Post # 1
How did you find a doctor that was willing to treat your symptoms and not your numbers?
I am so effing frustrated! I’ve been dealing with thyroid issues for about 8 years now. In the beginning, I had Graves Disease and was hyperthryoid. At the encouragement of my endocrinologist, I had my thyroid “killed” via radioactive iodine treatment and have become hypothyroid.
My endo insists that my bloodwork levels are “normal.” Yet, I still suffer daily from symptoms. This is NOT normal! The last time I went in for routine bloodwork (I go every 6 months), I printed out a list of typical symptoms and highlighted each one that I have to prove to them I’m not playing around with this any more. And I literally had 3/4 of the list highlighted.
My doctor suggested that I’m just depressed. Seriously?? Why do doctors always want to just say you are depressed and throw an antidepressant at you? I’m not despressed, I’m frustrated! My main issues are that I am chronically fatigued, I have brain fog and lack of concentration, I have zero energy and I cannot lose weight regardless of exercise and calorie counting. I’ve always been slim. Right now I”m about 15 lbs heavier than I’d like to be. They say I’m still in my “normal” weight for my height, but damn, this isn’t normal for ME. My clothes are not fitting, I feel like shit.
I’m curious as to how you were able to find a doctor that will treat your symptoms and not just your numbers. Any advice is appreciated. I have an appt. Friday with a new endo, but honestly, I’m so jaded at this point that I feel like I’m never going to feel “normal” again.
Post # 4
I don’t, but my Darling Husband just found out that he has a thyroid issue that they have been treating for something incorrect since the beginning of the year. We can’t seem to get the correct tests done to give us the answers. He has been to take the same test 5 times and they still have yet to do the test correctly. He is so tired all the time and not having the answers after this long is frustrating. Every time they screw something up, they want us to wait another month to try again. I am beyond frustrating and heading right into furious with the medical people that can’t seem to get their acts together enough to just do a simple blood test correctly.
Post # 5
I’m borderline hypothyroid (hypothyroid by the new TSH level standards but not by the old ones) and I’m dealing with the same kinds of issues, brain fog, constant fatigue, insanely dry skin. No one will treat me because I’m “borderline”. My mom has Graves disease, they killed her thyroid, and now she’s dealing with the same exact issues with her doctor as well. My only suggestion is to find another doctor, I know there are doctors out there who treat the symptoms instead of the numbers. Sorry, I know that’s not much help but if anything I can offer some commiseration… :-/
Post # 6
@GFerg: you poor thing. i have severe fatigue due to hormone & mineral imbalances. just wondering why did they kill your thyroid? can you take medication to fix it. have you been tested for hormones or mineral deficiences?
Post # 7
I know it’s time to have mine checked..10 years ago, during a TAC as i was told i had my thyroid a bit enlarged. I have several cases of Hypo and Hyperthyroid in both sides of the family (my paternal grandmother had hyper, my maternal grandmother has hypo) so i have a tendency. At the time i did make blood analyzes and all was good. Last month i checked my blood because i was thinking about wearing a IUD and the thyroid hormones were ok, i believe..thing is..i have been having a weird feeling in my throat and i just can’t sleep on my belly because the pillow pressures it and it bothers me..i still believe a bit silly to tell the doctor about this, but who knows??
I would look for another doctor if i were you..completely understand your frustration
PS – my maternal grandmother has the same procedure as you
Post # 8
@traveller: We killed my thyroid because it was severly over-active. I currently take two meds (synthroid and cytomel) to supplement the hormones my body is no longer making. It just seems the doctors can’t get me the right does to make me feel better. They claim that what I am taking now puts my levels in the “normal” range.
I have had a complete bloodwork screen done, and they said everything else is normal. But who knows. I’m going to have this new endocrinologist tomorrow run a test on everything!
@Rivendeler: I had that issue where I never wanted anything around my neck…I felt constricted. Even now, with my thyroid gone, I still feel that way.