Post # 1
I haven’t been around in a while and this is why…
So you know those words we say “in sickness and in health” you never really think about that until you get sick…. Really sick… Here’s my story…
In Sept and Oct of 2011 i wasn’t feeling well had some pain in my side and lets just say things weren’t all that “normal” in the bath room… so i go to my doc. they do ultra sounds, cat scans and don’t really find anything wrong with me. So I go to a Gastroenterologist. I have a Colonoscopy (not fun!) and they say i have mild Ulcerative Colitis and to take 2 pills a day and i’ll be fine. SWEET! i’m golden for the next couple of months (and really thank god because we got married in jan)
The weekend before Valentines Day (married a month now) I am sick, Really freaking sick… docs are unsure if i have a virus because i was in mexico for a week 3 weeks prior, so testing.. more testing, after a week out of work and 11 lbs lost I’m in the ER for with an IV and anti nausa meds they say i should feel better, the following monday i’m still not better, i call my dr they put me Prednisone i’m back at work the next day but still not 100% i go back to the dr they up my my dosage… should be feeling “remarkably better” by that weekend… not so much. They do another colonoscopy now i’m so weak i’m not retaining any food or water that is going in me. They find out i’m in a full fledged flare and my “mild” UC went to “Severe” and my entire colon was inflamed…. great…. so then i’m in the hospital for 6 days on 60mg of predisone let me tell you that is not fun and predisone is some crazy a$$ drug and totally not cool. oh yea and i went into the hospital at 137 lbs and came out 123… skin and bones (i was about 143 at my wedding) I get out and i’m so weak i can barely walk…(also i missed my girl friends bridal shower bc i was in the hospital and i’m missing her bachelorette because its in NYC and I can’t handle all the walking or just being out that late i’m in bed by 830-9) 🙁
so now I’m all these crazy meds i’ve been sick for 2 months my poor husband has been thrown for a complete loop because the fun care free girl he married is a drugged up zombie (until they gave me some mood in hancers! and started to decrease my steroid dosage) Its not over yet, I’m now seeing a GI specialist and will have to start immume suppression drugs in the next couple of weeks because i wasn’t lowering well of the prednisone. That entails me going for infusions every couple of weeks and then like every 6-8 weeks for like the rest of my life.. or something…
We like to go out to eat but my diet is so restricted i have to make everything myself (we went out once but i have to get like the broiled fish -good thing i like fish but its def more $$$) and i can’t have the most random things.
Through all of this i keep telling myself that THANK GOD i have my husband because while i know this has been extreamly hard on him (us). I know that we will make it through this and it will just make us that much stronger and He just called me to tell me that he ran the dishwasher- and emptied it!, made the bed and took the garbage out. 🙂
Thank you for reading this crazy long post. Have any of you dealt with something so serious so soon after saying your vows?
Post # 3
Oh my goodness!
So sorry to hear this…sending many hugs your way!
Post # 4
Aw hun I’m so sorry! But I totally know what you are going through (cause I have UC as well) and I must say it can get better once you figure out what triggers it.
I never eat dairy anymore cause I found that really screws me up. I really miss icecream and cheese though 🙁 *BUT* they do make plenty of lactose free versions of all that stuff. I use Lactaid brand for milk, icecream, cottage cheese, and Smartbeat makes some tasty sliced cheese. I’ve also found that shredded rice cheese is pretty good and melts well. Then I use Tofutti for sour cream and cream cheese. Look in the vegetarian section of your stores and hopefully you’ll find them! Just play around with recipes and try new things and you’ll get used to it. I made some killer baked ziti the other day with cottage cheese and shredded mozzerella rice cheese!
If you have any questions, feel free to PM me. I’ve had UC for about 6 years now.
It does stink (no pun intended!) when you try to be a sexy wife but then you are in the bathroom all the time. Ha, but like you said, in sickness and in health!
Post # 5
You have my sympathies. I have Crohn’s disease and it is definitely no fun. I was super sick for a long time and had tried a ton of different immuosuppressant drugs for years before I finally found one that worked for me. Prednisone is no joke. The worst is that it makes you hungry all the time but your diet is so restricted that there is not much you can eat. Rice, applesause and ground turkey get really old after a while.
I promise it will get better. It may seem dauting to have to go for infusions every 6-8 weeks but trust me, if it makes you feel better, you’ll be willing to go daily if that’s what will help. I was very upset that I had to give myself injections every two weeks but I’ve been healthy for a year so I tell myself I’d do it everyday if I had to.
Once you are healthy, you’ll start to feel like a normal person again. Feel free to PM me if you need to vent. My mom has UC too. It’s no fun when your life is ruled by something as unsexy as poop. Glad to hear that your hubby is supportive. That makes a huge difference.
Post # 6
My Mother-In-Law has ulcerative coilitis. =(
Have you considered also seeing a chiropractor? I didn’t know until I went but the lumber & sacral part of the spine actually cover nerves that affect the digestive system. Colitis was actually on the list of “symptoms” of being out of alignment.
