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PCOS ladies Please Share

posted 4 months ago in TTC
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    1.
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    Worker bee
    ctbridetobe    September 2, 2010  

    What were your symptoms if any? Anyone with atypical PCOS (e.g. without the text book symptoms)? My cycles have been long (38 days) but pretty consistent after going off BCP in August. I have gained a few lbs since going off BCP (8 to 10). Getting an ultrasound to r/o or confirm. My doc was telling me that many women have PCOS without the typical symptoms.  I know there is no point in worrying I have it, but would like some first hand info.

     
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    Bumble bee
    peaches13    July 9, 2011   Texas

    Stubborn belly weight, hirsutism, acne, and painful ovulation were my primary symptoms.  For quite some time, doctors ruled out PCOS because I often have shorter cycles (23-26 days isn't unusual for me, but I've had a few longer cycles as well).  My current OB/GYN only caught it on a blood test because of my LH:FSH ratio...the levels themselves are within range, but not in proportion to each other.  I don't have any detectable cysts (though I haven't had an ultrasound), so apparently my case is mild/caught early.

     
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    Busy bee
    Miss.Sunflower    May 5, 2012  

    Um, yeah. My periods were very rare. I would wait and wait for them to come growing up, and they wouldn't come except one time in a few years. I was worried. Went to the doctor and was diagnosed with PCOS and ovarian cysts. My mother had it as well, so it wasn't a big surprise. 

     
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    Helper bee
    Scribbles    June 1, 2012   Auckland, New Zealand

    I came off depo provera as BC and did not have a period for about a year. I do have mild acne - worse skin now than I did in my teens. I also have the low slung lower abdo weight and gained that very quickly when it became an issue. It took me about a year to be diagnosed (stupid university free doctors) but I've now had it controlled for six years - I'm looking forward to having another ultrasound later this year to see if there have been any changes to my ovarian cysts over the years.

     
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    Bee Keeper
    jaguar    June 11, 2011  

    I had the typical symptoms - irregular periods, long cycles, no signs of ovulation, weight gain after pill, acne, hair growth in random places {particularly neck/chin, it's AWFUL} and what-not. It's kind of frustrating. 

     
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    Sugar bee
    bookworm88    August 4, 2012  

    I went on the pill in high school and stayed on it for 5 years. After I went off it, I didn't have a period for over a year-- still haven't had one since.  I've got the awkward hair-- hello mustache! And I gained 30 pounds in the year after stopping BC.  I don't have cysts, but I do have elevated testosterone.

    I just started Metformin two weeks ago, no period yet but I have lost 7 pounds! (Totally worth the occasional stomach pain!) 

     
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    Bumble bee
    eryepye    March 27, 2010   Seattle, married in Portland

    Mine was hard to diagnose because I'm thin and while I don't have perfect skin when not on BC, I don't really have acne either. No hair growth in random places. The main sign was my irregular periods. I finally had an ultrasound and it revealed more follicles than normal. Apparently, there is a huge range of mild to moderate cases and mine is on the very mild side. The normal amount of follicles is around 12, I had about 22. Some people have over 50. Your ultrasound will be able to give you some answers--good luck! (Also, just FYI, I was able to conceive without meds, it just took a little longer due to long cycles). 

     
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    Buzzing bee
    bunny    July 3, 2009  

    I don't have cysts, but I do have:

    -Weight gain in my stomach

    -Some dark hair on my face and stomach

    -Borderline insulin resistance

    -Irregular periods and no ovulation

     

     
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    Busy bee
    vreelans    August 11, 2012   minneapolis, mn

    awful pain. first it was cysts. then it was kidney stones. then it was my appendix. and back to the kidney stones. then endometriosis. and on and on. doctors would tell me it was one thing after another. my periods when i was on BC were looong. 20-30 days. now being off of BC, i hadnt had a period for 9 months. then i got one regularly for 2 months and they were both short. now im on my 3rd month without nothing. if you think you have it straight up ask a doctor to test. good luck!

     
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    Honey bee
    kala_way    May 28, 2011   Manhattan Beach, CA

    I don't have the cysts either, but I have pretty much every other textbook symptom.

    Basically no period whatsoever. High testosterone levels leading to hirsutism. Terrible acne that's only helped by high doses of estrogen. Metabolism issues. Hormone imbalance was treated for a time with meds but it didn't seem to do much good so I've gone off of them. Since I absolutely don't want kids, I'm hoping I also have the infertility symptom,lol.

     
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    Sugar bee
    bookworm88    August 4, 2012  

    @kala_way: I flipflop between thinking the anovulation is the best BC and then getting scared because I do want children someday!

     
    12.
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    Worker bee
    ctbridetobe    September 2, 2010  

    @eryepye: ah, very interesting, I didn't know there was a range. Glad you didn't have trouble TTC. Ultrasound is tomorrow. I feel/hope like my case might be similar to yours. Thanks!

     
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    Bumble bee
    Candy_Nee    May 1, 2010   Raleigh, NC

    I don't have the typical symptoms either.  Here's what I do have:

    *difficult to lose weight

    *acne on chin (when not on BCP)

    *no ovulation

    *very irregular periods

    *slightly elevated testosterone levels

     
    14.
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    Sugar bee
    MrsMaine    May 29, 2011   Boston, MA

    * Long, irregular cycles (Usually 40ish days, but sometimes up to 60+)

    * Annovulatory cycles

    * Tummy weight, difficult to lose no matter what I try

    * Neck/chin/tummy hair (the WORST part)

    * Elevated testosterone levels

    * Poly-cystic ovaries

    * Enlarged ovary

     

     

     
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    Busy bee
    Sunshine1810    October 8, 2011   New Hampshire

    I have:

    * Irregular cycles (although now that I am on Metformin they are like clockwork - 32 days)

    * Painful ovulation/ovarian cysts

    *Ugh the tummy weight!

    *Slightly Elevated testosterone levels

    * Insulin Resistance

    *I also suspect that I didn't ovulate for a long time before going on Metformin.  Honestly, I wasn't really paying much attention until the end of the 18 months since I went off BC (that was when we started TTC).

     

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