IVF Buddy Thread

posted 4 months ago in TTC
Post # 616
Member
908 posts
Busy bee
  • Wedding: December 2012

Excited To Bee :  My teach appt summary is on pg. 40.  It went really well.  We are starting the estrace protocol this cycle which should be any day now.  I’m on target for a May 10th(ish) retreival and (*fingers crossed*) June 14th(ish) transfer.  My probe was “due” 4/18 but I just got an email today saying it is ready!  Hopefully yours is ready soon.  Did they say they expect it earlier?  Mine said it typically takes 1 month but they estimate 8 weeks on the safe side.  We got our bloodwork done Feb. 20 and the test was ready March 20.

Post # 617
Member
826 posts
Busy bee
  • Wedding: July 2013

Hi ladies. Hoping for some help. I went to the clinic this morning (this is the last time before my triggers). Right now I’m showing 14 mature follicles with some smaller ones that may mature before retrieval.  Before I got my meds for the day, my nurse said that my doctor wanted to present me with an option. They were very clear that they weren’t recommending this, just giving me the option if I wanted it. They said I had the option to freeze all and do a frozen transfer next month. I asked why, and they said it would lower the risk of OHSS. I then asked if they thought I was at risk of OHSS and they said no, they feel pretty confident I’d be fine, but wanted to present me with all my options. I said I still wanted to do the fresh transfer, I feel fine (though I know symptoms can present after retrieval) and they said that’s great, just make sure to eat a lot of salty and high protein foods. Just wondering what you ladies think – would you wait or go ahead with the fresh transfer?

Post # 618
Member
826 posts
Busy bee
  • Wedding: July 2013

MrsBG :  that’s so exciting your probe is done! And equally exciting to start your estrace! Things are beginning -eek!

Post # 620
Member
826 posts
Busy bee
  • Wedding: July 2013

BeeBlake :  that’s totally fair. I think my clinic said they don’t see any significant difference either way between fresh and frozen. I think if I’m safe to do so, I’d like to do a fresh and then freeze some. That way we can try again with frozen if fresh doesn’t work. My nurse is quite optimistic we will have blasts to freeze but I’m in more of the ‘wait and see’ camp haha.  I’m seeing my naturopath tonight for acupuncture so I will ask her what she thinks as well 🙂

Post # 621
Member
1048 posts
Bumble bee
  • Wedding: May 2014

YogaMama :  Like BeeBlake said, its totally personal preference. I was told the same thing about frozen cycles having better success rates, but if your clinic has no noticeable differences (you can check online at SART.com) then you should just use your gut feeling. I just want to mention that a FET is more expensive, anywhere from an additional $2-5k on top of your regular IVF fees. I dont know if she discussed that with you. 

Did they maky any of you ladies stop drinking water? I was watching a vlogger who went through IVF and they made her stop drinking water around mid-way through stims. I think its to prevent OHSS, no? 

Post # 622
Member
826 posts
Busy bee
  • Wedding: July 2013

Excited To Bee :  I’m in Canada so I think it’s a little different here. I asked my nurse again and she said the results are the same, fresh or frozen. If we postponed the transfer, I think they just charge us extra for freezing which is about $800 I believe. It still counts as the same cycle we paid for.

However, I asked her again if they think I’m at risk and she said no, my bloodwork looks good and as long as I feel fine, they are happy with that. I’m going to start on the high salt diet today to see if I can prevent fluid build up before my Thursday ER. And yep, that’s why they say the no water thing – water flushes the salt from the body and they don’t want to do that 🙂 My nurse said to drink V8, Gatorade or coconut water.

Post # 623
Member
1048 posts
Bumble bee
  • Wedding: May 2014

MrsBG :  Congrats!!! I am so jealous, but very happy that your probe is done! They told me it will likely take fewer than 8 weeks, but didnt give me any indication of how much less. I guess they dont do lynch as much as BRCA. I cant believe I missed your review, how fantastic thats all done! Does it feel so much better having a plan? I cannot WAIT until I sit down and its all laid out in front of me.. half of the anxiety comes from the unknown. Sorry if I missed it, but have you already ordered your meds? My plan is in the next two weeks to make a decision on if I want to do it via the US pharmacy Mandells or IVFPrescriptions.

Has anyone had an IVF nightmare? I had one last night and of all the things I was afraid of, it was paying the bill! hahah I was freaking out, thinking “I thought we would have more time.”

Post # 624
Member
908 posts
Busy bee
  • Wedding: December 2012

Excited To Bee :  I’m glad it is ready.  I was starting to get nervous.  Our insurance denied the testing so for now we have to pay out of pocket and appeal to insurance.  I’m dreading that process but I’m hoping my husband will step up and help me.  I hope yours gets done quicker.  Is insurance covering yours?  Which lab are you using?  We are using Natera.  I’m so excited to have a plan.  Now I’m just anxiously awaiting my period.  Oh the joys of TTC.  The meds were supposed to be ordered.  I just reached out to the nurse since I haven’t heard from my medication insurance yet.  I looked them up on my plan website and it looks like they will be $150 each which isn’t too bad.  Ironically enough Estrace isn’t covered so that would be $500ish unless there is a generic.  If all the meds end up being under $1,000 I’ll be pleased. I’m not sure where mine would be coming from yet.

 

I’ve had a couple nightmares lately but not IVF related.  I need to calm myself down and go workout more.  I have been in a negative head space and I finally feel free from it yesterday after my therapy appointment.  Therapy has been super helpful.  My SIL had a baby in early March and that was very triggering for me.  It brought back a lot of shit I didn’t realize I wasn’t over yet.

