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NWR- Ovarian Cysts

posted 2 years ago in Wellness
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    rabbit    September 3, 2010   Milwaukee, WI

    So I've been having crazy pain in my ovaries for 2-3 months now. Today, while running (which I've been doing since January! Go me!) I suddenly felt like someone kicked me down there, but with knives on their metal boot. After taking myself to the campus free clinic, it seems I may have had a cyst burst. (Then, walking home 4 hours later (after the barrage of tests) I had another one burst. Let me tell you, if you're not allergic to them like I am- get good pain meds if this happens to you!). Now, my campus doctor needs me to get a series of tests done with equipment the campus health clinic doesn't have and the price tag is hefty- $2000+, non-inclusive. I don't have health insurance and I'm in a bit of a freak out right now. I have wedding expenses, every day expenses, and I was on the verge of getting a car so I can possibly get a better job (many of the better paying ones are further out of the city and difficult/impossible to bus to). Not only does the pain have me wanting to cry, but my lack of options does too. And I'm worried that cysts will make it hard to impossible to get pregnant, especially since they're bursting in such painful and obvious ways, making it very clear they are directly on my egg factories.

     

    I am so glad I have my FI right now because he's being amazing. When I sent him a text saying I was going to the doctor, he offered to leave work and, if needed, skip class to be with me (I turned him down, figuring he was 1/2 block away if I needed to call and have him join me, since he works on campus.) He got me supper, brought everything I asked for tonight so I didn't have to get up and down a ton, and when I started to panic about money and babies and everything else, he worried with me but still managed to calm me down. Its days like today that remind me clearly and sharply why I love him and want to spend the rest of my life with him.

     

    Not sure why I am writing, just looking to vent and commiserate I suppose.

     
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    MissAsB    June 6, 2009   Married in CO, Living in AL

    I'm sorry about your health problems.  Is there any way that you could go somewhere else that would have a reduced cost for you because you don't have insurance?  They really do need to check you out because ruptured ovarian cysts can cause infections and other problems.  I wouldn't worry about fertility yet either, cysts are usually individual follicles rupturing, not your entire ovary.

     
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    Chipmunk      

    Go to the hospital and get charity care. Its for people who dont have health insurance they cover exams and anything you need to do. My bro wasn't working and went their and got all the test he needed when he was hurt.

     
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    rabbit    September 3, 2010   Milwaukee, WI

    @MissAsB- My doctor did not mention that I could get an infection from a burst cyst! Ugh. Something else to worry about! There is a program here that does reduced/free care, but they are only open 3 hours a week, on Saturday mornings, they don't take appointments, and my doctor was unsure if they have the equipment to do the tests. There is one local hospital that gives a larger discount then the others (my doctor called around for me. Love her!), but even then its only 20%. $200 off $2000 just isn't significant enough to make it so I can afford it, ya know? I was worring about fertility because I was reading online that certain kinds of cysts can drastically impact your fertility, especially if they burst.

    @Chipmunk- I am not sure if they do charity care here. I definately make well below the poverty line, as far as income goes, but because i only work 19 hours a week, not 20, I don't qualify for any state or local assistance services. So, I'm not sure if that would disqualify me from chairty care too.

     
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    Chipmunk      

    It wouldn't hurt to check especially when it has to do with your health. Goodluck!!

     
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    MissAsB    June 6, 2009   Married in CO, Living in AL

    I hope you can find somewhere to go.  I would also consider talking to a hospital to say that you still can't afford $2,000 in care.  You might want to consider just going to the ER because you may have other cysts that need to be taken care of.  Then afterward talk to them about the bill since you don't have insurance.

     
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    Tonya2010    September 11, 2010  

    There should be some kind of assistance available for you. Check with your local hospital. Good luck and sorry that you are feeling so bad.

     
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    Tonya2010    September 11, 2010  

    Oh and you could also check with your county health department. If they can't help you they should be able to tell you who can.

     
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    Tonya2010    September 11, 2010  

    Sorry- posted x2!

     
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    rabbit    September 3, 2010   Milwaukee, WI

    @Chipmunk- I'll be sure to call around and ask about this!

