Ovarian Emdometrioma / Stage 4 Endometriosis & TTC

posted 3 years ago in TTC
Post # 3
729 posts
Busy bee
  • Wedding: November 2007

@bearsreddy:  I do have endometriosis, though mine is stage 2, so it’s considered ‘mild’. I also have PCOS. However, DH and I TTC for over a year with one MC and no sustained pregnancy, so I’m very worried for the future.

“Oh I know someone who had endometriosis. And they have 4 kids now. You’ll be fine.”

I have heard that multiple times at this point, and it is the most frustrating, annoying, insensitive thing that could be said to someone dealing with this. Especially the “you’ll be fine” part, because really random person (or even friend/family member for that matter), you know that I’ll be fine? How exactly do you know- are you my gyno and I was unaware this whole time? Ugh.

My gyno told me that with surgery (laparoscopy/ablation) infertility actually increases for 12-18 months. My chances of conception each month go from 2% (as compared to a ‘normal’ woman’s 20%) to 4%- that is according to what I’ve found online and also backed up by my gyno.


I would say “Don’t stress” and “Just relax” but I know that being told those things really doesn’t help in a situation like this. I would talk to the specialist about all of your options at this point, and if you plan on having children, I would ask what can be done to help with that- since you have been diagnosed with Stage 4 endo, and have had one MC, I don’t think they’d make you wait to start medication/IVF if that is the route you wish to go.

Best of luck!

Post # 5
729 posts
Busy bee
  • Wedding: November 2007


I’ve had surgery, the laparoscopy/ablation to remove the endometriosis they could find (I was told the surgery would last approximately 30 minutes; it ended up taking over 2 hours to remove everything/as much as possible). DH and I are going to begin TTC next year, and I was told to make an appt with my gyno to discuss going on medication sooner (since he knows about our prior issues with TTC when I was using a different, horrible gyno). I don’t know if the surgery increased my fertility at all, since we haven’t begun TTC yet- but we’ll find out next year I suppose.

I was initially told I could have surgery or he could start me on Lupron (which is supposed to help with the symptoms and I was having multiple, but it sends your body into a ‘menopausal’ state…since I knew I’d want to TTC within 2 years that was a no-go).

Once we’ve TTC for at least a year, if we haven’t had positive results (with medication), we’re considering IVF (though neither of us really want to go that route).

Post # 6
1834 posts
Buzzing bee
  • Wedding: August 2013 - backyard in the woods

@bearsreddy:  I just responded to your post on the Charter’s thread- sorry, I didn’t see it before:) From what I’ve heard laproscopic surgery is very helpful in helping to conceive, especially if it’s for more severe Endo. Yes, it may destroy healthy tissue, but if the Endo is already extensive, removing it can remove obstructions that may be physically preventing conception.

I’ve also read that it’s thought that Endo is an Auto-immune condition, hence why someone with mild Endo can have such severe pain, and someone with severe Endo can have little to no pain, or vice versa- there’s no correlation between pain and severity. It also could explain how someone with mild Endo could have issues conceiving when there are no physical obstuctions. I may be biased to this theory though because my family has hit the auto-immune jackpot. My mom had lupus, hypothyroidism, RA, Endo, and MCTD among others. My dad has Wegner’s and my little brother has juvenile RA. I have Endo and Fibromyalgia myself. My other brother is also BP, so I can empathize and sort of relate to you with that.

I understand being scared about being able to conceive. So little is understood about Endo and conception. I hate it when people tell me it’ll be okay. I know they’re trying to be supportiive, but I’m like “You don’t know that!! No one does!! Ugh!!”. Then they say, we’ll there’s always IVF, or surrogacy, or adoption…they don’t get it!! I want to be pregnant, have my own children and you seriously think paying thousands of dollars or having someone else have my baby is a good solution? You’re missing the point!! End rant:)


Post # 7
729 posts
Busy bee
  • Wedding: October 2013

Endometriosis is tricky. Truthfully, there are no rules about it. For some people, the surgery is immensely helpful. For other people, it’s not. I wish I could say something better, but it is what it is.

I have stage 2 endo (or that’s where I was last surgery, 4 years ago). DH and I plan to begin ttc in early spring, so I am trying to schedule a surgery for after the holidays. My specialist told me, based on what he’d seen inside me last time, that having surgery and then ttc after was my best chance. Everyone is different though.

As for the things people say….people are ignorant, without meaning to be. I’ve had people tell me there’s “no way” I’ll ever get pregnant (even though the doctors, with the actual medical degrees, didn’t agree), and other people tell me that they know “lots” of people with endo who had no problems. It’s frustrating, but seriously try not to let it get to you. Big hugs!

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