Post # 625
Member
1048 posts
Bumble bee
  • Wedding: May 2014

MrsBG :  We are using Natera, too! Did they talk to you about cord blood banking? When I had my tests done, they asked me if they could send me addl info on it but never did.

Our insurance covers nothing. I’m actually super mad about all of this, because we didnt decide to move forward with IVF until January, so there are other options that wouldve allowed a portion to be covered. My work has a plan that covers $5k, as does my husbands. My DH works for the federal govt, so our benefits are pretty great, but god forbid they spring for something like infertility coverage. We are paying about $20-25k out of pocket, depending on the end cost of our meds. The IVF with PGD alone is $15k, plus the FET, $3k, plus meds ($2-5k). Oh and then the added fun of having to travel four hours to get to an RE that actually does PGD, so $100/night for every night we have to stay at a hotel. Luckily, we found a homewood suites that will feed us breakfast every morning, dinner Tuesday-Thursday and has a kitchen so we can make food ourselves to cut costs. We will have one big refund next year. I’m just thankful DH and I have good jobs, so we can pay for some out of pocket now and put the rest on a CC with 0% APR for 15mo. Barring any major issues, we should be able to pay it all off by that point. 

In terms of estrace, is it the cream or pill? I know the pill can be purchased via overseas pharmacies for very cheap, just in case you’re interested? It’s the same manufacturer, just UK version. I’m really glad therapy is helping, I have been considering going but its hard to find someone I feel comfortable talking to about all of this. Did you just find someone in-network or did you have a recommendation? It’s so much, I dont even know where to start. Plus, having been diagnosed with lynch only a year ago, I should really probably talk to someone about my fear of dying young and leaving my child behind (my mom died at 32).

YogaMama :  Ugh, I am so incredibly jealous that you’re Canadian. DH and I have been entertaining the idea of moving to another country. I dont think we will do it, but we’re both pretty peeved at the US right now. I’m glad that they dont upcharge you for FET, it helps to be able to make a decision without considering the financial ramifications. 

I cant believe they dont let you drink water! That is just so crazy to me, I feel like theres a very good chance I will accidentally mess this process up. Just all of the nerves! How are you feeling today? 

Post # 626
Member
908 posts
Busy bee
  • Wedding: December 2012

Excited To Bee :  So I called regarding the meds and it looks like my insurance is pretty freaking awesome. The medications count towards my max out of pocket too which is amazing.  So the meds are $150, $150, $90, $15, the lupron got initially denied but may be approved once they hear back from my RE but if not then it will be $800, and the estrace got denied because they wrote 60 day supply instead of two 30 day supplies.  That should be covered at $150 on the highest end but hopefully less.  So assuming the lupron gets covered, i’m looking at about $600ish. Thats doable.  I really hope I can get the genetic testing covered through appeal.  That is our biggest bill so far.

Post # 627
Member
908 posts
Busy bee
  • Wedding: December 2012

Excited To Bee :  All out of pocket?  We could probably manage that but it would take us years to repay.  We just did a big revonation on our house before we found out about the fertility problem… Amazing timing 🙁  We have our bills going on our HELOC for now.  Luckily it is a low interest rate and we are paying as much as we can towards it. 

I don’t think cord blood banking was ever mentioned.  We donated my son’s cord blood.  I think we will do the same with the next baby.  It makes me so mad that they don’t ask every parent about cord blood banking or donation.  My coworker just had a baby and they didn’t do either.  Donating is free so I don’t know why they don’t offer it more.

Also, the therapy has been so awesome.  Like for instance, in the paragraph above I typed “do the same with the next baby”  for a long time I was “if” we had another not “when.”  I would just try anyone and if you don’t like them, then you could try another.  I can’t recommend it enough.  My husband and I did couples counseling for a while and that was really helpful.  The infertility stuff, plus the medical issues, plus the stress of a toddler really wore us down.  We are at a much better place now.

Post # 628
Member
826 posts
Busy bee
  • Wedding: July 2013

Excited To Bee :  I can imagine that things are difficult for you there right now! The water thing is funny – but I’m a huge water drinker so it’s actually kind of nice to get a change! I’m feeling all right, really just anxious for the retrieval to be over so we can see what we are dealing with. Just waiting for my nurse to call to give me the time!

Post # 629
Member
1048 posts
Bumble bee
  • Wedding: May 2014

MrsBG :  That so great your meds are covered! FX they approve the estrace. Yup, all out of pocket. We will get to claim around $10k of it as “medical expenses” when we file income taxes, which should give us another $3k back in our pocket. Its sort-of like getting coverage, hah. We also get to deduct our hotel expenses, up to $50/night. I need to get all of the facts for the coord blood banking because if I am able to use any of it, it would likely make a lot of sense for me to keep it. Everyone in my family who has lynch has, or has overcome cancer. I’d also like it as an option for my child, god forbid they need it. I know its not right for everyone, but if it might save my life one day, it might be something to consider. Again, though, I dont know all of the info about its uses or if I could even use it.

You’ve encouraged me to find someone! I am going to look online tonight and see if I can find a therapist in-network near me. I’m sure it would help my husband, if anything, since I know he feels helpless in all of this and is having a hard time too. 

YogaMama :  FX you get the call soon! Good luck!

Post # 630
Member
908 posts
Busy bee
  • Wedding: December 2012

Excited To Bee :  Good!  I’m glad you’re going to look into counseling of some sort.  This is a difficult time dealing with all this stress and its important to get support through it. 

Cord blood – I’d be interested to hear what you learn about it.  We would most likely donate again but would be interested to know how it could help us. 

Medical expenses – How do you find out about what and how you can itemize and deduct them?  If we end up paying for the PGD, we will be well over 10% of our income so we can likely itemize.

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