Migraine sufferers…

posted 3 years ago in Wellness
Post # 3
Member
130 posts
Blushing bee
  • Wedding: June 2014

I’m so sorry you get migraines – they are the worst. I’ve taken Cafergot – it does contain caffeine, and it’s an older migraine medication, but it does the trick. I have to take it as soon as humanly possible, or I do feel a little bit queasy the next day.

Post # 4
Member
2076 posts
Buzzing bee
  • Wedding: July 2012

I’ve had multiple CTs. All came back normal. I take a triptan based drug like Imitrex for my rescue drug but it works for me and I don’t get the hangover. Maybe ask your doc about changing to a different triptan?  Imitrex didn’t help me but Sumavel & Alsuma both work for me. You could also ask about a daily preventative, if that’s something you’re interested in.  

My migraines are also caused by tension in my neck and shoulders. I went to PT early on and it helped a ton. I also trained myself to sleep on my back only and bought a special (but expensive) pillow my PT recommended. X-rays showed that before PT my neck and shoulder muscles were in such a bad spasm, it was pulling my cervical vertebrae out of alignment.  

Depending on “where” your migraines start, you can ask about occipital nerve blocks. I get those every 3 months. It prevents me from getting nerve pain and triggering migraines that start at the back of my head. My neuro told me that a lot of patients report the blocks wear off faster and faster each time. She floated the idea of Botox just so it won’t come as a huge surprise when it inevitably comes to that. I have a friend who get Botox for her migraines…something like 20-30 injections along her forehead, head, neck, and shoulders but she says it helps. 

Have you considered acupuncture and/or chiropractic care?  Both also help me a lot.

best of luck at your appointment. I hope you get some relief. Migraines are just awful things.

Post # 5
Member
291 posts
Helper bee
  • Wedding: April 2015

@Mrs.Mittens:  Migraines suck! I only very rarely get them but my grandmother is plagued by them and one of my good friends has them nearly every day. She’s actually been doing botox injections for them and has had some relief with that.

Post # 7
Member
1721 posts
Bumble bee
  • Wedding: August 2010

@Mrs.Mittens:  Just curious, do you eat a lot of cheese or chocolate?

 

Post # 9
Member
1721 posts
Bumble bee
  • Wedding: August 2010

Unfortunately a lot of my favorite foods trigger migraines.  I have actually found that about 4oz of Redbull will often help mine (I don’t have any other caffeine besides that).

Post # 10
Member
2421 posts
Buzzing bee
  • Wedding: February 2015

@Mrs.Mittens:  I have a dual diagnosis.  Migraine and Cluster (two completely separate type of headaches, they’re unrelated to one another.)  I’ve had migraines since I was a kid and the clusters since I had an accident with some brain trauma.  

 

I’m allergic to sulpha, so I can’t have Imitrex, but I’ve had luck with a couple of triptans to take the edge off the migraine.  Do you see a neurologist?  Can you get a referral to a headache clinic?  The headache clinic was the best thing for me.  I started a routine with B2 and Magnesium and Topamax.  Topamax has horrific side effects, but it has been a lifesaver for me.  I went from migraines 28 out of 31 days in a month to a few times a year.  It’s also used to treat the clusters, however I’ve had less luck getting rid of them (and I do cycle through them a couple times a year – sometimes they last for weeks).  The clinic also recognized that I should be treated for post-concussive syndrome (from the accident).  It involves some weird stuff, but I’ve found a lot of relief from scalp accupuncture.  

I have no known food triggers.  Hormones definitely make them worse.  And I’ve had CTs, MRIs, you name it.  

Chiropractic care, accupuncture, massage all help.  But the Topamax is my hero.

Post # 11
Member
155 posts
Blushing bee
  • Wedding: April 2014

@Mrs.Mittens:  I get migraines occasionally. For example, i get one today and it goes away later on, but i get another one the next day, and then the next day, every single day no exception. Then after a while they stop. They stop for months, even years, and then out of nowhere they come back again ! 🙁 Story repeats itself and i get the damn migraine every single day. Usually around the same time every day. 

Unfortunately what works best for me is coffee. It works reallyyyy good. I’ve had CT scans done before and they’ve come back normal.

Post # 12
Member
155 posts
Blushing bee
  • Wedding: April 2014

It’s interesting because i’ve been told not to drink too much coffee because it’s not good for migraines, is this true ? I find that it helps me a lot.

Btw your photo made me laugh. Glad you’re feeling better 🙂

@Mrs.Mittens:  

Post # 13
Member
225 posts
Helper bee
  • Wedding: March 2014

@Mrs.Mittens:  I get 3 to 4 migraines a week, Ibe tried topamax, imitrex injections, replax and countless other drugs none of them work. I’ve had CT scans, MRIs all normal. we are trying to get me in with a different neurologist that has a great reputation of finding the root of them and not telling me it’s “genetics and bad nerves in my brain” all they do Is give me heavy narcotics (that I can’t take at work) and anti nausea meds that knock me out for at least 16 hours. I am getting Botox injections soon and I’ve completely changed my diet. Things like deli meat and leftovers can apparently trigger migraines, even aged cheese like Brie. Do some research on the foods and drinks and chemicals/preservatives that are linked to them and start cutting them out and see if it helps. 

Post # 16
Member
2421 posts
Buzzing bee
  • Wedding: February 2015

@Mrs.Mittens:  I’m sorry, I hate when these two conditions get lumped in together.  It’s not migraine clusters (where you get several migraines in a row – or rebound migraines) its a completely separate type of headache, completely unrealted to migraines. It drives me bonkers when they get lumped together (particularly because the clusters are impossible to get any relief from.  Nothing works.  I have to simply wait them out.) 

 

This is why a headache clinic is a great place to start.  There are over 100+ different, diagnosable types of headaches.  A GP may diagnose you with ‘migraine’ because they’re common and they see several patients with headaches that all look similar, and they simply can’t know all the different headaches.  When you go to a headache clinic they’ll be able to be specific with you and your particular headaches.  And your treatment plan will be tailored to help you, not the general masses and what helps them. 

ETA:  I have spent the last 11 years of my life dealing with headaches and treatments.  I wouldn’t wish it on anyone.  I know I’m passionate, but getting relief can be really tough.  And no one deserves to live like I did, it was hell.  I’d hate to see someone think they should ‘deal with it’ if there are other options available to them to get help and get relief. 

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