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I have no words for you, but with all the hormones running through your body, it makes it even easier to get depressed. Hugs. I hope you can get through this.
I would talk to your dr about alternative treatments, acupuncture might help- I'm not sure about that while pregnant, but he might have other ideas too. Yoga might help as well. A lot of people in my family have terrible migraines, my sister especially and she had them during her first trimester and then 0 the rest of her 1st pregnancy and I don't remember her having any during her 2nd pregnancy. I feel so bad that you are having to go through all of this pain. I had a problem with a medication I had to take that caused my to miscarry, then I had to have my ovaries removed to prevent more health problems for myself. It's terrible when medication that you need won't allow you to have babies. For me I have had to accept that I won't be able to have my own child and thankfully my FI is very open to adoption. I just hope you can find a way through this so that you can have the family that you are hoping for.
@Phofe2774: acupuncture is totally fine while pregnant. That's a great idea.
Maybe you could look into massage therapy, too?
I had a friend who had chronic pain who's OB put her on pericet. She was told that she could take it up to the begining of the 3 trimester without any negative side effects. I would talk with you ob about putting you on something for pain management.
Op, I am so sorry you are in so much pain.... I get chonic migraines also and have been put on sumatriptin and maytraxal to cope....
I'm not pregnat, and I have no kids, but if you ever need someone to talk to PM me.
Love your way dear.
I am so sorry - this is a huge fear of mine. My migraines were finally pretty much under contol after trying at least a dozen preventative meds. I finally got relief w/ nortriptyline as a daily preventative and imitrex injections or maxalt for the hormonal headaches I was still having. I had to come off everything to TTC. So far I'm doing okay but if/when I get pregnant I am really worried I will have those ridiculous migraines like you are describing.
Does ice work for you? I have a ton of those soft ice packs in the fridge to use whenever I have migraines - it helps some. Also sometimes laying in the bathtub and pouring ice water on my head. A vibrating massager sometimes helps a little... I take Zofran for nausea and know thats ok during pregnancy... I also think there are some dramamine/benedryl meds ( stronger though) that help with headaches beyond the nausea - mainly cause they knock you out - i will try to look it up. Hmm, that's all I can think of right now. I don't agree 100% with Bucholtz's "Heal your headache" book but I did find his explanation of triggers helpful and the elimination diet helped me eliminate some triggers. You might look at that book if you haven't already.
Good luck! Maybe your hormones will level out a little as things progress? My neurology practice has a gyn nurse practitioner who specializes in hormonal headaches - your post reminds me to schedule with her. I'll let you know if i find out anything. I'll be thinking about you.
I am so bummed out for you. It's impossible to tell how your body is going to react to all of the pregnancy hormones. Some people experience complete relief from their migraines. Some people experience debilitating migraines during pregnancy even though they've never had one before in their life. You just never know how you'll react until you're there. The only advice I can give is to try to make it through your first trimester. A lot of symptoms tend to get better around the end of trimester #1. During my first trimester I had debilitating nausea, and I couldn't fathom making it through another week let alone another month. Yet things did eventually start getting better. Unfortunately it didn't happen overnight. I think the worst part about it is that you don't know if and when your symptoms will start to improve. That was the piece that was the most difficult for me to handle mentally. For your sake I really, really hope that you manage to get some relief sooner rather than later!!
This is going to sound odd, but bear with me! I get awful migraines, and nothing short of a dark, cold cave to pass out in usually helps. I've not been pregnant long enough to know how my migraines will end up during pregnancy...but I use this stuff called "Head On" when I getbad headaches. It is topical...you just rub it on your forehead (looks like a tube of Chapstick) and it gives a cool, tingling sensation that somehow redirects your nerve endings to pay attention to the coolness instead of the pain. Yeah, the commercial for it on tv is SO dumb/annoying, but I swear by the stuff!!! Good luck sweetie...you'll get through this!!!
I'm so sorry you're having such an awful time. My pre-pregnancy migraines were no where close to how terrible yours sound, but chiropractic care helped reduce the frequency of mine. Maybe that's something to try that will cost less than a trip to the ER (my insurance covers adjustments with a small copay).
Other than that miniscule tip - just hang in there. It seems really dark right now, but hopefully there's some good news coming your way.
(((hugs)))
I get migraines too, but I don't think I've gotten them as bad as you. (My vision gets messed up, I can't read, I throw up, sometimes I can't even think of words. At the tail-end of the last one I had, it was almost completely over, DH took me to Chipotle and they people probably thought I was learning disabled because I couldn't think of words like "black beans", "gaucamole", etc.
I agree with the bees that mentioned accupuncture, it's worth a try.
Also maybe think about a chiropractor. My SIL started going to a chiropractor, and without her telling him her medical problems (high blood pressure, out of whack mentral cycles, etc), he told her what each vertebrae affected and the ones out of place matched up to her other health problems she's been having. She only just started going, but so far, the first vertebrae he's fixing is the one that controls blood pressure, and her blood pressure has dropped more in the past 3 weeks than the past 6 months of diet/exercise change.
Eating ginger daily can help as a preventative measure. Most health-food stores or specialty food stores sell candied ginger, or you can make you own with recipes online.
Good luck! I hope it gets easier!
Also remember that each pregnancy is different, even for the same woman. Some may be miserable for 9 months one pregnancy and feel great with the next.
Have you tried Botox? As weird as it sounds my MIL was able to get Botox prescribed for her migranes. It did not work for it, but it works for many. It's worth a shot! Sorry you are having such bad migranes. You can do this!
@78h2o: I was hoping I'd get lucky and not have them during pregnancy either, but unfortunately I lost out on that. I really hope you don't end up having them! I wonder if my OBGYN has anyone that specializes in that... it's worth looking into, thanks!
