- 3 years ago
- Wedding: August 2013 - backyard in the woods
Short verison: I just found out that I’m going to need to take Zoladex for 6 months to supress my Endometriosis before haivng another laproscopy. Does anyone have any experience with this drug? I’ve heard horror stories, and I’d like hear some personal experiences from folks who have taken it. Long version: I was diagnosed with Endometriosis (Stage 1/2)by laproscopy in January 2013 when my pain became so bad I couldn’t walk. I was better until I went of BC pills to TTC in July 2013. Since going off BC my pain had been increasing motnhy, and we had no luck TTC for 12 cycles. I had a laproscopy a few weeks ago to see if the Endo had reoccured, and remove it if it had, reducing my pain again and increasing our chances TTC. I just got back from my 2 week post-surgery doctor’s appointment and found out that my endo has become severe. I now have Stage 3 maybe even 4. It covered my ureter from kidney to bladder, it was all over my uterus, ovaries, tubes, bladder, kidney, and my cul de sac area was full of it. It was basically everywhere. My doc sent in samples from one of my ovaries, my ureter and both uterosacral ligaments, and all 4 came back positive for Endo. Awesome. Apparently my previous surgeon had no idea what he was doing and/or when I went off BC to TTC my Endo went crazy. My doctor removed most of the Endo during surgery (he told my Dh he got 95%), but due to how extensive it was (and the fact that he was doing an excision, so after awhile the bleeding reduces visualization of the smaller endo lesions) he wasn’t able to get it all, especially in on my bowel and in the cul de sac. He thinks my best chance at TTC and being pain free is another surgery. Before having the surgery he wants to supress my Endo down using Zoladex (Lupron) for six months so that he has the best chance at removing it all. This will supress the Endo and thin my uterine lining so he has a better chance at getting all of the rest of it during the next surgery. He wants to cure me, not just get most of it, which is great. The bad part is that I have to wait 6 months to TTC again (I’m 32, my DH is almost 39) and use a drug that basically puts me into menopause during this time, then have ANOTHER surgery. I’ve heard horror stories about the side effects of this drug. He said that he can give me mild estrogen replacement to reduce side effects if I have bad ones, but still- I had really hoped this surgery would be enough. I trust my doctor and the research backs what he says, but I’m sad, and scared of taking this drug. Plus I’m gonna be a raging B for a few months, DH is excited lol. Has anyone used Zoladex before? What was your experience? I’d like to know what to expect for the next 6 months.