    @MissAsB- I think I will skip the ER for now, since I'm already on a sort of low-level pain medication and the pain is dulled, but I will be calling hospitals/clinics in the morning to ask if they could work with me on the price. Maybe someone I talk to will know of a place that can help me for a reduced fee? Thanks for the advice!

    @Tonya2010- I'll give the county health department a call in the morning and see what they have to say about possible places for an uninsuranced, poor person to get these kind of medical tests done. Thanks for the tip!

     
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    MissAsB    June 6, 2009   Married in CO, Living in AL

    Also, don't worry yourself too much about infertility until you know things for sure.  It's great to be able to find anything at the click of a mouse but sometimes it causes unnecessary worry (I know I do it too!).  I was thinking that you were still in a bit of pain from the cysts but since you aren't, it probably isn't worth going to the ER right now.

     
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    rabbit    September 3, 2010   Milwaukee, WI

    UPDATE: I can't get state medical coverage because they stopped taking new applications last October because they reached the cap on the number of people they could insure. Apparently there was a county program to help with stuff like this but it was closed down last year when they ran out of funds because so many people needed it. There are no city programs to help. I called all the free clinics in the area and either they are no longer taking new patients because they are overwhelmed with people in need or they don't have the equipment. The county health department just suggested I call free clinics. Ugh. I've been crying for a little while, made worse by the fact that when I called my sister to ask her advice, she freaked out and insisted that I get to a hospital ASAP. Apparently she'd had ruptures which led to a ton of medical problems for her in her early 20's (and I only find this out now because she never talks to me about anything important in her life).

     I woke up in more pain this morning. I have no idea what to do or where to turn.

     
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    ejs4y8    June 20, 2009  

    I don't have any advice or you but cysts are serious issues! Can you call a doctors office and talk to them--see what options THEY are aware of? The cysts you have can be injected with solutions to suck the fluid out of them versus an invasive removal surgery (which is much more expensive)

     
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    SweetAdelineXO    June 5, 2010   NJ

    I ended up in the hospital after a cyst burst on me 2 years ago. I didn't have a job at the time, so charity care paid for the $6k bill to cover a CT scan - they thought my appendix had burst. Now my periods are unbearable - I have a feeling another one is getting ready to go. Hope you're able to find the help you need!

     
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    JamaicaBride    May 14, 2011   Charlotte, NC

    I would like to chime in here and say that I had ovarian cysts about 4 to 5 years ago. After numerous dr's visits and trying various things, the culprit was birth control. I have been off birth control for almost 4 years and haven't had a cyst in about 3.5 years. Once the birth control worked it's way out of my system I was golden. The Dr. tried various BC brands gradually decreasing until I was on the lowest form available but I kept getting cysts until I got off of them altogether. If you read the fine print on the BC packaging, ovarian cysts can be a side affect =(

     
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    ribbons    June 12, 2010  

    Are you sure you don't have student health insurance? I thought most universities make students pay for that. Also, are you positive you've been removed from your parents' policy? Double check all of that!

     
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    Ms Scrabble    June 12, 2011   Brooklyn, NY

    Definitely double check to see if you have student health insurance - I was under the impression that most universities required students to have health coverage, if not on their parent's plan then on a university plan.  Aside from that, can you apply for Medicaid?? If you are working 19 hours per week I don't see how you wouldn't qualify for Medical Assistance...  If the pain is bothering you this much you could always go to the hospital and give a fake name.  Kidding, sort of.

     
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    Champagne Wishes    May 22, 2010   Upstate New York

    My cousin and sister have Ovarian Cysts and both needed birth control to make them stop developing and bursting.  I see JamaicaBride had the opposite experience.  I know it's got good to practice DIY medicine, but if you are on BC maybe you should stop or vice versa?

    Also, Planned Parenthood offers a TON of free services when it comes to the reproductive system.  It might be worth looking into.

    Good luck! 

     
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    rabbit    September 3, 2010   Milwaukee, WI

    @Ms Scrabble & Ribbons- My university has a semi-free clinic for students (which is where I went yesterday), but does not require students to carry any kind of insurance. They offer emergency medical insurance twice a year- September and January- but I've never enrolled because it is so expensive. I'm not sure if I qualify for Medicaid, its something I have yet to look in to, but I can't get state, county or city medical aid. As for parent's insurance, not only am I too old for that (26), but neither of my parents have medical insurance. In fact, the only person in my immediate family who has insurance is my brother (because he's a master's student and TAs for his university).

