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Yeah, lately PCOS has been a big topic on the Baby/wellness boards. I have PCOS so I understand the fear and frustration.
I'm not trying to deter you from getting help here, but there are a lot of great support websites out there for those with PCOS that include success stories.
Biggest tips I have are if you're overweight, try to get it down around a healthier place (I'm not talking stick thin) but where you can comfortably stay at and decrease the carbs (eat more whole grain carbs instead). Exercise, even walking, would be helpful. Lastly, talk to your physcian about metformin and clomid. There are women who use both and women who use neither medication and were able to conceive! Good luck!
@angela2011bride: I have PCOS as well and would love some hope through some success stories! I hope this thread picks up!
@beekiss2: Unfortunately the biggest support board for PCOS, SoulCysters has been down for a few weeks and no one knows if it's coming back. I'm thinking that's probably the reason for the increase of PCOS related posts here :)
Diet and excercise with PCOS is easier said than done. I would just love to hear some bees who have been successful at achieving pregnancy. Other sites I go to are few are far between with success, most are just peoples unsuccessful story. Just wanting some hope and reaching out to the bees for it.
This board also has really good discussions and stories for all types of infertility:
http://www.inspire.com/groups/finding-a-resolution-for-infertility/discussions/
@angela2011bride: I know it's easier said than done. Sorry if I diminished that by my post :/
Frankly, I haven't heard of a blogging bee or board bee with PCOS (yet) conceiving and carrying to term. I think it hasn't really been talked about until the last three months or so.
EDIT: I should say though that my half sister who is several years older than me conceived twice with no issues despite having PCOS but her situation is a bit different b/c she is thinner than the average PCOS patient. Hopefully that helps!
@angela2011bride: Amen on the diet and exercise sister! I've been pretty down about the whole pregnancy issue lately as well since FI and I have been having the baby talks about when to start TTC, etc. We decided to start immediately after the wedding just in case it takes years and years. It seems that some PCOSers get pregnant right off the bat, and some it takes forever, or never happens. There really is no "normal". I wish there was a little crystal ball we could all look through to see the road ahead of us.
I agree, I keep seeing people post that they have this, but nothing about conceiving. It would be nice to hear.
The thing is there are so many different degress of PCOS that it's hard to say what works for one will work for someone else. I was dx'd with it and both my sisters and we all have different problems. I was still ovulating although not until very late in my cycle. I would have anywhere from 40-70 day cycles just so erratic. But through charting I would get fertile signs and a clear temp shift. Eventually. My sister never ovulated and when not on the pill would just bleed for months. She only got pregnant from meds and trigger shots and multiple IUI's. She has had about 8 or 9 total and she has a 3 y/o and newborn twins. I actually feel that I owe my pregnancy to diet and exercise which I know is easier said than done for a lot of people but it's true. I started P90X and a low carb no sugar high protein diet and I dropped 25 pounds and I started to ovulate on CD 16. I got pg on my first try and I'm 12 weeks. I also took certain vitamins like D3 and mag citrate. I learned a lot from soulcysters and I didn't realize the site was down. I also have other autoimmune problems which I don't know if it's related or not but seems to be prevalent in PCOS'ers. I did have 3 miscarriages in the past but it's from a clotting disorder because I am on blood thinners for this pregnancy and things are progressing well past the point of any of my previous ones. I will say that not eating sugar and refined/processed carbs is really important especially if you're insulin resistent. It sucks nd it's hard but it is the only thing that makes me feel like a normal person. My doctor said not eating sugar is very important if you are taking metformin. I'm not on it now but I was. Anyway I doubt this was too helpful but I am sharing my success story and I hope you all can find the right solution. I think it's important to get all your hormone levels checked too. Certain meds or vitamins can benefit or not benefit certain hormone issues so it's important to know all your levels. I'm still watching my carbs and sugar for this pregnancy because I know I am prone to gestational diabetes. I don't want to have to do insulin injections since I'm already doing daily lovenox ones.
@thelovecats: First of all, congratulations! It is finally so nice to hear someone who has gotten to the final goal! Obviously you were not without your own trials and tribulations, but I guess that's important to keep in mind.... that PCOS is not the be-all end-all of getting pregnant, we just have to find a different way to get there =)
Thanks for the uplift!
I have PCOS, and although I miscarried, I did conceive! And I will again! The miscarrage had nothing to do with the PCOS or the Clomid. So that is a semi-success story!
I have PCOS as well, and one of my close friends just gave birth to a healthy baby boy about 3 months ago after being diagnosed with it 4 years ago. (Note: She did not TTC for the whole four years, I think she tried for maybe 8-10 months?)
It's totally possible. :) Happy thoughts.
