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Do you see an endocrinologist? My daughter had half her thyroid removed due to a tumor, so she has everything checked religiously. The past few months,tho,she's been feeling terrible,and on one of her labs it showed her thyroid numbers were way off. She went off BC pills a few months ago too, and no one mentioned she would need an adjustment.
Is there anything else going on with you medically? Maybe it's something else they should be looking for and checking out.
@smyley: i havre been to an endo and had bad luck. he had no bedside manner and basically put me on a bunch of scripts and didnt explain anything to me. i like my doctor... i do.... but the nurse is a major pain... and the fact that i was lied to about the labs ir just a total turn off.....
medically just my thyroid problems... and im being treated but i dont think optimally. i also suspect something adrenal and it was like pulling teeth to get them to run those labs (which arent back yet). i too just went off my birth control in hopes of getting my hormones under control without synthetics.... so we will see. i just feel very alone :(
Might be time to find another Dr. I used to do everything they told me and follow orders without question, but not anymore. You really have to take charge of your own health and find the right people to work with you in figuring it all out. Poor thing. Best of luck in getting to the bottom of all this. Feel better. :(
Girl, I know EXACTLY how you feel!! I am going to PM you some info that I just found today, and I would love to talk with you more about this, because I have the exact same thing, but all my labs are normal too
Please don't feel alone, you are not alone! Try and get a 2nd opinion, it wouldn't hurt. You can find a good new doctor on the FB page info a gave you awhile ago, there are some great ones in Chitown here, too if you are willing to make the drive.
Please PM me if you need anything! Hugs
I had half mine removed years ago to avoid medication and had random tests afterwards that all said everything was normal. I haven't had mine checked in probably 3 or 4 years and have no health coverage at the moment. BUT, I feel the same way all the time too! I dn't think those tests they run are very good. As soon as my coverage returns, I have t get tests done! Good luck sweetie :)
I'm hypothyroid, medicated, and due for a lab check soon! The crazy part about this is that different doctors use different "scales" of what is normal. Sometimes the levels are off enough to cause symptoms, but not enough for a doctor to want to treat you, which is stupid to me.
Personally, I wouldn't mind having slight hyperthyroidism... I would have more energy, not be so intolerant to cold (I FREEZE ALL THE TIME!!) and I could lose some weight more easiy!!
Damn this thyroid!!
Adrenal stuff is possible, I've read that the pituitary gland can cause secondary thyroid problems.
Good luck!! Let us know how everything turns out. Keep your head up babe!! :)
I have hypothyroid, and I had issues with not feeling normal even while on meds and with normal labs. I did a lot of research also, and asked my endo to run my "free T-3" levels. SHE REFUSED!! I listed all the symptoms I had even while on the synthetic meds, and she daid I was just imagining it! Nice right? I found a Dr, online with awesome reviews and he rand the test. It turns out my free T-3 was super low. He put me on Naturthroid and I feel a lot better. It isn't a synthetic, and it works a lot better. good Luck!
If any of you fellow thyroid suffers want or need additional information, want some questions answered or just want to vent - there are some great FB pages that I use often.
Mary Shomon: Thyroid Patient Advocate (I read her book 15 years ago because there was no other books out on the subject and the internet wasn't really as useful as it is today). She's an amazing woman: She is the author of all the articles on About.com regarding thyroid issues.
https://www.facebook.com/thyroidsupport
Coalition for Better Thyroid Care. I cannot recommend these ladies enough that run this site. The are SO helpful:
https://www.facebook.com/BetterThyroidCare
These boards have helped me immensely. Coalition for Better Thyroid Care has a tab with a doctors list. It's all doctors other patients have had good experiences with and will check those Free T3's, ect. It's not guaranteed, but it's worth a shot.
@stephanie63087: I PMed you yesterday with some info
@RR: thanks for those links, I honestly didn't think to look on facebook for support
@MrsSl82be: I didn't either but found them out of desperation for answers/help a couple years ago when my Natural T3 changed their formula. They've been extremely helpful for me, I hope it is for you as well.
@RR: Thanks for those sites! I'll be sure to look them up too!
@35thannidaughter: You're welcome! Good luck! There is a tons of information on them.
@stephanie63087: Don't give up, there are tons of endos without bedside manners, but there are some decent doctors out there - it just takes awhile to find them (unfortunately). I hope you start to feel better soon.
@smyley: yes i know i may have to look for a more holistic doc... it just sucks that i feel like im finally getting somewhere n then i hit a dead end with him :(
@MrsSl82be: just replied to your pm! sorry i havent been on weddingbee in a few days! ive been so busy with work! :)
@RR: honestly i may have to consider driving to chicago to get the care i need! and thanks for the hugs :)
@TheFutureMrsLamkin: i know eow it is to not have insurance and im soo thankful that my husbands is good! i hope you can get your tests soon :)
@Baby_Diva: ahh yes i agree with wishing for the slight hyper haha! im cold all the time too and sooooo exhausted which is how i know im undertreated despite my "normal" labs. so frustrating with the scales too!!!
@35thannidaughter: ahhh yes i convinced my doc to put me on armour which is also not a synthetic and im better... just not feeling completely right yet.... and mine was also reluctant to run the free tests,,,, then said he would... and then didnt. im so annoyed with him.
@RR: ohhh thank you!!! i am going to join those support groups as well! thanks for the kind words! im just soooo impatient! i wanna fix this NOW lol!
I am pretty sure I have hypothyroidism. I haven't been to an endo yet because I just got health insurance again. I do plan to go very soon though. I have most of the symptoms and it drives me absolutely nuts.
