(Closed) My poor baby boy:(

posted 5 years ago in Parenting
Post # 3
Member
2023 posts
Buzzing bee
  • Wedding: May 2013

@mrskisstobe:  I am so sorry that you are going through this.  I dont really have any advice – but I just wanted to let you know that I am praying for you and your sweet little boy! 

Post # 4
Member
2195 posts
Buzzing bee
  • Wedding: May 2013

cute little guy! I’m sorry to hear this — have you been assigned a case manager by your insurance? sometimes they can help you navigate the claims. Also talk to your doctors/therapists as they sometimes know of alternate options.

 

unfortunately there is a good chance that he will be needing lots of care and I think that you might need to consider turning to friends/ family for help – I know many friends who needed help after cancer and other diagnosis that really hit them (and their wallets) very hard and in almost every case people were very generous. I know its hard to accept charity but think about your baby boy and how that money will help him

Post # 6
Member
607 posts
Busy bee
  • Wedding: April 2015

First, it is not your fault. My son has autism and I have spent years trying to figure out if there was anything that I did to contribute to his disorder. The guilt will only hold you back from enjoying the blessing that is your son.

Second, put your boxing gloves on because its time to fight with the insurance company. I know from experience with my son that it can be devastating and overwhelming to deal with them but you can do it. Start writing down every single thing about his therapies. Include quotes from his therapists. If you can prove that the long term cost would be lower if he received adequate medical equipment than it would be to extend his therapy to teach him to walk without it, then you may have a fairly easy battle. If not, don’t give up. Hound them. I called my insurance company every single day for 3 and a half weeks until I got them to approve an out of network appointment with a leading specialist in another city. Don’t give up. You are his advocate.

In the meantime, definitely check into organizations that work with kids as @julies1949: suggested. Don’t be ashamed to ask for help. Also don’t be ashamed to call medical providers and equipment companies to discuss your financial status versus the cost of treatment/equipment. Some places offer payment contracts, reduced rates, and even occasional free services through grants.

Do not let anyone make you feel bad. You’ve brought a beautiful baby boy into this world and therefore, you’ve done us all a favor!!

Post # 7
Member
8981 posts
Buzzing Beekeeper
  • Wedding: December 2012

I am so, so, so sorry. Your son is beautiful and I wish you all the best.

Have you tried contacting any children therapy charities? Sometimes they can help you with financing, or even sometimes give out medical equipment to children in need.

I would definitely call around — children’s hospitals, charity, therapy teams? One of them might be able to send you in the right direction where you might be able to get it cheaper, or where you might be able to get one for free or at low cost.

All the best to you & yours.

Post # 8
Member
848 posts
Busy bee
  • Wedding: December 2015

@mrskisstobe:  Oh my gosh :(. I’m so sorry that your family is going through this! I don’t really have any advice, I just wanted to let you know that the hive is most definitely thinking of you, your SO and your beautiful baby boy. 

I would also say that you should definitely see about finding a support group, because you need to talk to people who get it. 

Post # 9
Member
6812 posts
Busy Beekeeper
  • Wedding: June 2011

Awe, you made my heart melt he is such a cute little guy.  Definately try to see if shriners or even see about other types of places that help children out.  I am going to PM you my company’s Children’s foundation form. They help funding for exactly what you are looking for.

Post # 10
Member
2541 posts
Sugar bee
  • Wedding: March 2012

I am so sorry you guys are going through this. He looks like an amazing little baby boy!

Just know we are praying for you guys!

Post # 11
Member
1158 posts
Bumble bee
  • Wedding: April 2013

Oh I am so sorry to hear about your baby .he is so cute.I wonder how much you could raise if willing Bees sent you five dollars each? I don’t have much,but could swing that.Give me the info on the fund you have established.

Post # 16
Member
1855 posts
Buzzing bee
  • Wedding: September 2012

((hugs)) to you and your little one! I hope you’re able to find some help with the resources the other bees have suggested.

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