Post # 1
So…when am I going to succeed at holding it together? I’ve always considered myself a very strong person but I am sitting here bawling like an idiot over the fear that I will never carry a baby full-term. And of course I’m googling it and that’s only making it worse. I feel like I’m spiraling and I don’t know how to pull myself out of this. I’m sorry I sound so ridiculously emotional, I keep telling myself it could be so much worse. I work in hospice for goodness sake, I’ve had patients dying at my age, and here I am losing it over this.
I don’t want to tell anyone about it apart from my fiance so I guess that’s why I’m here. FI is being wonderful about it and so supportive, and I’m so glad he isn’t worried because I think if he was worried I’d be more of a mess than I am, but at the same time being the only one who’s a mess is making me feel a little bit alone. Maybe I should go cry with my mom for a while..
I’m not TTC yet, I’m not even getting married until February, so I have no idea if I’ll have any trouble. I’m just so scared.
Post # 3
@jennmariee: I’m not really familiar with PCOS. In fact, by “not really familiar,” I mean that I have no idea what it is. However, I still do have a suggestion – talk to your doctor about your fears. S/he will be able to give you valid information rather than the crap information you are getting off Google.
Maybe you have nothing to worry about? Either way, you doctor can either appease your fears or give you a plan of action if the concerns are legitimate. You have a supportive FI and that will help (for the rest of your life, not just in this situation). I don’t think you should put the cart before the horse and worry until you need to worry (if that even happens!).
Post # 4
- Wedding: November 2013 - St. Augustine Beach, FL
@jennmariee: Take some time to grieve but realize that having PCOS doesn’t mean you won’t ever get pregnant, it just means you might need a little bit of help. After the shock wears off, do some research (and try to ignore the scary stuff), then make an appointment to go in and talk to your doctor about it. Being diagnosed with PCOS may mean he will seek to intervene more quickly when you start TTC. Treatment can be as simple as taking extra hormones to help stimulate your ovaries. Remember that lots of women with PCOS are ultimately able get pregnant.
Here are some resources: http://www.pcosupport.org/ http://www.experienceproject.com/groups/Have-Pcos/46454
Post # 5
@jennmariee: I was diagnosed with PCOS when I was 16 – Dr’s told me I would never get pregnant, but I did get pregnant about 2 months ago (accident), although we did miscarry at 10 weeks, it is possible. I have 2 very close friends who also have been diagnosed with PCOS and one gave birth to a healthy boy almost 2 yeas ago, and is due with her second this October. The other is pregnant with her first and is due this December.
Try to stay positive – I know it is hard, it will be a struggle, but it CAN happen. Proper diet and exercize is crucial. I want to add too, that Metformin is what is normally prescribed to help treat PCOS, and I do not take it so I don’t know how it could help, and the other 2 ladies I spoke of earlier do not take it either. All pregnancies were unassisted.. (no IVF, prenatal vitamins, clomid, etc)
Keep your head up, I”m always here if you need to talk 🙂
Post # 6
If you’re anything like me, it will take a little time for you to be able to “hold it together.” That’s normal. When I was diagnosed with PCOS in 2011, it hit me really hard. I was able to start ovulating on my own with the help of Metformin, and have had very regular cycles ever since. I unfortunately have not been able to get pregnant, but there is a concern that I might have another issue as well. At this point my doctor considers my PCOS “treated” since with the help of Metformin, it isn’t giving me any issues at this point.
I have a few friends with PCOS and they were able to get pregnant and have very healthy babies. One got pregnant with Metformin alone, and the other did need some other assistance (injectibles), but they both have beautiful babies now. There are a lot of PCOS ladies on WB as well that have gone on to have healthy babies too.
I know it’s hard, but try not to rely on Dr. Google, it will probably just upset you more.
Good luck to you! If you have any questions, feel free to PM me!
