Post # 1
Not in the I have a black hole for a heart and cant seem to love, but the OMG my heart isnt medically working right. And let me tell you, its scary. And a long story
I started passing out when I was about 10 years old (19 now). I didnt see the doctor about it because the spells would go as fast as they would come on. I never had an episode close to an appointment, so it was never on my mind, therefore, never mentioned. 2.5 years ago, I was in a terrible car wreck that I shouldnt have made it out of. I was in the hospital for 5 weeks (broken bones, callapsed lung) and couldnt walk at all for another 3 months. At this point, they found nothing wrong with my heart. (By now, I had probably passed out 5 times in my life). Fastforward to now. At this point I have passed out well over 10 times (closer to 15) in my life. I quit cosmotology school because I wasnt able to stand for long periods without passing out (which we assumed was from the pressure on my leg -which I broke). I had never wanted to do anything else, but suddenly I had to, but I wasnt ready to be stuch behind a desk, so I went to school to be a nurses aid. First day of work I passed out within half an hour. Second day I passed out within 2 hours. After several tests my doc has found that my brain isnt telling my heart to regulate my heart rate, so I will go up way too high, then drop way too long (causing me to pass out). I am currently on beta blockers but they are making me too exhausted to function. I have an appointment with a cardiologist tomorrow to discuss a pacemaker. At this point I have quit my hospital job and am looking to do something less demanding, and hopefully get back to cosmo school once we get this straightened out.
I am not sure what I want from this rant, but I am very afraid for the future. I am 19 and already having so many issues and set backs. I just need to feel normal again and I am hoping a pacemaker will do that… (other than the buldging disc that will be under my skin).
Post # 3
Oh wow, I’m so sorry. I have no advice, but sending good thoughts your way so this gets under control fast!
Post # 4
I don’t know what to say, but I hope you get the medical help you need and everything started working smoother in the future! Stay strong!
Post # 5
I hope your doctors come up with a solution & fast for you! You deserve to live life to the fullest! I’ll be praying for you!
Post # 6
Thank you so much ladies. I am really grateful for this community
Post # 7
Oh my gosh I’m so sorry to hear this!! I started having episodes of passing out in 2007. It ended up being Chrohn’s disease. My digestive system was so messed up that my body wasn’t absorbing nutrients properly and I was chronically dehydrated. I’d be fine most of the time but if I came down with any sort of illness, cold, UTI, flu, etc, I’d immediately start passing out from severe dehydration. I was able to get it under control with Crohn’s meds, and now just controlling my diet thankfully.
I hope you are able to find answers soon and get better so you can get back to work and feel good!!!
Post # 8
@karissa_elaine: Oh dear, I’m so sorry! Health problems really suck. Hopefully yours can be solved by something– I guess maybe a pacemaker? Once that is in place, you’ll be able to go back to cosmetology like you want to!
Hang in there– you will figure this out. I hope you have good doctors who will truly help you. Best of luck!
Post # 9
i feel your pain–i too have a bad heart and it can be really daunting. absolutely go see the cardiologist and don’t be afraid to go see a number of them before you commit to one. Shop around, if you will. you will find different game plans once you do. I do not have a pacemaker, but an inplantable cardiac device (ICD) that essentially is a defibrillator that will shock my heart back to normal rhythm when I get palpitations. My best friend has had a pacemaker all her life and she can do everything totally normally (except flying, where she gets to avoid the loooong security lines because she can’t go through metal detectors). I would try and reframe the situation as instead of being scary and a huge thing..look at it as this is the way you get to live your life and not worry about your heart! yes, the surgery sucks. but the relief after the fact is amazing. best of luck to you. feel free to pm if you want some more support.
Post # 10
@karissa_elaine: Vent all that you want. It’s healthy and it’ll make you feel better.
I’ve had similar issues with passing out, starting when I first donated blood at the age of 17. The worst was about 3 years ago during 4th of July; I banged my head and wound up with a nice bruise on my ankle from hitting that too. I must have a thick skull cause there was no concussion or anything (thankfully), but the Cardioligist I saw didn’t find anything really unusual. The heart monitor told him that my blood pressure was plummeting when I stood up (usually first thing in the morning), but my actual heart looked ok.
Just do the best that you can. My boyfriend’s mom had a pacemaker put in this summer and while she definitely knows it’s there she says it’s much better than the alternative (in her case, it would be complications from sleep apnea). You may feel it when it kicks into gear if it’s set too high, but I think that can be adjusted. Just talk with your doctor about your options and see what they say. Good luck!
Post # 11
I am sorry. I am also on a beta blocker and they, like lots of medicines, have different side effects. Try other brands. I was on one once that made me pass out randomly like narcolepsy. I finally found one I can live with. I sleep more at night and have to make sure I get it, but I am much better.
I also have a ICD Defribulator plus pacemaker. Its like those “Clear and then a shock comes through paddles making the body jump machines” you see on TV, but its internal with the heart pacing element. It paces my heart about 60% of the time. In fact I had an appt this morning and my 4th surgery last April. I am 30.
I have something that makes me lucky to be alive, but now that I am “managed” I am healthy and doing great. You will do great. I promise.
Its tough, but remember to thinkpositive. (easier said than done). If you have trouble adjusting I would recommend trying meditation or other positive thinking mind games. Such as imagining a shade coming down behind your eyes. A shade that allows only positive thoughts to come in. It takes practice, but it works with time to help with adjusting to something like this.
Post # 12
@karissa_elaine: How fortunate that they finally found out what’s going on! I have a dear loved one who recently got a pacemaker. Not as young as you, but still quite young. You’ve got the right attitude — this is not the end of your “normal” life but the beginning. Listen to the others who have one — you’ll feel so much better once your heart gets the help it needs. Best wishes!
Post # 13
Thank you so much ladies for taking the time to read my little rant. I am very indifferent today. I went to my appointment only to meet a doctor that was a complete jerk!! My general doctor told me that a pacemaker was an option and I had decided I would like to do that and get this issue resolved. The cardiologist was very rude about it saying that it wouldnt do what I wanted and I hadnt been on the beta blockers long enough. He then asked if I was driving and I replied yes to which he replied “well buh bye”. Guhhh! What kind of doctor does that!? If he believes I shouldnt be driving then I would be much more likely to stop if he had told me in a polite way. (I NEVER have spells when I am sitting so I am not putting anyone at danger). Now I have to wait to see if it was a scare tactic or if he is going to report me to the DMV, which would suspend my licnese for at least 6 months! I dont have time for this nonsense. I firmly believe that this doctor got into the profession so that he would be over people and have a very respectable job because he certainly doesnt give a damn about his patients.
I was also told to take a half dose of my beta blocker, but not half a day, but one pill ever other day. This “doc” has no idea what he is doing! It is a 24 hr drug. I will be going back and forth between being on it and then off of it. How the hell could that possibly help me?! I am definitely going to talk to my general doctor about my concerns and see about going to a different cardiologist