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There has to be *someone*..... I hope... (willing to help, not that I hope they have the disease too)
SO has this. Found out about a year ago.
1) Do you remember what life was like before the meds kicked in, and has it improved markedly for you? SO was tired a lot and he hadNo energy. After he lost a ton of weight
2) Is your fertility in any way affected by this? SO's wasn't
3) Has it been easier for you to lose weight on the medication than it has for you pre-medication?Oh yeah, the weight literally fell off him
4) Do you need to take the meds for the rest of your life?Yes
5) What's the worst symptom of hypothyroidism for you?SO said the sleepyness and the weight issue.
6) Do you completely get rid of your symptoms when you begin the meds, or are they just downgraded to a more tolerable level? It took a while for them to find the right balance. he had to go to the dr a lot to check his levels and if something was off, they adjusted his meds
Thanks for your answers! I'm curious to see other answers from women who are concerned about babies in the future too. :-)
Also, has your SO's doctor recommended he eat a specific array of foods, and leave others alone? I have been reading about holistic approaches too, but did not know if that was something doctors are doing these days? I couldn't speak with my doctor at length today, but have a call set for tomorrow.
I've been taking Levothyroid since 1992 after I had a miscarriage. The doctor checked my thyroid and found I had hypothyroidism. The thyroid regulates your hormones and since mine was off it caused me to miscarry. I can't remember how long it took to feel better but it definately has made a difference. So has learning to relax, exercise, B vitamins and a multi vitamin. Yes, you'll need to take it for the rest of your life and be tested regularly. My Rx's have been adjusted several times.
If after taking it for 3 months and your symptoms haven't improved (memory, tiredness, weight loss) you'll need to do some research as to what else could help improve your well being and talk to your dr. I wish you the best and we're all here to help answer your questions.
Another male perspective, but my SO has this too (Hashimoto's disease, where his immune system attacked his thyroid).
He was ridiculously tired, and wouldn't listen that he seemed more tired than usual and really only noticed AFTER he got on the medication. For him it was a vanity issue that his hair was falling out that sent him to the doctor to talk about that, and they discovered it, so he'd probably say that was the worst part :P
His fertility may be affected, and in combination with my PCOS we anticipate quite a difficult time conceiving.
He never really gained weight, and didn't need to lose weight once he got on medication, so I don't know the answer to that question.
The worst symptoms were that he was tired ALL the time, and his cholesterol went through the roof which was scary for heart issues.
He will be on medication the rest of his life
It took a while to adjust the medication to get the correct dosage, so he had to go back and forth with doctor's visits and blood work to get it right. It improved slowly.
@Ill Be Mrs B: Thanks for your response! Did you have any glaring symptoms prior to the miscarriage that made you think things were not quite normal? I find it interesting how some people just kind of know there is something peculiar going on.
I almost can't believe mine was missed by so many doctors before.
No, So's dr just pressed the importance of being diligent about taking his meds. Even if he's feeling better doesn't mean he can just stop taking his meds.
SO was being treated for a bad case of depression and i guess DR said the two were related somehow. I forget about that.
1) Do you remember what life was like before the meds kicked in, and has it improved markedly for you?
Before the meds kicked in, I was lethargic/fatigued all the damn time and overall felt like crap. Now, my energy level is back to where it was before my thyroid crapped out on me.
2) Is your fertility in any way affected by this?
Not directly (that I know of), but I have chosen not to have kids because you have to really, really watch your TSH levels during pregnancy (and while you're TTC) because there can be some pretty nasty consequences if they're not quite right. My endocrinologist told me they'd have to start testing my levels regularly and change my dosage a month or two before we started TTC to make sure they were spot-on when conception actually occurred. However, since we won't be conceiving, this isn't an issue.
3) Has it been easier for you to lose weight on the medication than it has for you pre-medication?
Not at all. Weight sticks to me. I've started taking Biotin (which promotes the growth of healthy, strong hair and nails, and also boosts metabolism, supposedly) and I've noticed a bit of a difference, but it's still really hard for me to lose weight.
4) Do you need to take the meds for the rest of your life?