I have PCOS too. I was first diagnosed a year and a half ago after going to the doctor because I didn't get my period for several months (at the time I had recently gained weight). I went to a reproductive endocrinologist who did a bunch of tests and told me that the first step would be changing diet and exercise and trying to lose weight - if that didn't work, we would look into medication. I followed a low glycemic index diet and lost about 25-30 pounds over the course of a year. Sure enough I started ovulating again fairly regularly. I ended up getting pregnant on my honeymoon! I was shocked because I was really expecting (and had prepared my husband for) a difficult road of TTC. There is definitely hope!
My doc diagnosed me with PCOS but I'm still not completely sure I have it. Post BC my cycles were ALL over the place. 60 - 45 - 60 - 53 etc etc. I went to see the doc after 7 or 8 months to talk about it. After a couple questions he diagnosed me with PCOS and wanted to start meds but I was gun shy. I had just had 1 semi nomal cycle and wasn't convinced my body was 'still adjusting'. Strange to me this could be diagnosed without 'tests'. I told him we'd keep trying for another 6 months and see what happened before starting meds.
My next cycle was long again - I ovulated a week late... but we must have timed things right because we got our miracle who is now almost 5 mos old :)
Like the reader above there is a broad spectrum of PCOS. From long cycles to no ovulation at all. I may be on the mild end of the spectrum.
I'm still breastfeeding and have not started my period yet - but I'm very curious to see if my cycles will sort themselves out back to my pre-BC days or if they'll continue to be irregular.
I have other friends with PCOS with success stories as well.
I wish there was a "like" button for these posts! It is so encouraging to read these stories!
@angela2011bride: Great thread idea!!!!
@thelovecats: Thank you so much for sharing! It gives me hope that it can happen!
@MrsMaine: Thank you and you're welcome!
@Candy_Nee: You're welcome! Glad I could help!
Also if this makes it any more helpful, I am 37 and I really felt like the odds were against me, but I'm doing just fine. I got pg with no help from Clomid or anything. My doctor was pushing Clomid on me, and I was going to take it if I didn't get pg right away, because I thought it might give me a stronger O even though I knew I was O'ing. I figured it couldn't hurt, but luckily I didn't need it. Another thing that made me adamant to go natural was because I couldn't take the pill due to the clotting disorder. So I had to research and figure stuff out on my own. Definitely the 25 pounds has made some sort of crazy difference in my body. I read that weight bearing/weight lifting exercises are great for PCOS. I think the P90X being that way and the low carb made the difference. I used to run 3-4 miles a day and could not drop a pound! I started P90X and the weight fell off. WEIRD! I mean I know that building muscle increases metabolism but I didn't realize how much of a difference that it would really make. As soon as this baby comes, my love affair with Tony Horton is back on! lol
Thank you to all of you who shared stories. I realize that PCOS can mean different things for different people, and that the way that you get pregnant isn't going to be the same as it can be for me. It's just nice to know that at the end of the day, people have been successful and it's good to read the stories. Please keep em coming! :)
I have PCOS and I have a daughter. All I did was change my eating pattern to vegetarian stirfries for 2 months and I concieved - by accident. Something to consider?
Were you ovulating before that? WOW if all it took for you was 2 months I'm impressed, that's so awesome! I've made some dietary changes and I'm already seeing results on the scale, so I'm hoping that will transfer to my ovaries and they will start to work properly again :)
@angela2011bride: I wasn't. I wasn't getting periods or anything. Just that shock to my system to eat better really kickstarted me. I got a period, got another one, then got pregnant :) I can't say I lost any weight, but I felt better y'know?
It just takes some real dedication and drive. Give it a go. Fresh veges. Cut back the carbs and fruit and eat those veges. See how it makes you feel.
I'm entering this discussion late. I'm 37 with PCOS and TTC. I haven't gotten pregnant, but I've seen impressive results through losing weight, acupuncture and traditional Chinese medicine. The book, Making Babies really helped me get a grip on what is in my control. My whole life I had been told that just about the only thing I can do is take the pill and not worry about it until I want to get pregnant. And now I'm 37 and just really learning that there's a lot more that I can do to help this condition and build my fertility. I frankly feel cheated.
I just came off the pill a month ago and sought an herbalist for help. Going off the pill is awful for me normally. With the help of herbs, it was smooth as I could imagine it. I'm doing BBT charting and found that my cycle was near perfect: ovulation on day 15 and a 12-day luteal phase. After years of wondering if I could dare to dream of having children, I have hope.
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I know a lot of us on this board have PCOS and are trying to get pregnant with medications, etc, but does anyone have a success story? I'm feeling down about this whole process and I could use a story of success. ANYONE?