@mrs_pugetsound: A cold compress does offer some relief, but the migraines are so stubborn - it's like treating a symptom instead of curing the disease if that makes any sense? They migraine continues to get worse even with a cold compress. Even if it comforts me enough to fall asleep in a dark room, I wake up a few hours later in an even more ridiculous amount of pain :(
@abbyful: Sorry to hear you have this too - your symptoms sound familiar. I find that my migraines are primarily triggered by hormonal changes, so while I do watch my diet for triggers, that's not usually the main cause.
For everyone who suggested acupuncture, my husband keeps trying to push me in that direction bc our insurance would cover a few visits, but I'm TERRIFIED of needles, even itty bitty ones. I'm also a little skeptical of it. I've tried massage theropy, herbal remedies, nada. I even had surgery on my sinuses in case that was causing it. The medication I used to be on was Fioricet with Codeine, and I would take 2 per day as preventative. My doctor was very concerned having me on such a high dose, but we had just tried EVERYTHING else. I tried Treximet, Imitrex, and so many others I can't remember the name of... nothing works.
Thank you all for your sympathy and suggestions. It's all anyone can ask in this situation. I have a Dr. apt. on the 6th so hopefully they will have some more suggestions of something different I might try. The last thing they gave me was Vicodin, but since it's not geared for migraines it doesn't work that well... we'll see. Wish me luck!
I have had migraines in the past and some headaches during this pregnancy and it's not fun. But I have discovered something amazing, homeopathic! I can't quite explain how it works exactly but it's all natural, totally safe. My homeopathic consultant (they're not doctors, but they are certified in homeopathy) has helped me with my headaches and other ailments and she's been working with my husband to help his hearing loss improve. Check out her website here where she addresses what homeopathy does. She does chronic care as well (which it sounds like you may need) and is willing to do care for out-of-state people (though it's a little more difficult). The cost isn't THAT bad (initial fee for chronic care is $250, then $100/mo and care lasts 6 months). Acute care is $50/case.
I was super skeptical of it at first, but the first time I tried it I was amazed. I had been getting UTI's really badly and ever since taking the remedy she recommended, I've never had another one. I was shocked but completely converted! Now I never take meds or go to the doctor for ailments ever, just her. It really works. I hope you can find something that works for you! Pregnancy is really hard but you can do it!!
I don't have migraines but I will comiserate that I'm definitely in the being 'pregnant' sucks camp right now and like I'm being poisoned by an alien or vampire. (I can't help but think of the Twilight sage pregnancy) AND if I were to lose this baby I don't think I'd have it in me to go through this again!
This is a random thought. Have you ever tried going Gluten free or the Paleo (more extreme) diet to see if that has an effect on your migraines. I've heard stories of amazing results to multiple health conditions including migraines and figure it may be worth a try. Now gluten free while pregnant is no easy task because I for one crave nothing but carbs - but maybe it would work.
Good luck finding relief!
Biofeedback training FTW!!! Check it out!!
Maybe start focusing on alternatives that don't involve medicines at all?? Mindful based stress reduction? Seriously the stuff works. I work in a health clinic where we see a ton of patients with chronic pain. MBSR and biofeedback training work!!!!!
I have always had bad migraines and I found out that mine were always tension related. I have to have someone massage my neck and shoulders and sometimes it help to massage the temples and the head. My DH had to give me a lot of these massages when I was pregnant because I couldn't take anything. You could see if a massage from your SO works. Play some relaxing music and maybe have him use a laender lotion to help you relax. Your headaches may not be from tension but it might help a little. If not, at least you would get a nice massage out of the deal.
Vitamin B complex (B2 needs to be 100mg), magnesium supplements, and accupuncture.
I don't have any advice to add but just wanted to say that I think you're very brave. I'm also expecting my first and I don't know how I would or could deal if I had migraines. I hope something miraculous happens and they go away for the rest of your pregnancy.
Hugs to you!!
Thanks to everyone who has been commenting-sorry I haven't been updating! I finally saw another (better) doctor and they prescribed regular fioricet which has been getting the job done! I'm so happy to have found a workable solution and things have been smooth these past couple of weeks. It's amazing to not be bleeding, in pain, or stressing constantly! Fingers crossed it stays thi way for the next 6.5 months!
I hope it works for as long as you need it to! I'm glad they found something that is helping you.
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So I know I should be super happy just that I'm pregnant and I really am excited at the thought of the LO I've so badly wanted for so long now. However, lately I've been pretty depressed... I really feel like my body is just BARELY equipped for this if at all. The worst of it is the migraines. I am usually on heavy doses of some pretty serious drugs for my chronic migraines - it's the only way I stay comfortable. I also have anxiety disorder and I'm off all the medication for that, too. Drinking actually helped cope with that and now I can't do that anymore. I've worked so hard to stay off medications for this pregnancy, and in spite of my best efforts a debilitating migraine hits and bam I'm in the ER in so much pain I cant even open one of my eyes. The bills are insane and we're going broke trying to afford them. They have given me some medications that aren't usually prescribed to pregnant women for the headaches, but they aren't as strong as what I normally take, dont always work, and I feel awful when I have to take them - not to mention they dont give them to me until I land in the ER. And this is at ONLY 9 WEEKS! I feel like if I were to lose this baby or something were born wrong with it my body just is just too messed up to have a child. It's so depressing to think, because I really want children (plural) but can't do anything about the migraines... I'm just so sad and wondering how on earth I'm going to make it the next 7 months :(
Anyone else really struggling with the lack of modern medicine/being pregnant in general? I see all the migraine sufferers working of Tylenol and caffeine and never in a million years would that even TOUCH one of mine. I feel like I'm all alone not being able to do without medicine :(