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Dealing with narcolepsy and pregnancy?

posted 1 year ago in Babies
  •  
    1.
    Member
    335 posts
    Helper bee
    franks.katie    April 23, 2011   Spring, TX (DW in Destin, FL)

    Hi Bees - I'm hoping someone out there has been through this!

    I have narcolepsy but I have been able to maintain a somewhat normal life thanks to Provigil.  My doctor said that I have to get off the medication now, and stay off of it while TTC and pregnancy.  I've been off of it for couple of months now, but it's getting much harder to make it through the day without a sleep attack.

    I was wondering if anyone out there has this condition (or knows someone that has it), and how they dealt with this situation? 

     
    2.
    Member
    812 posts
    Busy bee
    MacFaniam24    July 24, 2010  

    I don't have the same problem, but I do know what it feels like to go off medication you need to be on when TTC. Best of luck to you:)

     
    3.
    Hostess
    2,606 posts
    Sugar bee
    rosychicklet    September 27, 2008   Boston, MA

    I'm not in your position, but here are some links that might be helpful- best of luck!

     

    http://www.talkaboutsleep.com/message-boards/viewtopic.php?p=93273

    http://mytoxinfreebaby.com/blog/?p=1

     
    4.
    Member
    335 posts
    Helper bee
    franks.katie    April 23, 2011   Spring, TX (DW in Destin, FL)

    @rosychicklet:  Wow - thanks for sending that - the 2nd link definitely gives me some more insight into what I can try, as well as hope that I could find a way to get rid of narcolepsy all together. 

     

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