Yes. I had half of my thyroid removed when I was 19. The other half was supposed to pick up the slack, but it didn't, so I'm on meds forever. No big deal, though--they're not terribly expensive with insurance, and it's not much of a hassle to remember to take the pill every day.
5) What's the worst symptom of hypothyroidism for you?
Inability to lose weight. Having brittle, slow-growing nails really sucks, too.
6) Do you completely get rid of your symptoms when you begin the meds, or are they just downgraded to a more tolerable level?
It kind of depends on the symptoms. My energy level went way up when I went on the meds, but weight issues stayed the same. It sucks because my levels are within the "normal" range, but the weight just refuses to budge. I've been trying to lose the 20 lbs I gained when I had to take Prednisone last summer for a year now, and have only succeeded in actually dropping a few.
@JulesSchnooks: I was tired all the time but just thought it was because I was pregnant. When I went in for my 9 week check up they didn't detect a heartbeat and did an ultrasound. The fetus was 7 weeks in size so for 2 weeks I was carrying a dead baby. I was soooo sad. Unfortunately I never got pregnant again but I guess it was for the best since my husband and I divorced several years later. I had a 14 year old when his dad and I split and if the baby would have lived I would also have a 8 year old as well.
I'm a very blessed woman to have found love again.
1) Do you remember what life was like before the meds kicked in, and has it improved markedly for you?
I am always tired but the meds haven't really improved that much. If I go off my meds, I bleed for months on end. I will begin a period and it will continue for months.
2) Is your fertility in any way affected by this?
See above.
3) Has it been easier for you to lose weight on the medication than it has for you pre-medication?
Not really, I've seen no change in my weight but I also have PCOS so that makes it doubly difficult.
4) Do you need to take the meds for the rest of your life?
Yes. Some women are borderline and can get away with not taking meds. I did for awhile until I started having really crazy periods, crazier than my normal ones.
5) What's the worst symptom of hypothyroidism for you?
Long periods and fatigue. I'm tired all the time, I could sleep 10-11 hrs/night and then a 2-3 hr nap during the day. I struggle so much from it.
6) Do you completely get rid of your symptoms when you begin the meds, or are they just downgraded to a more tolerable level?
I don't think all the symptoms disappear but I do think it's important to be medicated.
Also, are you generally nervous about having the condition? Is there cause to worry at any point in time? I'm still kind of taking it in and reading up on it, but for those of you ladies who have been there and done that, can you help out a less experienced member?
I have a family history of it. I'm really not worried about it. When you begin your meds, you may notice heart palpitations. Mention it to your doctor. I had some but they usually pass quickly. Just remember to take your meds every day at the same time! Take it every morning with water ONLY. Also get used to having your levels checked ever 3-6 months, sometimes every 12 months.
Thanks, ladies! Any weird side effects from the meds you experienced?
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My husband and I decided it would be a good idea to come home from our honeymoon and visit the doctor for our annual physicals this week. I got the call from my doctor today saying I have hypothyroidism.
I can't say I'm really surprised, because I haven't quite felt right for the past couple of years, and in fact went through what I call a "mystery illness" a couple of years ago, and it wasn't pretty. Now, by all counts I feel much better, but I do notice handfuls of hair coming from my head every time I shower, I get tired easily, and my memory is crap. I have difficulty concentrating, and my mind feels hazy, if that makes sense.
So I've been prescribed something to balance me out. I have a question for all you bees who may have the same affliction. I can ask my doctor these things too, but I want to hear it from those of you who have gone through it first hand.
1) Do you remember what life was like before the meds kicked in, and has it improved markedly for you?
2) Is your fertility in any way affected by this?
3) Has it been easier for you to lose weight on the medication than it has for you pre-medication?
4) Do you need to take the meds for the rest of your life?
5) What's the worst symptom of hypothyroidism for you?
6) Do you completely get rid of your symptoms when you begin the meds, or are they just downgraded to a more tolerable level?
Also, are you generally nervous about having the condition? Is there cause to worry at any point in time? I'm still kind of taking it in and reading up on it, but for those of you ladies who have been there and done that, can you help out a less experienced member?
Thanks, Hive! Another reason why I love you.