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I really can not even make a guess at how far I will go until I'm in your shoes.
I hope I have the tenacity like you do though!
I'd never heard of this until I went to a LLL meeting where one mom had started this. I was so proud of her and you because it's got to be hard. Honestly, I'd do whatever it takes to make it a year because it is so good for my child(ren).
I think I would definitely try to breastfeed as long as possible, but of course until I'm really in that position its hard to know what i'll do.
@pansyshell: off topic, but I read a blog of a mom that went through an elimination diet with her son while breastfeeding. I'm not sure she had the same situation as you, but she may have some ideas? and shes kind of hilarious. Here's two posts:
http://www.modgblog.com/2011/02/17/boob-verdict-and-also-sg/
http://www.modgblog.com/2011/08/18/hello-again-food-you-dirty-dirty-lady/
They've crossed over the hump now, but she was dealing with for the better half of this year. Good luck, hoping you're able to figure it out soon (for your sanity and diets sake).
Though it had nothing to do with allergies, and I apologize if I am off topic, but I stopped when the anxiety and stress it caused me was negatively impacting my relationship with my baby. I was always dreading feeding him and would end up in tears as I tried to nurse him. For me, I had to realize that while breast milk is good for your baby, being a happy mom is better.
I'd probably just formula-feed, as I don't see anything wrong with it. Breast milk is good for the baby, but you have to look after yourself as well. Kudos for doing this, though! It sounds crazy-hard.
Not sure since we haven't been in the situation but I do have to say I love bf more than I imagined. It's almost like a yoga zen with happy hormones being released and it's good for her. So I probably would go out of my way to continue.
Wow - I would have given up a long time ago if I'd had to give up almost everything and still have no idea what he's reacting to.
Good luck and I hope you get it figured out.
I would switch to formula pretty quickly if my (future) children where having allergies to my breast milk (due to my food consumption). I have zero opposition to formula feeding (me and all of my siblings were formula fed) so I'd feel no qualms with making the switch.
That's so admirable!
I really don't know what I would do. But, I'm inclined to say happy mommy = happy baby. Having a newborn seems pretty stressful without severely restricting my diet. I think I would be too stressed cutting out so much from my diet and would be unhappy...so I would probably just formula feed. But major kudos to you!!!
I quit breastfeeding after 2-ish weeks when I got a really bad case of mastitis and had to be hospitalized for 4 days. In all actuality, I could have continued breastfeeding when I got home, but it was pretty traumatic to be away from my newborn for the whole hospital stay (DD couldn't come visit because of hospital policies). I switched to formula, instead, and it turned out to be the best decision for me and my family. At this point, I'm 99% sure I won't even try breastfeeding with #2; I think we'll just go with formula from the beginning.
I think everyone has a different line when it comes to breastfeeding. It's great that you're willing to go so far to accomodate your son's allergies, pansyshell! Keep up the good work!
@pansyshell: Out of curiosity - does your peds doc have any concerns about continuing to EBF since the doc hasn't been able to figure out what your LO is allergic to? Not sure if there were concerns about the baby getting enough nutrition?
I am currently EBF my 2 month old, but if something like that came up, especially since I'm going back to work in a month, I'd stop cold turkey and switch to formula, since (presumably) you could buy a certain type of formula and be done with it. My sis had twins this year and was supplementing with formula, and once she stopped beating herself up about it she was much happier, and the kids are perfectly healthy and happy. Good luck to you though, it is obviously important to you and I wish you well :)
I just wanted to let you know that my nephew who is 2 now had FPIES and it was really hard for their parents. He seems to have mostly grown out of it by now but unfortunately he also has allergies to dairy, peanuts, nuts, soy, and wheat. He has to eat mostly gluten free stuff and luckily can have just about every fruit, meats, and certain vegetables.
I know his mom found a special (and VERY expensive) Enfamil formula to help when she stopped BF'ing since he can't have cow's milk.
Aside from that, if I wasn't producing, I'd start using formula. If you can't BF you can't BF. At least she gave it a good try.
I've held on to my uncomfrotably large girls for the sole purpose of breast feeding future kids. I plan on having them reduced pretty much the second I'm done nursing my last baby lol. I'm at a HH-J cup now depending on the brand (and unlike most lucky folks, mine seem to keep on growing!) so I'd say there isn't much I wouldn't do to keep breastfeeding.
Sorry. I am just seeing all your replys. Thank you for the support everyone. I'm actually pretty excited as I am going to become a milk donor for the other mama I mentioned in my OP since the milk I have currently saved cannot be used by my DS.
For those that mentioned formula: there are some formula's out there that we could possibly switch to, but he may not be able to tolerate them. Based on the chance that he could be allergic to the specialized formulas it was adviced that if we are able to find a combination of foods that he does not react to to continue breastfeeding at this time.
@TheFutureMcBride: Thank you. Good for her! At first it seems like a lot of work and impossible to do, but really once you know what is "safe" things get better. There are a lot of mama's out there on these types of diets.
@AnneTossy: Thank you for the links. I will have to check her blog out. There are many reasons why a mom would have to go on an elimination diet, but the diet itself is basically the same (just some have to eliminatie a lot more than others).
