Post # 1
I just got the results back from my thyroid testing. My pcp didn’t test everything (T3, T4, etc) but my TSH level is currently 3.5. My docs office uses the normal range of 0.27-4.2 and I’ve read that some endos prefer to use 0.2-3.0 as the preferred normal range these days – which would put me in hypo range. My family has a history of borderline hypo and my sister is currently being treated. I’ve already had one MC and want to make sure everything is in good shape before we TTC again.
My question is – what was your TSH level when you were treated for hypothyroidism? I’m wondering if I should see an Endo for further testing (probably). My A-TPO and A-THY levels were normal, I don’t even know what those are…
Any info would be helpful. Thanks in advance!!
Post # 3
My TSH level was 3.53 mU/L and free T4 was 17.3 pmol/L. My GP says it’s within normal range, so won’t treat or do further tests. I think the main reluctance to treat, is that if pills are prescribed, then these will have to be continued for the rest of your life.
I’ve only tried for six months, but my SIL was trying for three years before she got her BFP. She had hypothyroid (don’t know her levels) and was prescribed pills, which she’ll have to take for the rest of her life. I think she was diagnosed a year before she got her BFP, so it took 6-12 months for them to regulate her hormone levels.
Post # 4
@pink_sherbert: Thanks for the response. Are you trying any other methods to lower your levels? I already have autoimmune issues so I (try to) follow a gluten and dairy free diet to manage my Crohn’s disease but I am bad at that. I’m hoping that sticking to that, as well as eating less sugar might be helpful. I don’t know how much of an impact it will have on thyroid but I know it definitely helps with the Crohn’s. I was able to get pregnant within the first 5 months trying and not trying very hard but MC’d at 8 weeks. I do think I had low progesterone based on spotting prior to AF for all 4 months up until the BFP as well as the week prior to the BFP in cycle 5 and for the following 4 weeks until the MC. That’s why I worry a bit about the slightly elevated TSH and what is truly considered “normal” these days being so varied.
Post # 5
I recommend that you see an endocrinologist. Even if you are borderline hypo, it’s best to get that in check before you conceive again. With your slightly elevated TSH, it should be quite a low dose of Synthroid for short period of time before you level back out. And the endo will be able to help you monitor your TSH after it levels out. Just my two cents. Hope you are doing okay, hon! I think about you a lot and hope the wedding planning is going well!
ETA: I have never heard that you would have to take the pills for the rest of your life. I certainly did not need to take PTU for the rest of my life with Graves’ disease and this is not true with hypothyroidism as well. When monitored, they reduce the dosage to what you need and eventually it is possible that the hypothyroidism would resolve itself. You would only need Synthroid for the rest of your life if you decided to have the thyroid removed or used RAI.
Post # 6
@AstoriaK: Thanks lady!! I agree with you about seeing an endo, there’s really no reason not to. Wedding planning has been a saving grace for me. I’m doing really well now and looking forward to saving some money up over the winter, getting my health in top shape, having an awesome wedding, and getting back on the TTC train. Only 8.5 months to go!!! With the holidays and wedding stuff, it’s going to fly. 🙂 I hope you are doing well!!
Post # 7
@AstoriaK: Yeah I agree with you, my sister has been treated and I’m not sure that she’s always on the meds. I would absolutely not start a treatment that would be forever. They wanted to put me on Crohn’s meds forever and that’s not happening!
Post # 8
My TSH is always like .. less than 1. It’s very sensitive to the hormone replacement. We let it be over supressed and increase the medication. My last t4 was 11 (high range being up to 25) but my symptoms are hypo ATM. I find for me we need to keep me in the high range of normal for the best management. Luckily my doc understand that labs are a guideline and how I’m feeling and what my sytmptoms are are more important than arbitrary lab numbers.
Also becoming pregnant increases your need for thyroid hormones from what I’ve been told.. so I think they bump you up a bit automatically.
Post # 9
I went to see the doctor after trying to get pregnant for 6 months and my TSH was 5 and my T3 and T4 numbers were normal. She prescribed me thyroid medicine but I did not take it and instead ate as healthy as possible and supplemented with selenium and iodide. I ended up getting pregnant 2 months later. However, I then went back to the doctor to make sure my levels were ok for pregnancy and TSH was 4 and others were normal. I began to take 25 mcg of Levothyroxine for two weeks and felt HORRIBLE. I have never been so sick…..
So now I am going to have to call doctor and figure out what is going on. I guess the point is that if you are subclinical (meaning your t3 and t4 levels are normal but tsh is slightly elevated) I would try to treat it naturally, but then again that’s just my experience.
Post # 10
You definitely need to do further testing. My TSH was 2.09 when they started medicating me (Synthroid) because the “safe range” for TTC is between 1 and 2. It’s more preferable to be closer to 1.
Most importantly, have them check your antibodies as well to make sure you don’t have Hashimoto’s in addition.
Post # 11
@KateByDesign: +1. My OB wanted me as close to 1 as possible when TTC. When I started my TSH was 2.7 and after about 2 months on a 25 mcg synthroid I was down to 1.9 and got (and stayed) pregnant. Once you are pregnant they should check levels and adjust dosage as necessary once a trimester.
Post # 12
Wow these are low TSH levels to be treated!! My TSH was 10.5 and T4 was 0.9 when I started on medication a few years ago. My most recent TSH was 2.5 and it was considered normal, but I do monitor it every 3 months and that was the highest since I’ve been on 50mcg Levothyroxine. Not TTC yet but this is something I will have to talk to my Dr. about…
Post # 13
@jny1179: My TSH was 6.67 in April!! I was training for a half marathon, running a zillion miles a week, and GAINING ridiculous amounts of weight. No other symptoms, though. It was kind of crazy. But whatever, I got tested, started on 25mcg of Levothyroxine and worked slowly up to 50. Six weeks after that, I went up to 75mcg. I just got re-tested a month ago, and my TSH was all the way down to 0.51. In the meantime, I got pregnant on our second cycle trying (got my BFP 7/5). I’m now 8w5d, and *knock on wood* so far so good. My PCP said that my OB will likely re-test me once every trimester.
Post # 14
- Wedding: September 2011 - Baby boy 12/2015
@jny1179: I got 3.4 and my doctor said it was normal. That was one of the things that worried me, but she said it looks normal. I may need to look further into it.
Post # 15
@candy11: Different labs can have slightly different levels that are the normal, which I’ve seen personally. Some doctors take into consideration any symptoms you may be having when treating you.
My lab results always have the TSH pregnancy ranges listed as well. Here are the levels from my doctor’s lab (Dec. 2012) and from Quest (as of April 2012) if anyone is interested.
0.40 – 4.50 “normal” for both places
First trimester 0.26 – 2.66 Quest levels 0.20 – 4.70
Second trimester 0.55 – 2.73 Quest 0.30 – 4.10
Third trimester 0.43 – 2.91 Quest 0.40 – 2.70
Post # 16
@Spottts: Thank you for this! This is exactly what I need to know. 3.5 might be ok for someone that is not TTC, but since I am, I definitely want to get that number down. I’ll be looking into endocrinologists this week.