Fibro bees… work is REALLY kicking my butt right now :( Any advice?

posted 3 years ago in Wellness
Post # 3
Member
371 posts
Helper bee
  • Wedding: November 2000

Hi there. I don’t have fibro, but I do have MS so I’m sure there’s some overlap in what we’re dealing with. I’ll ask a few questions but do not think I’m asking you to post your personal medical information here. I’m more throwing out a few things for your consideration. (Just a patient myself, not in the medical profession)

1. Have you discussed this with your rheumatologist? (Sorry if I have that wrong. It’s my understanding that they’re ususally the treating speciality for fibromyalgia) Have they put your diagnosis on paper? This may help if you have to bring it up to your employer.

2. Are you currently recieving any treatment, either for the fibro directly (like duloxetine) or symptomatically? I know with MS, there’s actually quite a lot in the arsenal to treat fatigue. It can take a while to hash out the pharmaceutical path that’s best for the individual, but neurologists are generally willing to try things like modafinil or even off-label ritilin. Obviously there’s a lot to consider here. I myself won’t take anything with a possible tolerence/addictive component. 

3. If it becomes an area of stress, (wondering about your status or how you’re percieved at work) I’d personally be up front about it. However, this is a very personal decision. And if you have a HR department or a union rep, you might feel more comfortable clarifying your rights first. It sounds like your job might be one with good potential for making adjustments that suit your needs.

4. You do not just have to suck it up. These stresses and fatigue are real. I augment my disease treatment with regular counselling, and that’s helped quite a lot. Anxiety really just makes everything twice as bad. And we’re not talking the expensive stuff. Freebie from the MS society or students in training. It’s what I can afford, and frankly it’s a priority. Quality of life!

Post # 5
Member
1311 posts
Bumble bee
  • Wedding: January 1994

I live with chronic pain. I can relate to you. I feel exhausted a lot, and things that used to be simple aren’t anymore. I don’t know how I had so much energy in the past! I’m not able to work at the moment. The hope is that I will eventually be able to work part time from home doing computer graphics and editing, but fingers crossed. If you haven’t filed for SSDI yet, I’d highly reccommend getting the ball rolling if you can only work part time. It has been a long 2+ year battle for me that I am still in the midst of. Hugs. 

Post # 6
Member
2731 posts
Sugar bee
  • Wedding: October 2014 - Disney

I have secondary fibro to an autoimmune disorder. Pain management is importantm as pain causes fatigue. If you have a serotonin moderated form of the disease (most fibro is this) depression often comes with it and that has to be controlled too. Has your doctor considered electro physical therapy, or accupuncture for the pain? I only take gabepentin for my fibro issues but its because its due to a primary condition. You maybe a good canidate for something like cymbalta. Muscle relaxants may also help you at night I take them when I’m having numerous issues but I’ve been off for about a year now. Finally pain management is important so if these things dont work a pain reliever maybe a good option. I think celebrex is used in these cases and sometimes tramadol if that fails (Tramadol failed for me due to complex issues with multiple pain factors). I also drink a lot of caffeine and make sure that sleep is a priority. The fibro tends to give me limited issues unless the autoimmune issue (very similair to RA) acts up then the whole poop storm goes to hell and back.

Finally have to been checked for other disorders? RA? MS? Lupus? It is important to make sure you dont have an autoimmune issue on top of the fibro because if you dont control that you cant control the fibro when they come together.

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