@soccerball: Not off topic at all! I just used my situation as an example, but everyone's definition of the "extreme" is different and emotional stress is a huge factor when you are nursing. I totally understand your position and am so glad that you and your baby where able to find a solution that worked for you :)
@Mrs. Spring: I have to agree. Everyone has a different line! That must have been tramatic and honestly, if I had to deal with mastitis I'm not sure what I would do either. That might be my line...
@Goldilocks1107: Good question. At this point it is still better to breastfeed, but I was given some formula samples to try and see if he can tolerate them in case we have to wean earlier than planned or if I were to get sick etc. Honestly, even though the formula is a specialized medical food he could still react to it and then where would we be? Once we do start solids and I stop EBFing, he will need to be on some sort of formula until his overall diet improves specifically for the reason you stated...our GI said he will likely be on formula or BM for years :/
@mechiebaby: In theory there is a formula out there that should work, however some kids with FPIES actually do worse on the formula and that is one of the reasons why I've (with doctors ok) decided to try my hardest to find what works. If I cannot find a combination of foods that works then I will consider switching, but I must exhaust all efforts first, as I and his doctors believe BM is still better at this point.
@saraja87: That is amazing! Good for you.
@irin997: I'm so sorry for your nephew and his family. I know how hard it is and we are just starting this journey. I really hope my son outgrows FPIES, but I am aware that he will probablly still have some sort of food allergies in the future. Your nephew may still improve with his allergies...most of the literature I've read says 2-3 years for outgrowning, but a lot of the familes I've spoken with say it's more like 4-6 years. I hope he does further outgrow! Yes we are looking at either Elecare or Neacate (2 VERY expensive formulas) if we were to switch and as I'm sure you know, these may not work either. I'm glad they were able to find a solution that worked for them! Best of luck to the little guy.
I can't respond on my phone and with a little one at home I have a hard time getting on a computer. But I really wanted to respond.
I was always going to breastfeed but figured we could supplement with formula. Now, I am terrified of formula. Until you see your child in pain, it is hard to know how you will respond.
My son is MSPI (Milk Soy Protein Intolerant). He screamed 12 hours straight every day for weeks after coming home (really from day 1). I stopped milk and it helped a little. At 3 1/2 months, I was on a complete elimination diet for 3 weeks and then added in all but milk, soy and gluten. We have a completely new child on our hands. I can't imagine giving him milk so I plan to continue breastfeeding until he is 2 years old (this is a scared mommy talking). Even now (6 months old), we went out to eat and made a big deal of the allergy and we had broccoli with butter. The server swears it wasn't but I know it was because the next day he was having bad bowel movements.
Keep up the good work. Look into Paleo recipes (no milk, soy, gluten). And the added benefit is really that you get more healthy. You have no choice but to
@brownieMomma: I meant to respond and never did. I think our babies are about the same age (DS is 7 months tomorrow)!
I can completely understand what you are dealing with...our son was/is the same way...screams constiently and in obvious pain...things have gotten so much better with the eliminations and the best one so far as been the rice/oats. If a I would have known months ago that he was FPIES to rice, I would have cut it out at the point. Totally different baby on our hands now, although he is still reacting to something :/. I plan on breastfeeding for 1 year at the breast and EPing, hopefully, until 2 years. Scared mommy here too!
After seeing a pediatric allergiest that specialized in FPIES the other week, we are now off poultry (main one being chicken) in addition to everything I've already mentioned...and I'm fine with that :)
@soccerball: If/when I have future child this will be my philosophy.
I saw my BF go thru this, and told her your not failure if its just not working, cut yourself some slack. With my BF it was struggle with the first and had to give up after a few weeks, but it happened easily with the second. We put too much pressure on our selves. I would like to think that I would put in sincere effort and then move on. Granted I've never heard of your sons condition so this is new to me. So my response is only about typical breast feed challenges.
it's hard to say until you're in that position, but i would try my hardest until it got so stressful/overwhelming that it was affecting my bonding time with LO or relationship with hubby. my milk came in right on schedule and we have had few bfing issues (pain in the first two weeks, a few clogged ducts that cleared up quickly, engorgement here and there...) so i can't really imagine the much harder types of challenges. im very dedicated to bfing, but would switch to formula if it started to have a really negative effect on my emotional health/wellness/quality of life.
breast is best...but baby needs a happy mommy too!
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My son has a rare form of food allergies called FPIES (Food Protein-Induced Enterocolitis Syndrome) and I am currently EBFing him. I've been on an elimination diet for 4.5 months from milk, soy, eggs, wheat, gluten, peanut, tree nut, fish and shellfish, with rice and oats added 3 weeks ago. He is still reacting to something in my diet, so I am getting ready to prepare for a total elimination diet...eating ~4 foods until he stops reacting and then gradually adding the foods back in. For me, personally, I must exhaust all possibilities before giving up breastfeeding and was really hoping to make it until at least 1 year.
I also just came in contact with a first time mom who is adapting and trying to induce lactation for her adaptive child. She's taking herbs and using nipple stimulation, but has yet to produce any milk! I think that it is amazing that 1) she's adapting and 2) she's trying to induce lactation to be able to nurse! So these things got me thinking...
How far would you mama's go to start/continue breastfeeding your little ones?