@MissPumpkinPie: yea.... those sound alot like my symptoms :( i would definately get that checked out as soon as you can. youll feel so much better once you are on meds :)
@stephanie63087: My thyroid was supposedly tested before but just by a regular doctor. She said it all came back normal. Well, I was young at the time and didn't really understand anything so I just shrugged it off. I finally started looking for answers when I lost a ton of weight and now gained a lot back. Thankfully not all. Anyways, someone last year told me that sometimes your thyroid will come back "normal" even if it's not. Makes me wonder how they catch it then. Sigh. I'm just so sick and tired of it as well.
@MissPumpkinPie: well sometimes even when your labs come back 'normal' theyre really not normal for you. you could still have the symptoms despite the normal labs. its so frustrating! good luck with your journey!
I am going through this as well - exhaustion, lump in my throat, inability to lose weight/moderate weight gain, brittle hair and nails- luckily my doctor appears to be taking the situation seriously and ran all the tests. I'm waiting to hear back from him about it.
@stephanie63087: I was on Armour also, and then he switched me to Naturthroid. He said they changed their formula, and wasn't working as well as it had been for some people. It is sooo much better than the synthetics though!
@Sunflower--girl: yes but they are very expensive. and i have insurance so im trying to use it.
@stephanie63087: I know they are expensive. However, you do not seem to be getting what you need from your doctor. I don't have insurance (and can't get it because of previous health conditions) so I get expensive. Believe me. Sometimes it is worth the money to get your health straightened it. It also costs money to go to doctors that do absolutely nothing for you. And don't get me started on how much your well-being is worth. Take the advice from the thread you started a few weeks ago.
You know, I've been thinking about this and am wondering if you should have other things tested to see if there IS anything else they can pinpoint. Do you have any joint pain or general achiness? Days when you feel like you just can't get out of bed or walk one more step?
I know it comes up as being almost a non-diagnosable /process of elimination condition, but maybe its CFS or Fibromyalgia? Might be worth it to check in with a rheumatologist to be sure. My GP didn't do much for me either, until a few different tests came back borderline abnormal, and he sent me to a rheumatologist who figured it all out.
http://www.webmd.com/fibromyalgia/understanding-fibromyalgia-symptoms
You can have many of the symptoms or just some, and there are times you'll feel better than others, but it's worth looking into for your peace of mind.
@smyley: you bring up a good point. The place that I am going to next week deals with fibromyalgia as well, and talking to the nurse on the phone, she believes I have it, as well as starting to get TMJ, and I also have adrenal and hormone imbalances - all related to the thyroid. I am actually excited to get looked at here (its the Fibromyalgia and Fatigue Center for anyone interested) and every single time I said something to the nurse (sobbing the whole time, of course!) she knew exactly where I was coming from. I am very hopeful that they are going to be able to pinpoint my problem.
I will also definitely post after my appt next Wed and keep everyone in the loop
@MrsSl82be: Are you being treated for your adrenal or hormonal problems? I started an adrenal protocol around a year ago and have made tremendous progress. I started on bio-identical hormones 9 months ago and have found I am pretty much back to normal.
@Sunflower--girl: nope, I am not currently taking any meds, because my pcp and endo both dont think there is anything medically wrong with me. Which is the reason why i am going to this center, so they can figure out exactly what is wrong and how to treat it.
If you are comfortable giving me the info on what you take, could you PM it to me? I would like to make a list of things I want to discuss, and if somethign comes with a good recommendation, I definitely want to talk to them about it
Heyyy fellow thy-rants! I'm a hypothyroidism sufferer myself (since I was 17!) and I am also totally unhappy with my doctor and still have symptoms, but my labs show up normal and my doctor is not willing to compromise or try anything new (he just says "nope, your labs are fine! we're not changing anything!" and it's driving me UP THE WALL.
When I get stressed out, I get really sick as well. One of my friends is a surgeon, and has said that I might have stress-induced fibromyalgia. (I have yet to get this checked out as I'm trying to just de-stress my life- however this thyroid crap is a main source of stress.)
I have my yearly thyroid checkup this week and lately I feel like my thyroid is swollen- I'm having a hard time talking and it just generally feels uncomfortable. It will give me some peace of mind to get it checked out.
One group I do participate in is Dear Thyroid- it's a great support group for all those suffering with thyroid problems.
Please feel free to DM me if you'd like to vent or want to talk about it or anything. I'm completely happy to listen and offer my support, since we're all in pretty similar situations.
@Miss Burgundy: The right side of my thyroid is 2.25 times the size of the left side, but yet apparently that is not cause for alarm. Any time I get sick, it swells more and it causes minor breathing issues. It has been enlarged for years, and I am used to feeling it all the time (I hope that makes sense). I've had 2 ultrasounds on it, and it is definitely not cancer (thankfully), but I still feel like its cause for some concern at least
@Sunflower--girl: youre right... i guess i just have high hopes for my doctor... :(
@smyley: i have had complete bloodwork done... and nothing. no joint pain or muscle pain either.... just extreme fatigue :(
I'm really sorry to hear that. If you're still interested in books and resources, have you tried reading the diet cure? It's an eye-opening book, and handles your case directly as well. I believe it could benefit you.
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im just so sick and tired of being sick and tired. im exhausted, my hair falls out, im always cold, irritable, etc.... yet my labs are 'fine'...
i just requested that my doc run specific labs so that i can try to figure this out on my own with the help of websites and books and support groups.... and they said sure.... well i get my labs back and half of them are missing! they didnt run them after they said they would... so the ones i do have are virtually useless. im so frustrated!
i really dont know what i hoped to get out of this post... i guess i just needed to tell someone. im just sitting here on my couch in a ball of tears over this. :(