriosis and prayerfully be apart of the “FIX” in the future. 

 

Best wishes to u and your husband on this Journey! I know exactly what u are going through. 

Post # 4
Member
1850 posts
Buzzing bee
  • Wedding: August 2013 - backyard in the woods

I have severe endo. I’ve had 2 surgeries and have another scheduled in the fall , since I had so much Endo  that my doctor couldn’t get it all during my last surgery. After my first surgery I took Desogen continuously and my Endo pain was lessened for awhile , but my Endo still grew back on it and the pain came back after 6 months or so.

I had another surgery recently to remove what had grown in the last year- I went from Stage1/2 to super severe Endo in a year. I’m actually on Zoladex (similar to Lupron) now to shrink my Endo before my third surgery.  The side effects are not that bad and I hurt less than I have in years. Some mild hot flashes, insomnia here and there. The worst part is I’ve been having moderate migraines, but my doctor gave me some add-back therapy to help with those. Surgery is the best way to stop Endo pain in my opinion.

Post # 6
Member
1850 posts
Buzzing bee
  • Wedding: August 2013 - backyard in the woods

robynrox47:  Not to be rude but I’m curious how she knows this? Even a little Endo can cause issues conceiving due to inflammation and chemicals in the peritoneal fluid and there is no way to know how much Endo you have without surgery. Have you had surgery previously?

If I were you I would probably try the Lupron/Zoladex that your doctor reccommended if you are concerned about the Endo becoming worse in the next 1.5 years before you TTC. Then again I may be biased since mine went from Stage 1/2 to insanely bad in just a year:) I know Zoladex comes in 28 day doses so if the side effects are terrible for you you can always discontinue it and try the continuous BC route. Also, try to avoid foods with a lot of estrogen like soy products, since they will aggravate your Endo and may cause it to grow faster.

That being said once you do TTC I would probably try for awhile before having a laproscopy if the pain is manageable. Many women with Endo have no issues TTC at all (Lucky ducks!). If you don’t have any luck after 6 months then laproscopic excision (not ablation!) increases the chances of conception for many Endo women. Just my thoughts:)

Post # 8
Member
1850 posts
Buzzing bee
  • Wedding: August 2013 - backyard in the woods

Endo isn’t just a disease that affects fertility, it affects quality of life and can cuase serious health issues if its severe and left untreated (though this is uncommon). I would get a second opinion. Just the fact that she can see it on an ultrasound/internal ultrasound means its at least moderately severe. The only way to see Endo on an ultrasound is if it is pulling your organs out of place. Anything pulling your pelvic anatomy out of place can cause damage to your organs and your fertility. I would also want to know if the huge cyst was a benign cyst or an Endometrioma. If it’s fluid filled it may be an Endometrioma.

I would get a second opinion, if only for peace of mind. Your fertility isn’t something you can get back if the doctor is wrong and personally, I wouldn’t want to risk it, but that’s just me. My first doctor had no idea what he was doing and it almost cost me my kidney function, let alone my fertility because he was passive with my treatment (FYI kidney/ureter Endo like I have is super rare, don’t worry, I’m just lucky like that).

Post # 10
Member
1850 posts
Buzzing bee
  • Wedding: August 2013 - backyard in the woods

robynrox47:  That’s crazy. Endometriomas do not go away on their own. They have to be drained or removed. I hate how women with endo get blown off like we’re just whining about our ‘lady pains’. Endo can be an excruciatingly painful disease, thanks very much <br />Mr. Idontthinkitsreallythatbadnowtakeapillandgoaway. My pain tolerance is probably better than yours sir!

With an Endometrioma that big I would be concerned about the weight of it damaging my tubes now, let alone letting it grow for a year and a half. Also, the bigger it gets the more likely you’ll lose eggs if it’s removed (They usually have to cut away a tiny portion of the ovary to remove it, which is why if you’re ever planning on TTC it’s reccommended to just drain it). I’m sorry you’re going through all of this. Endo sucks, big time.  I hope you’re able to figure out where to go from here.

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