Post # 1
Anyone going through a pregnancy with your LO being diagnosed with this or have gone through? I found out at about 20 weeks she had gastro after my quad came back high for SB. How was your pregnancy? When did you deliver? How long was your hospital stay (babies)? Any other stories you want to share would be great
Post # 2
Not a mom, but I’m a NICU nurse. (no medical advice, but an idea of what things might happen.)
Gastroschisis repairs vary based on how big the defect is – sometimes it’s repaired right away, sometimes they have to reduce it slowly before doing surgery and it may take longer. The size (or time it takes before the repair occurs) generally doesn’t affect how long it takes before the baby is able to start eating (and they usually work feeds up slowly) and ultimately go home. I’ve seen babies go home quickly and some stay for nearly a year in the hospital. it’s really very individualized to how each baby does post-op (complications), how long that neo group waits before initiating feeds, and how well the baby tolerates the feeds.
Avery’s Angels is a good place to go for support – it can be incredibly scary to find out about complications. If you are able to, you can try to meet the neonatologists at the NICU prior to delivery and also tour the unit.
My condolences are with you and your family.
Post # 3
I’m a genetic counselor and I’ve had several patients with gastroscisis. As PP said, it’s highly variable based on the size of the abdominal defect. The good news is that gastroscisis is usually not associated with other findings, so you don’t usually have to worry about other issues. And the repairs are usually quite effective.