I’m sure you’re exhausted with doctors & meds, but thought I should suggest that b/c if it can help then YAY!… if not then atleast you tried something not so invasive as tons of meds?…
Ugh.. sorry you’re going through all this I really hope they can help get it under control soon!
Post # 7
Oh thank you ladies!! I am not alone! I have been very experimental in the kitchen and its really good that i like to cook i found a Parmesan mac and cheese recipe with chicken broth and i use lactaid Milk, and my husband even likes it!, I’ve never eaten so much in my life! and i’m not gaining much, i have gained like 7 lbs back from the hospital but i got home like a month ago. I really don’t think i understood how serious i was when i was even in the hospital until i went to the dr and she was like “You have a serious chronic illness” i was like oh… crap (no pun intended!!) Thank god my job is understanding i went on FMLA and work a 30 hour work week (sucks for my bank account but its not killing us…) I go home and i rest and make something to eat.
Ooh i’m all about the lactose free icecream but i find its pretty high in fat and i’m trying to be low fat low fiber.. but Bryers makes a great vanilla and its WAY cheaper then Lactaid!!! oh and italian ice are my fave i also have a pedyalyte ice pop for some additional electrolytes!
The specialist i’m seeing now is pretty on top of the ball and thinks i might actually have Crohns Colitis… I have an MRI on tuesday to determine if my small intestine is involved.
Thanks for the support!
Post # 8
I am not yet engaged, but I have also had an experience with illness. I’ve been sick for the last 4 years, and was diagnosed with lyme disease about 2 years ago. My illness is very different than yours, but I can definitely understand the struggles. My boyfriend has been so incredibly supportive. We live together, and he helps with everything from laundry to dishes to helping me with whatever I need.
I wanted to recommend to you and anyone else interested to read the book “accidental cure” by Dr. Simon Yu. If you want any information about him (he is my doctor currently), PM me. But I highly recommend reading the book to understand his treatment philosophy.
Post # 9
CTbride2010, I can totally relate, although my illness is totally different. A year and a half into my marriage, I got diagnosed with stage 3 breast cancer. When we vowed “in sickness and in health”, I thought it would be when we were in our 60’s or something, not at my age of 33! I’ve had some pretty dark days in my illness where I told my husband that he should divorce me and find someone healthier, but he has stuck by me no matter what. I knew when I got married that my husband is an incredible guy, but you don’t really know just how incredible your husband is until he’s taking care of you (and the house!) while you’re sick! But like you, I know that this will make us stronger.
Best of luck to you in your own health struggles!
Post # 10
I’m getting married in less than two months and have been sick for a number of years (so nothing new unless you count the ovarian cysts I’m dealing w/ currently… and while it’s a new bout of them, those aren’t even really new). I have some chronic health issues (including lupus), so like yours (unfortunately) it’s not going away. I will say that I was married before, and he was an utter jerk about my health issues – he made me realize that I would be okay being single for the rest of my life. My partner happens to be a nurse, which happens to come in handy for us. It’s how he knew in August when I lost feeling in one arm to go straight to the emergency department. He’s awesome at knowing when I need to go to the ED, and we have a whole routine. He’s great in an emergency and also just all-around great. He helps take care of me.
Post # 11
I know this is a REALLY old post, but just wanted to tell you that you aren’t alone!
My illness flared up right after we got engaged — it got so bad at one point that we postponed our planning altogether. Things got really scary for awhile with complete weakness and major weight loss for me also.
Its still not great, and can’t get a proper diagnosis but likely celiac and a gut infection. The inflammation is crazy for me too, and we’re re-evaluating how we’re going to have our wedding, as I too, cannot eat much of anything. Rice, chicken and carrots.
I hope your flare has eased somewhat, take good care!
Post # 12
@Mrs Pants: I just saw this post from 4 months ago but i hope you are doing better! I am finally in remission and doing wonderfully thank God!
Post # 13
@CTbride2010: Just signed in after a LOOONG break and saw your message and wanted to respond. I couldn’t bear to come here for awhile, because we had to cancel our original date (July 12 2012) due to ongoing sickness. I’m pleased to report that things seem to finally be under control and we’re planning for July 26th 2014. Hope you are still well. Take good care CTbride!
Post # 14
@Mrs Pants: Aww well it looks like you might be out of the dark! I wish you the best with your planning and your health!!! Health wise things are going really well with me, and we’re going to start TTC in a few months! Good luck!!!
Post # 15
For H and I, we both struggle with mental illnesses and he is autistic so I sometimes forget simple things about that because he is high functioning. The whole reason we became friends was because we kind of bonded over some of those shared experiences with depression and stuff so it makes us really easy to relate to one another even if some of the things we have are different. We also both experience PTSD and anxiety.
Post # 16
@CTbride2010: YAY! Oh I’m so excited for you. I wish you lots ond LOTS of luck and baby dust in your TTC journey. I am looking forward to that next summer after the wedding too. Hopefully the health will not interfere on those plans for either of us.
I most definitely am enjoying the planning so far, just trying to take it easy and not stress out about it. Take good care CT! 🙂 xo