    @Champagne Wishes & JamaizaBride- I was on BC for over 10 years, but then I started to get crazy bad, sudden headaches and I went off BC to stop those. I've been having my problems since I went off- so maybe the BC was holding them in check before, but causing me headaches. A choice between uterus pain and head pain sucks.

    @SweetAdelineXO- I hope you don't have another rupture! Pain like this sucks! I suggest getting your cysts looked at (if you can afford to!) ASAP before another rupture. Going through this once sucks, twice would drive me crazy!

    Right now I am waiting for my FMIL to get our of surgury and call me back (she's a surgical technician at a local hospital). I'm hoping that with her connections in the medical field, she'll be able to help me find an affordable place to go. In the meantime, I am home from school since I'm too out of it to make it to class or pay much attention in class.

     
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    greenleafmountain    7.31.2010  

    It's a shame your parents don't have insurance, because the new law allowed people to be on their parent's plan through their 26th year (up until the day they turn 27).

    Does your FI have insurance?  If things get really bad, would you consider making it legal before the wedding?

    Also, some hospitals will allow you to do payment plans, so even if you couldn't afford the $2000 right now, maybe you could ask about paying $100 a month or something...

     
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    Tonya2010    September 11, 2010  

    Did you try your local hospitals? We have a catholic affiliated hospital in my area and they have a program that one can enroll in and get free care for X months. Also, check other counties and cities in your area. Just because your city/county can't help, doesn't mean that another facility can't. Hang in there. It will all work out.

     
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    rabbit    September 3, 2010   Milwaukee, WI

    @greenleafmountain- my FI doesn't have any insurance either. Booo! Otherwise, we'd get legal and put me on his right away!

    @Tonya2010- I have been calling local hospitals all day. While some have a certain % off for those without insurance, none of them so far have sliding scales or free/reduced care for the poor. There are a few I'm having problems getting a hold of anyone at, so maybe one of those will pan out!

     
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    Rosie Girl    September 18, 2010   Montana

    I feel your pain, litteraly! I have had cysts burst on my ovaries too, and it felt like I was in labor again! I'm really sorry and I hope they get better for you. I have had lots of tests done on mine and they just watch them to make sure they don't twist or anything. I hope you feel better soon and find a place you can go to get help!!!!!

     
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    rachel_leigh    May 15, 2010  

    Based on what you have said, it sounds like the BC was keeping the cysts at bay.  I know many people who have gone on BC to fix cysts and it did the trick.  So maybe you need to go back on BC?

     
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    chelseamorning    November 1, 2008   Washington, DC/Atlanta

    I am so sorry to hear you are in pain and financial distress as well. My question is, what likelihood is there of the test giving you a method of treatment that you would not otherwise get? The only treatments for ovarian cysts I have read about are either treating the symptoms with birth control pills and pain relievers (and then waiting to see if they resolve on their own) or else surgery.

    Have you yet exhausted all the more conventional and more accessible treatment options first? If the first line of treatment is relatively straightforward (like, try birth control pills, or a different pill, or getting off the pill), then couldn't you try that first before having to get the tests? I would also ask your doctor what likelihood there is if you get the tests that you will have to have surgery---versus having the tests done and them telling you they are not bad enough to require surgery and that you should try alleviating the symptoms with bc pills or waiting to see if the cysts resolve on their own. It would be such a shame to shell out all that cash for the tests only for them to prescribe a treatment you could have tried without the tests. If it does turn out that the test is necessary and your best option to get the right treatment, maybe you could work out some sort of payment plan with the hospital. I hope you feel better soon.

     
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    Iamalighthouse    February 26, 2010   SoCal

    I was going to say the same thing! I have PCOS, so I have them burst too and it's terrible. And being allergic to pain meds doesn't help you! I feel so bad!!!

    I don't have insurance either, and haven't had an experience like yours, but I do know our county has very affordable health care, and also the women's clinics and Planned Parenthood and those types of organizations have services. Call all of them you can. Google women's services no insurance, for your area, and call call call. That will be the best!!!

    Praying for you girl!!

     

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