Post # 7
@jennmariee: I’m so sorry that you are going through this right now. I thought that I had PCOS (based on symptoms) and was undiagnosed—but my provider at the time didn’t seem overly concerned with the idea of TTC. There are several treatments that are available to those with PCOS while TTC. I also know of several women who were told they ‘would never be able to have a baby’ and have multiple healthy children.
Try to not to stress since you have several months+ before you have to cross that path. Good luck!
Post # 8
I have PCOS too. I remember the day I was told, I was very upset but at the same time it was nice to finally know what was wrong with my body. I was upset about the possibility of not being able to have a baby but as the years have gone by i have accepted it. For me, if it happens it happens but we aren’t TTC at all right now. I am on birth control which makes my periods normal and I was on Metformin but it wasn’t doing anything for me so my DR took me off it. My PCOS isn’t extreme but I have found out, also what others have said, that diet and exercise are very important! Those with pcos have had children so don’t think it’s not possible! i would reccommend talking with you doctor when you are ready.
Post # 9
I know it’s hard, but first step: stop googling! PCOS is extremely common (10% of women?) and very treatable. I was actually kind of glad when I was diagnosed with PCOS because I knew something was up with my cycle, and I was relieved that it wasn’t anything more serious. I have the anovulatory type, and I’m sitting here looking at my 4-week old baby (whom I carried 10 days past due!).
Don’t despair; just find a good reproductive endocrinologist when the time comes. Women with PCOS have healthy babies every day.
Post # 10
Try staying positive, and off of google! I was diagnosed with PCOS in December 2012 (through an RE), was given some assistance with Metformin and on my first round of Clomid we got pregnant! We are now 23 weeks in with a very healthy pregnancy and baby (so far!). Don’t stress too much about the diagnosis, PCOS is extremely common, and in most cases is extremely easy to “navigate” through to achieve and sustain a pregnancy 🙂 I also had the annovulatory type PCOS (with really long cycles) and were so relieved to know that there are so many treatments out there help us ladies get pregnant.
The bee has a wonderful support group and LOTS of us have PCOS, lean on us for support! Many different stories and experiences, and just remember – stay off google. You will onyl stress yourself out! You aren’t alone, and this is definitely not a diagnosis of being “infertile”. 🙂
Post # 11
@jennmariee: My cousin has PCOS and has a happy, healthy, 4 1/2 month old baby girl! She did take medication (metformin and one other- don’t remember what it is called) but she didn’t have to do IUI or IVF or anything to get and stay pregnant. It is possible, hang in there!
Post # 12
I felt the same way when I was diagnosed. My advice is: let yourself go through all the emotions, talk it out, write it down…
And then focus on the positive- there are much worse conditions out there and as the other bees have said, MOST women are able to have children with help. (And some without any help!)
I just started TTC now and I am trying my best to keep a positive attitude and not stress- I know…easier said than done. DON’T go on google. Find a doctor you trust and get your information from him/her. It will not help to hear negative stories.
Post # 13
Thank you all l so much for the support and encouragement, I feel so much less alone right now. You’re all wonderful.
Post # 14
Definitely do not view it as a negative or a thing that will keep you from becoming a mother. I was told 9 months ago that I had PCOS and that I would need to be on metformin in order to conceive naturally. I am now 24 weeks pregnant with our first – no drugs or anything! The main thing that I did, which can help, was lose 30 lbs. My doctor told me that sometimes losing weight can jump start your ovaries and make it easier to conceive! Do not google. Do not think of it as a death sentence! Tons of women (even on here) go through this and have children.
Post # 15
- Wedding: July 2013 - Rock Hill Country Club, Manorville NY
I’m so sorry. PCOS is so common and doctors are able to treat it so many different ways. My cousin has PCOS and it did take her a year to get pregnant, but she did and gave birth to the most handsome baby boy I have ever seen in May. Keep your chin up!
Post # 16
I’m so sorry that you’re going through this. I heard there’s treatment for it. Yes, it will be tough but it doesn’t mean you’ll never get pregnant.
Chin up, love!