Post # 1
DH and I are not yet TTC, but I’ve been having issues with sex drive, irregular menstrual cycles, etc. for a long time. I was tested three years ago for various things, but the doctor did not test for prolactin. I finally went back to a different doctor convinced that something isn’t right, and my prolactin level was about 100 ng/ML (normal range is 4-23 ng/ML). Thyroid problems have been ruled out, so I suspect that I (may) have a prolactinoma (benign pituatary tumor).
I have an appointment with an endocrinologist later, but I’m wondering if anyone else has been diagnosed with prolactinoma, and, if so, what type of medicine you took and what type of effect it had.
Specifically, if you went on meds:
- Did your periods become more regular?
- Did your sex drive increase?
- Did you have side effects? For how long?
- Did you have any weight loss? I’m wondering if my weight struggles have anything to do with high prolactin…
- Did you have any mood changes?
Post # 2
lr0901 : I don’t have that problem personnally, but my DH does (high prolactin levels). He is going for a brain MRI next week to check for a prolactinoma on his pituary gland. He got tested for prolactin as part of our initial testing with the RE. He has no symptoms other than male factor infertility and is a bit overweight. Are you doing the MRI before meeting with the endocrinologist? That’s what he was told to do.
Post # 3
I have high prolactin but no known cause. I think that can happen so don’t assume you’ll have a prolactinoma (I don’t, and also no thyroid issues). I’m on cabergoline but supposed to stop if/when I get pregnant. I can’t say what’s changed though because I have so many variables going on with my cycle that I can’t tie anything to anything in particular. I will say I still have spotting before my period and a shortish LP so if that was caused by prolactin impacting my progesterone it wasn’t fixed. My RE seems unconcerned tho.
Post # 4
niki1983 : Thanks for sharing. I was told to go to the endicrinologist first. I know she specializes in pituitary stuff, so I guess we’ll see…
samira86 : So strange when there’s no cause!
Post # 5
I had high probation levels back in 2015 before I got pregnant with my son. I have PCOS and we discovered the elevated proactive during routine diagnostic bloodwork. My RE sent me for an MRI and it came back clean. Never did figure out what cause the elevation. We will be TTC again soon and I’ll be interested to see if my levels have gone back to normal since weaning my son.
I definitely had a low sex drive, to the point where my husband would get annoyed that I never initiated anything.
Post # 6
Well, it looks like my thyroid is out of wack, even though they didn’t catch it at first. Endocrinologist thinks that my pituitary gland is in overdrive trying to make up for my sluggish thyroid, which can cause an increase in prolactin. Going to start thyroid meds and see if it brings the prolactin down. If not, then they are going to do an MRI.
So relieved to have some answers! I hope the meds help. I’m tired/sleepy pretty much constantly, so I’m hoping for an increase in energy to boot.