(Closed) I think I might have endometriosis

posted 8 years ago in Intimacy
Post # 3
Member
1288 posts
Bumble bee
  • Wedding: June 2010 - Indiana Memorial Union

I never had it confirmed via the surgery, but given that my mom and grandma had it, and my symptoms, I’m treated it for it with medication.

It is the official diagnosis to have the laparascopy, but you can be treated without it.

Post # 4
Member
2390 posts
Buzzing bee
  • Wedding: December 2009

I know for me the only way they could diagnosis was with laparoscopy.  I had numerous ultrasounds, but they could never seen anything (they could see old scars from bursting cysts, but that was unrelated).  My BFF has endo and we have completely different symptoms.  Definitely PM me if you need to talk.

I will say that the laparoscopy was a piece of cake for me.  I had it on a Friday and would have gone back to school on Monday if my mom had let me (I was 16 when I had it).  I was sore, but it wasn’t bad at all…considering it’s a very easy surgery and you don’t have to stay at the hospital. 

My docs tried different types of birth controls & natural remedies to try to fix things, but nothing worked until I had the laparoscopy.  Luckily, since then, I’ve mostly been fine.  A few painful months here and there, but NOTHING like it was before. 

Post # 5
Member
1370 posts
Bumble bee
  • Wedding: July 2011

I have endometriosis. It can only be confirmed with laparoscopy, you can’t tell by sonogram. I’ve had two surgeries in the past four years. I’m on continual birth control to stop my periods, which has helped a lot. The first time I had surgery, it was a breeze, but the second time I had a hard time recovering although I think that was because the pain med. I was on was causing inflammation in my chest. I think if you go forward with the surgery you’ll get a lot of relief and the recover isn’t very long. Good luck. PM if you need someone to chat with.

My best friend also has endo and she’s on the Depo shot, which puts your body through menopause and she says that helps. I didn’t want to go that route

Post # 6
Member
1288 posts
Bumble bee
  • Wedding: June 2010 - Indiana Memorial Union

Yeah most people feel a lot better after the laparascopy. It’s the next step for me, just waiting.

Post # 8
Member
44 posts
Newbee
  • Wedding: September 2010

hi.. i have endometriosis too. i had to have a huge ovarian cyst removed during a laproscopy at age 20. the dr. at the time told me that i may have issues having babies. but, i just went for an annual exam and my new doc said that i should have no problem getting pregnant. i was really surprised and happy to hear that! anyways, i definitely have problems every now and then with my period, and i can’t deal with being on the pill, so i just deal. not really any helpful advice here… just know that you are not alone. 🙂

Post # 9
Member
2083 posts
Buzzing bee
  • Wedding: May 2010

Yep, I was diagnosed after a laproscopy a couple of years ago. Those sound very similiar to what my symptoms were before the surgery… Pain during sex, terribly painful cramping concentrated more to one side (found out through the surgery that it was mostly on my right side because my right ovary was adhered). Definitely do the surgery – if it is endo they can use something like a laser during the surgery to burn the patches and you will feel much, much better. Then you can be on treatments for it after.

Post # 10
Hostess
18646 posts
Honey Beekeeper
  • Wedding: June 2009

I was diagnosed with endometriosis.  It sort of sounds to me like you could be having ovary pain instead since it’s off to them side.  For my pain, it was mostly central, dull constant cramping and really bad cramps with me period.  The surgery is pretty easy for me, I was better a few days after rest.

Post # 11
Member
14186 posts
Honey Beekeeper
  • Wedding: June 2009

I’ve had it confirmed. Had it at 19, surgeries at 20 and 22, plus a D&C and had 3 cysts removed. i’m 24 now and recently got a clean bill of health after being on LOTS of bc and an anti-inflammatory diet. I always had very painful periods (insanely heavy cycle, incapacitating pain–i took vicodin for a week straight once a month for years) etc. All you can do is supress it with birth control, get it diagnosed, and find out where it is. Your Dr can clean up the bad scar tissue–if it’s all over your fallopian tubes, they can check it with dye to see if they’re blocked, they can do an ultrasound to look for cysts, but an ultrasound does not confirm endometriosis the way a lap can. I had mine done on a Friday and was back in the office on a Monday. Mine was all laser, though. A little puffy and sore, distended stomach, etc, but nothing major.

But, it can make you infertile, so you need to get checked for it if you think you have it.

Both women I know had endometriosis really bad–the first time my friend went in for her lap, she got her uterus scraped so it was a clean place basically. All ready for a baby. She got pregnant. Needed IVF with her second baby, though. It really depends where the endometriosis is. It can cause lots of other problems, too–mine was all over my bowels and it was causing me lots of GI issues. The painful sex is a big bummer but if you get a D&C (vaginal scraping) and the scar tissue removed, it does help. And, really, it’s trial and error on what works.

Honestly, you could have endometriosis but you could not. Lots of women have a heavy period for 3 days or pains in the sides. You could have cysts, but not endometriosis. Or your ovary could be implanted on the side of your uterus (mine was like that and i got this sharp pulling sensation and lo and behold, taht’s what it was!)

Birth control and pregnancy are bsically the two known “cures” (and by cures i mean temporary remission) so, pick your poison. The more periods you have, the more scar tissue you have, so you definitely want that removed.

Check your OBGYN and make sure he/she is really qualified for this sort of thing. After 6 months at my current gyno, she said, “you know what, you need a specialist” so it wouldn’ thurt to see one for a second opinion. I ended up with a reproductive endocrinologist who was incredibly educated about the topic and helped qualm a lot of my fears.

PM me if you have any questions! I think i was kinda jumbly, but if you google for endometriosis on the search bar, I’m guessing a lot of my comments will pop up because I always comment! =]

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